PLEASE HELP - desperate - 10 y.o. migraine 6.5 days! - Mothering Forums

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#1 of 35 Old 11-16-2008, 09:36 PM - Thread Starter
 
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DD (nearly 11) has had a migraine since Monday (Nov 10).

We're at Children's ER for the third time. The first time was Wednesday, when they did a CT to rule out other stuff, diagnosed her with a migraine, gave her an IV bolus of saline, then toradol, compazine, and benadryl. The pain came back the next morning, full force. The toradol, compazine, and benadryl they sent us home with did zip, zero, zilch.

Then we came back, at the instruction of her primary care doc, Friday afternoon/evening. They gave her a neurology consult, gave her imitrex (did nada), compazine and benadryl (might as well have been nothing), and finally depakote, which worked, but only until the next morning. They sent us home friday night saying, basically, that the pain would probably return and there was nothing to do about it. They essentially told her to just suffer and not come back ... Also, that if the pain continued til Monday, to call that neurology resident and she'd try to get her into the adolescent headache clinic at the UW quickly. As in, in a few weeks!

The pain has been just as bad yesterday and today, so I called the after-hours line for our primary care clinic. The doc on call is an internist (even for kids - huh???), but she's my doc, so I have a good rapport with her. She said she would call Children's and insist that they treat and possibly admit her.

We've just had the visit from the Resident MD, who did the exam, and doesn't know what to do, since we've exhausted all the options for migraine.

What do we do? Got any treatment suggestions, either conventional medicine or natural in case they send us home again? (though, I'm not keen on leaving without real treatment...)

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#2 of 35 Old 11-16-2008, 09:45 PM
 
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does she have a rash or a fever?
is it just her head or does her neck hurt as well?
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#3 of 35 Old 11-16-2008, 09:48 PM
 
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Did the headache come on suddenly? Has your dd ever had migraines before?If not, was there an injury, twist, fall, anything like that? If the ER doesn't think an MRI is necessary and they've ruled out any life-threatening illnesses, I would go to a chiropractor and/or an acupuncturist.

to you and your dd
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#4 of 35 Old 11-16-2008, 09:51 PM
 
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This is probably going to sound really dumb with all that you've been through, but Mt. Dew works on my migraines better than any drug. And it's not just the caffeine in it, it doesn't work with coffee, pepsi or anything else. I just thought I'd throw it out there since it couldn't hurt to try. I hope she feels better soon.
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#5 of 35 Old 11-16-2008, 09:55 PM
 
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You have in no way exhausted treatment options for migraines. Identify triggers, and then removing triggers can sometimes help treat them. Serious headaches need to be looked at further though for other signs of illness: especially if they are sudden.
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#6 of 35 Old 11-16-2008, 09:56 PM - Thread Starter
 
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We've tried caffeine (Mt Dew prolly works best bcs it has the most caffeine), and she has been to the chiro, which didn't really help much.

No fever or rash. They've ruled out all that stuff (meningitis, etc.), and between interns, attendings, neurologists, primary care docs, and urgent care doce, she has the neuro exam memorized, so much that she corrected the resident a few minutes ago when he forgot one part :

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#7 of 35 Old 11-16-2008, 09:56 PM
 
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Have they done an EEG?
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#8 of 35 Old 11-16-2008, 10:01 PM
 
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how is her stress level? does she menstruate yet? sometimes migraines are related to one or both of these.... and these are particularly hard to kick b/c of their triggers.

hows she doing with light? hospitals are awfully bright..sun glasses can help. ear plugs are nice too. anywhere but a dark silent room is hellish for me when i have migraines.
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#9 of 35 Old 11-16-2008, 10:05 PM - Thread Starter
 
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No EEG or MRI, or any discussion of one yet.

she has sunglasses for the lit parts of the hospital (and everywhere else) because she's incredibly photosensitive right now, and also sensitive to sound. We have all the lights off in the exam room, the only light is ambient light from the door, filtered by the curtain.

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#10 of 35 Old 11-16-2008, 10:07 PM - Thread Starter
 
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Also, many women get migraines sometime before their period starts, or shortly thereafter. She's not quite as far along in her puberty journey as the rest of us were (I was 9 months before my period when I got my first migraine, and I think she's about 1.5-2 years from hers). But I definitely think that puberty could be playing a role. Unfortunately, that knowledge doesn't help her pain now.

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#11 of 35 Old 11-16-2008, 10:08 PM
 
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Try EFT.
http://www.emofree.com/articles.aspx?id=17

There are also some videos on YouTube that show you how to do it This is one & you can find others if you Google it:

"How to get rid of a migrane Headache using EFT Technique"
http://www.youtube.com/watch?v=Gv8Ki9_Jk-w
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#12 of 35 Old 11-16-2008, 10:15 PM
 
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Originally Posted by CorasMama View Post
Also, many women get migraines sometime before their period starts, or shortly thereafter. She's not quite as far along in her puberty journey as the rest of us were (I was 9 months before my period when I got my first migraine, and I think she's about 1.5-2 years from hers). But I definitely think that puberty could be playing a role. Unfortunately, that knowledge doesn't help her pain now.

hmm. you probably already tried this.. but just incase have you tried whatever you do to help your migraines?

its hard b/c they have tried a lot. when this happens with my best friend they giver her Demerol or morphine to help the pain until the migraine breaks.
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#13 of 35 Old 11-16-2008, 10:16 PM
 
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How is her posture and spinal alignment? Are there any positions that aggravate or relieve the headache? It might not be a true migraine, but headaches resulting from pressure on the nerves at the base of the head. If there are certain position she can hold her head in that feel better or worse, it might be this kind of headache. I have a special pillow for stretching my neck, but you can lay with body on the bed and your head just barely off to stretch it in a similar way. I think that neck xrays are usually how these pinched areas are located, but some chiropractors or neurologists can id them just by feeling the neck bones. They can inject anti-inflammatory meds or muscle relaxers right in the neck to relieve the headaches. Depending on the severity, the chiropractor may want to do a series of adjustments. Then there are exercises to help keep the neck in the proper alignment.

http://www.bodyjaz.com/home/bjz/page...ef_pillow.html <- That is not my pillow, but it is very similar.
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#14 of 35 Old 11-16-2008, 11:31 PM
 
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Please read everything I have posted about Aspartame. It is one of the main causes and Aspartame is in over 9000 food, vitamins and medicine products.

Google Aspartame and migraines and you will be shocked. I got over 91 thousand hits. No doctor will make that connection either.
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#15 of 35 Old 11-16-2008, 11:44 PM
 
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I went through something similar about 10 years ago and my PCP said that he was sure I had an annerism. He sent me two hours away for an MRI and a consult with a neurologist. It ended up just being a headache. I had to go on prednisone for several weeks. They said I had a status migraine and that because I had had it for so long, the steroids were the only thing that would shrink the blood vessels in my head. It worked but then came back about a month later with a vengence. The neurologist was consulted again and prescribed a steriod, maxeran and decadron which had to be given IV every 8 hours for 4 days. I kept the IV in my hand and returned to the hospital for my medication. It was awful but I finally got rid of the headached. I still get headaches once in a while but nothing like that.

I would wonder if a steriod or maxeran or decadron might work for your dd. Not sure if those are drug names but I'm sure googling them will pull up something.


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#16 of 35 Old 11-17-2008, 12:15 AM - Thread Starter
 
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Originally Posted by Gitti View Post
Please read everything I have posted about Aspartame. It is one of the main causes and Aspartame is in over 9000 food, vitamins and medicine products.

Google Aspartame and migraines and you will be shocked. I got over 91 thousand hits. No doctor will make that connection either.
As a migraine sufferer, I'm all about not doing aspartame! I think she has had artificial sweeteners maybe twice in her life, neither time from me!

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#17 of 35 Old 11-17-2008, 12:32 AM
 
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Our classical homeopath helped to resolve my friend's years and years of migraines.

Pat

I have a blog.
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#18 of 35 Old 11-17-2008, 12:32 AM
 
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I've BTDT and it sucks. I started having migraines when I was 11 and they would persist for days. Eventually the doc prescribed codeine. I'd take one and lay down in my room with towels over the window to make it completely dark and pass out for about 12 hours. That was so horrible though. I still felt blah for a few days after that. Nowadays I get them a few days before my cycle starts.

I hope your DD finds some relief soon.

Beth
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#19 of 35 Old 11-17-2008, 12:39 AM
 
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As a migraine sufferer, I'm all about not doing aspartame! I think she has had artificial sweeteners maybe twice in her life, neither time from me!
Soy exacerbates migraines in myself and my son.
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#20 of 35 Old 11-17-2008, 01:05 AM
 
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Soy exacerbates migraines in myself and my son.
Me too! And peanuts as well. And chocolate, even unprocessed raw cacao.

Magnesium can help, as can the herbal supplement petadolex. And Arginine.

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#21 of 35 Old 11-17-2008, 01:08 AM
 
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has she seen a dentist/eye dr recently?

I had this same problem (at 14yo) but it lasted much longer (many weeks) and it ended up I needed a root canal.

Blissful Mama to DD-(5), DS-(6) and someone new due in November!
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#22 of 35 Old 11-17-2008, 01:11 AM
 
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Definately try magnesium. Carolyn Dean MD recs mag along or with B6 and feverfew. Her book is a must read for a lot of reasons.
http://www.drcarolyndean.com/article...m_miracle.html

Magnesium taurate or citrate or mag. oil are best absorbed versions. I would give until bowels are loose.
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#24 of 35 Old 11-17-2008, 04:47 AM - Thread Starter
 
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They're giving her 1000 mg magnesium as kind of a last ditch effort, but basically, the neurologist doesn't believe that the meds they have will work, so they're admitting her for some intensive counseling and testing, under the theory that this is stress-induced. I'm not sure I buy that theory, but at least they'll see that she's not faking (she copes with pain like I do, by joking around, so they don't see her "reacting as we know a child in extreme pain reacts"). The doc was also like, "and this will give you a break, too" :eyeroll: I don't need a break, I need my kid better!!!

Anyway, we're about to head upstairs, and then we'll stay til she falls asleep and then I'll come back in the morning.

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#25 of 35 Old 11-17-2008, 04:57 AM
 
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I have nothing helpful... just a hug for you, mama. You sound so... together? considering the circumstances. It is so draining to have to watch your child be in pain at all, let alone to feel powerless about stopping it.

Distraction is not the same thing as play.
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#26 of 35 Old 11-17-2008, 05:01 AM
 
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I had severe migraines as a child. MIne lasted 6 months at a time. There was no "offical" cure or cause. I had horrible teeth- genetic issue. I had all my teeth pulled when I was 18 and my headaches were gone- instantly.

Also consider having them check out her thyroid and neck because Dr.'s like to think that 1 system is a solo system- NOT! I hope you find answers soon!

Also remember that if they are giving her pain meds there is a chance that she will get a 'rebound' headache after the fact that is similar but should get better with time.

Don't let them NOT treat her either- that's the worst feeling as a kid. Knowing that these peopole had drugs that could make me feel better- and them NOT giving them up. SUCKS.

Married to Michael and Mother of Jake 9, Jillianne 7, Jensen 5, Jacen 4. I've got severe osteoporosis, a fractured hip and chronic pain-so please be patient with me! Pagan,Crocheter,Reader,Homeschooler- that's me in a nutshell.

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#27 of 35 Old 11-17-2008, 06:54 PM - Thread Starter
 
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I have nothing helpful... just a hug for you, mama. You sound so... together? considering the circumstances. It is so draining to have to watch your child be in pain at all, let alone to feel powerless about stopping it.
yeah, I'm not really together, I just fake it, because I have to.
They're giving her something called DHE, which is what they give the kids with the intractable OMFG MIGRAINES who are so bad it needs hospitalization, and apparently it works, and then setting her up with ongoing Topamax and appointments with the biofeedback clinic in the future.

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#28 of 35 Old 11-17-2008, 09:41 PM
 
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yeah, I'm not really together, I just fake it, because I have to.
They're giving her something called DHE, which is what they give the kids with the intractable OMFG MIGRAINES who are so bad it needs hospitalization, and apparently it works, and then setting her up with ongoing Topamax and appointments with the biofeedback clinic in the future.
i hope she feels better soon!
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#29 of 35 Old 11-17-2008, 10:40 PM
 
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See if you're anywhere near one of these chiropractors: www.atlasorthogonality.com

They specialize in migraines.

Big hugs to you mama, that's not easy.

mumma to sweet 7 year old girl
and darling 2 year old guy

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#30 of 35 Old 11-17-2008, 11:08 PM
 
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I'm sorry about your dd. Everyone's given good advice, but I wanted to mention that a friend of mine had migraines as a kid due to food sensitivities like msg and food coloring.
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