He has a hand deformity which led us to all this
I am not having an easy time with this at all. Every time I look at my beautiful baby now all I see is... is this normal? Is that a sign of something...
This is SO hard.
Our DD might have something called Neurofibromatosis. I know how it feels. It can be very consuming, and i have lived in a state of panic and chaos for the last 2 years. Its even worse when you dont have answers....its the waiting that gets you.
But no matter what, just take it all day by day, hour by hour, or even minute by minute if you have to. And dont get too concerned about what Drs say. Listen to your instincts and enjoy this time, instead of living in a limbo of waiting for Drs opinions. You will waste alot of precious time and energy dong that (which is exactly what i did).
So sorry mama.
Melanie- Mama to my super hero daughter bravely battling brain cancer.
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and expecting 1/13!!!!
♥ blogger astrologer mom to three cool kiddos, and trying to figure out this divorce thing-- Blossom and Glow ♥
I know how you feel (to a degree). I know what its like to be in the doctors office being told something is wrong. My daughter was diagnosed with anencephaly during my pregnancy a few yrs back. the difference between my situation and mine is that this was a condition that was not compatible with life. I would have taken her anyway I could have. My advice is to know that you will have a child you can love and hug and look into their eyes every day. Treasure that. Im sorry to hear about the possible diagnosis but know that at least at the end of the day you have your little one and you will get through it. some are not as fortunate. hugs!!
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