Looking for research: auto-immune diseases and vaccine reactions - Mothering Forums
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#1 of 24 Old 12-06-2008, 08:57 PM - Thread Starter
 
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I've done a lot of vaccine research and ultimately concluded we would vax very, very slowly and eliminate those I don't think are necessary. My ped has been fine with it even though he is pro-vax. Once he told me that if a mother has strong feelings about delaying vaxes, there may be a reason and he's not going to argue it. I've thought about that a lot of over the last few months as I thought about when to start vaxxing my baby.

Two weeks ago my 23-month-old DD was diagnosed with Type 1 Diabetes. She's only finished the Dtap series and while I know some say there is a connection between auto-immune diseases and vaccines, I can't let myself take the blame. She *only* had the three shots and ultimately we'll never know why she developed diabetes.

However, I have heard that when you have an immediate family member with an auto-immune disease (like diabetes) your risk of a vaccine reaction is much higher. I've wondered if maybe my hesitation to vaccinate had more to do with protecting all my kids from vaccine reactions, and not just DD.

I've only run across info about vaccine reactions and auto-immune diseases, but would like good solid research. My gut says to quit vaccinating altogether, but I'd like to find research to back that up. Does anyone have any good information on it? Specifically one's chances of a vaccine reaction when a member of your family has an auto-immune disease.

Thank you!
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#2 of 24 Old 12-06-2008, 09:28 PM
 
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Years ago I cared for a woman with multiple sclerosis. She was interviewed many times by medical researchers from UCLA. The questions they asked her were inane and dumb. This showed to me that research can take a direction that goes nowhere. They asked her questions about her exposure to domesticated animals, as horses and dogs.

This was 1969-1976. I know that multiple sclerosis is an autoimmune disease. I suspect it is from a person's particular exposure to vaccinations and other factors, but I do not have the $ to fund my own particular research and that is not the direction the research has taken. Instead the research goes in other directions running into deadends and goes no where, but the $ keeps coming in.

The Jerry Lewis Telethon helps to fund the Muscular Dystrophy Research which multiple sclerosis is a part of; both are autoimmune diseases.

The companies that make the vaccines have the funds for research. Do you think they will allow their product to become the target as the cause of these diseases through their research?
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#3 of 24 Old 12-06-2008, 09:35 PM - Thread Starter
 
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I get what you're saying. But I really thought there was some statistical evidence out there showing an increase in vaccine reactions when a family member has an auto-immune disease. I swear I've stumbled across stuff like that, or found stuff that alluded to it. I just can't remember where.
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#4 of 24 Old 12-06-2008, 09:38 PM
 
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I do know that diabetes runs in families.

I know that the woman I cared for with MS had a daughter who was carefully tracked for MS. I have lost contact with the family, but I was told there is a familial connection.

I also know that vaccine reactions tend to run in families also. My DH had awful reactions to his vaccinations as a child and as an adult and he refused to allow our children to be vaccinated. I agreed and I am glad.

In my own family, my Aunt had anaphylatic shock after a vaccine. That is why I am not vaxed. I do have nieces and nephews who are vaxed and one has juvenile arthritis, an autoimmune disease and I suspect she is on the Asperger's Spectrum; she cannot get any live vaccinations because of her condition.

Of course, this is not scientific evidence, only anecdotal. But there it is, nevertheless.
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#5 of 24 Old 12-06-2008, 09:47 PM
 
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Originally Posted by ~Bug~ View Post
Two weeks ago my 23-month-old DD was diagnosed with Type 1 Diabetes. She's only finished the Dtap series and while I know some say there is a connection between auto-immune diseases and vaccines...
The book A Shot In The Dark by H. Coulter is all about that vaccine. You may want to borrow it from the library.


I also believe the DTaP vaccine inserts mention a risk of juv. diabetes after the shot.


I actually don't understand what proof you are looking for? Some proof that if there is autoimmune diseases in the family the child is more likely to react to vaccines? Haven't you experience that already?

If my child had juv. diabetes there is no way I would take another chance with vaccines.

I would much rather she got whooping cough which in the worst case last 3 months, than any autoimmune disease.
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#6 of 24 Old 12-06-2008, 10:50 PM
 
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I would follow your gut. Or at least do some "gut searching" and figure out what the root of your concern is.

If I was you and on the fence, then after the DTap discovered diabetes, that would push me off the fence. much love

I'm crunchy... Like a Dorito.
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#7 of 24 Old 12-06-2008, 10:57 PM
 
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Y
The Jerry Lewis Telethon helps to fund the Muscular Dystrophy Research which multiple sclerosis is a part of; both are autoimmune diseases.
Just to clarify- muscular dystrophy and multiple sclerosis have nothing to do with each other. Muscular dystrophy is a genetic disorder- it is either X-linked recessive or autosomal recessive. It is not autoimmune. Multiple sclerosis has an unknown cause- possibly viral, which is why is it much more common in northern lattitudes, or possible autoimmune.
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#8 of 24 Old 12-06-2008, 11:01 PM
 
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My point is that the monies from the research for MD also goes for MS. I know they are not related. That does not keep the researchers from passing the money around.

They probably do have nothing to do with each other, but I know when I talked to those researchers, they got funding from the MD research for MS. The woman I took care of also told me that the monies for MD research benefitted her case of MS.

Of course, they never showed me the books, just told me. They could be lying of course. Not the first time I have been lied to.
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#9 of 24 Old 12-06-2008, 11:05 PM
 
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auto immune diseases can run in families too, no?
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#10 of 24 Old 12-06-2008, 11:40 PM - Thread Starter
 
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Okay. I found and read this. And I'm going to try not to throw up now. However, there are so many things linked to Type I diabetes that it's impossible to say that DD's dtap shots caused hers. It makes me sick to think about though.

Anyway. We're not vaccinating anymore. I swear I had to talk myself into every shot my kids got and I'm not doing that anymore.

It just seemed like somewhere I had read that if you had a family member with an auto-immune disease, your chance of having a severe vaccine reaction was much higher. Come to think of it, maybe I read that about autism.... you were more likely to develop autism if you had a family member with an a/i disease. Anyway....
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#11 of 24 Old 12-07-2008, 01:14 AM
 
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I have MS and I strongly believe that I developed it because of the flu shot. The timeline of events is just too much to ignore. MS can be hereditary, but my ds only has a 2% higher chance of developing MS than the general population with no hereditary predisposition.
I've heard dr. Jay Gordon speak about auto-immune issues and vax's. He mentioned that if a 1st degree blood relative (mom, sister, etc.) have an auto-immune disorder, he would advise his patients not to vax. So, we don't vax ds (plus all the poison in vax's).

Anyway, may be you can find some of Gordon's writings, videos, etc.

Good Luck.
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#12 of 24 Old 12-07-2008, 01:46 AM
 
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http://diabetes.diabetesjournals.org...ull/51/12/3353


Look at the second and third chart. Why is juv. diabetes in kids under 10 going up sky hight since 1960?

What happened in 1960 that influenced their immune system so that it cause this horrible disease?

And look at chart 4. Since 1978 it has gone up even higher. Were more vaccines brought on the market then?

I guess it wouldn't be hard to figure out since there is a chart as to when each vaccine was brought on the market.

I think if we were to put the increase of vaccines side by side with the increase of type 1 diabetes in little kids, we would see a direct connection.
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#13 of 24 Old 12-07-2008, 12:05 PM
 
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Vaccination and Autoimmunity—‘Vaccinosis’: A Dangerous Liaison? from the Journal of Autoimmunity Volume 14, Number 1, February 2000 , pp. 1-10(10)

I was looking for this article, but it costs $50, so for now I am passing. Maybe you will have better luck tracking it down.

Megan, mama to her little boy (Feb2008) and introducing our little girl (Dec 2010)
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#14 of 24 Old 12-07-2008, 01:57 PM
 
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Vaccination and Autoimmunity—‘Vaccinosis’: A Dangerous Liaison? from the Journal of Autoimmunity Volume 14, Number 1, February 2000 , pp. 1-10(10)

I was looking for this article, but it costs $50, so for now I am passing. Maybe you will have better luck tracking it down.
I can email you this article if you pm me your address.
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#15 of 24 Old 12-07-2008, 05:16 PM
 
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Thanks - I PM'ed you

~Bug~ - it's about molecular mimicry. I think they are on to something, but I have no idea if any further studies were done after this one.

Megan, mama to her little boy (Feb2008) and introducing our little girl (Dec 2010)
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#16 of 24 Old 12-08-2008, 01:01 AM
 
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My aunt suffers from MS; she was diagnosed about ten years ago. I remember my mom telling me that my aunt had a terrible reaction after a vaccination as a child-- apparently her whole arm swelled up and changed colors. I've heard there is also a connection to blood types--type B specifically is the most afflicted by MS (my aunt has type B blood). This info comes from the blood type diet by Dr. Peter D'Adamo.
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#17 of 24 Old 12-08-2008, 01:11 AM
 
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I have heard of a link between the measles vax and/or getting measles increase your chance of getting crohns. I have crohns and i have stopped vaxing my dd after her 2 month shots. I wish you the best.

Me(33), Mama to a crazy DD (6), Wife to a wonderful mountain man(32) BF my babe for 2 years.
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#18 of 24 Old 12-08-2008, 03:02 PM
 
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I know this doesn't relate, but I got polycystic ovarian syndrome after a series of progestin shots. I had ultrasounds done both before and after. My ovaries were perfectly fine before the shots. Because of the PCOS, my blood glucose started rising. At worst, it was in the pre-diabetic range. I've since gotten it under control, but this is one of the many reasons I don't trust doctors. They have one job. It's not to make you better. It's to administer drugs. And that means regardless of the outcome. Besides, he would have made more money if I chose to go back to him as opposed to the naturopath I ended up going to. I've since read about a link between PCOS and the progestin shot. It's just too bad I didn't have that information before I got it. I think it's wise to avoid as many drugs as you can. You don't know what's in them. The doctors don't even really know. They're not the ones making them. Half of the time, scientists are taking natural substances and altering them in a lab so they can get a patent and make a huge profit. These people are not your friends. They're simply looking for an easy buck.
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#19 of 24 Old 12-08-2008, 03:14 PM
 
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I know this doesn't relate, but I got polycystic ovarian syndrome after a series of progestin shots.
Were you given a list of side effects before you were given those shots? Doctors have known for over 30 years that PCOS and ovarian cancer are definite side effects of progestin shots and other fertility treatments.

This is my big complaint against all of these fertility treatments. There is little informed consent going on. The population that goes for them are so desperate and often are not properly advised about the very real side effects of the treatments that these poor women undergo, which can effect the kind of parent they will be when they finally do become a parent. Even the process of blowing out the fallopian tubes can introduce bacteria into the tubes to cause the very infection that the test is supposed to look for.

It is a chicken and egg conundrum...I am sorry, I did not mean to go off.
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#20 of 24 Old 12-08-2008, 03:36 PM
 
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He did not. He said the only thing I would notice was no period--which wasn't entirely right either. I had endometriosis which is why I had the ultrasound to begin with. Surgery confirmed it was endo. The progestin shot was supposed to destroy whatever surgery left behind. Instead, it left me suffering many side effects. Some immediate, some developed over time. I was completely opposed to synthetic hormones, but I put my faith in another doctor. This is why I don't trust them as far as I can throw them.
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#21 of 24 Old 12-08-2008, 08:30 PM
 
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Bug, that's a sad story, and I suspect you will spend a long time looking for answers. You have made a decision to stop vaccinating, at this point I wonder if you are interested in trying to become an expert on autoimmune disorders? I think it is intimidating to try to read all the technical research as a layperson, but there is no reason why you can't develop a working understanding of it over time if you keep reading and asking questions. For me, research starts at the top. I might say: "what is an auto-immune disorder?" The simplest answer to that question will leave you with a million other questions, each of which will take you down a path of more detail and more knowledge. If you are up to learning it, you can become the amazing resource that you are currently looking for!
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#22 of 24 Old 12-10-2008, 12:46 AM - Thread Starter
 
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Bug, that's a sad story, and I suspect you will spend a long time looking for answers. You have made a decision to stop vaccinating, at this point I wonder if you are interested in trying to become an expert on autoimmune disorders? I think it is intimidating to try to read all the technical research as a layperson, but there is no reason why you can't develop a working understanding of it over time if you keep reading and asking questions. For me, research starts at the top. I might say: "what is an auto-immune disorder?" The simplest answer to that question will leave you with a million other questions, each of which will take you down a path of more detail and more knowledge. If you are up to learning it, you can become the amazing resource that you are currently looking for!
I'm not sure about becoming an expert, but I would like to know more. On a diabetes forum there was a book suggested that I would like to check out from the library about autoimmune diseases. Once I figure out how to manage my DD's diabetes, I'll do some more research.
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#23 of 24 Old 12-10-2008, 12:59 AM
 
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I just wanted to wish you some support in what must be a very difficult thing to confront. Your DD is lucky to have such a mom willing to change as circumstances arrive. Lots of parents would bury their heads in denial. You are clearly courageous and brave, and one loving mom.

::: Just another WAHM using this forum to put off picking up toys and cleaning my house.
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#24 of 24 Old 12-10-2008, 02:54 AM
 
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I wish you the best as you seek answers. My dh developed an autoimmune disease after being vaccinated for smallpox as a child, (juevenile ruematoid arthritis). We don't vaccinate--although his family never made the connection and his mom lines up for her yearly flu shot, pnemonia shot and any/all other medically available

 Mama to my tribe
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