I'll join in! My DD's records were severely skewed from what I originally thought they would read. We were with the practice until she was 13mos before the harassing by office staff, and blatant brush off behaviors from the pediatrician became too much for me and we sought alternative care with an ND (couldn't be happier btw!!).
So at 2mos she reacted pretty severely to the multiple injections I was basically cornered into giving her (Pentacel, PCV, Hep B, Rotateq oral). She became extremely lethargic, didn't nurse for almost 6 hours following her vaxxes (UNHEARD of for a baby who nursed every 45 mins to 2 hours) and when she woke from what seemed like a comatose sleep she began screaming.....a scream that I will never forget and never want to hear again. It was eery, high pitched, unearthly....just horrible and nothing I did made it stop completely. She would whine, lip quivering while she nursed, and only slept for 20-40 mins at a time and was back up to scream. This went on for over 2 weeks. During that time she also vomited profusely and had major blowouts which lasted a few days. I later read these were side effects of the Rotateq...funny, the same side effects of rotavirus itself. She began to break out in a rash, very random across her body, but a large portion concentrated on her cheeks. I do not have a single picture of her between 2mos and a year where she doesn't have bright red bumpy cheeks - but she was born with perfectly smooth skin. She was a bit disoriented and not quite herself for 2-3 weeks following, but slowly her normal behaviors resumed and other than the rash, the other issues subsided with time.
All of these were reported to her pediatrician and during our visits she seemed to be typing up a storm as she asked about the reactions and even verbally agreed that they were pretty bad and that we could proceed slowly in the future (aka delayed as I had wished to in the first place).
At 4mos she was getting over a cold and we opted to so a "shot visit" at 5mos and at that point it was just the pentacel - I refused the others. Same reactions, same seemingly concerned response from the ped.
All along I expressed concern about what I felt were food intolerance to dairy in my diet while nursing. I was told that it's virtually unheard of for babies to be allergic to dairy, and that when they are they all outgrow it by 3 but there was no reason to change my diet because *she
* did not suspect dairy issues in my child and refused to send her for testing. I cut out dairy on my own at 12 weeks, lo and behold that diaper blowouts were a thing of the past and the fussing after nursing was no longer an issue. When telling this to the ped, she claimed it was just coincidence.
At 6mos DD had a physical reaction to eating oats - bright red ring around her lips. I was so angered by the dismissive nature in the past that I didn't bring it up at her well visit. At 10 mos she ate some apple crisp the night before a long road trip to see family. I noticed she looked a bit puffy at bedtime but we also had grandparents over and she was tired. At 3am when we woke up to embark on out trip and change her diaper, she was covered head to toe in hives, both eyes swollen and red and she was visibly puffy all over. I called the 24 hour on-call number and described in great detail her reaction and her previous reaction to oats. I didn't even ask for her "medical opinion" or "expertise" on allergic reactions or for any diagnosis - I simply wanted to know if there was a dosage for benadryl that would be safe to give an under 2yo based on her current weight. The response? "Oh this is a non-specific viral infection and it will pass in 7 days, and if it continues beyond that make an appointment with your regular doctor".
??? I was appalled that my child was borderline anaphylactic and BECAUSE I mentioned food, a not so common food for allergies at that, they were completely dismissive of me. Perhaps it was the lack of fear in my voice (DH is an EMT, I went through the EMT training as well) or the fact that I sounded like I knew what I was talking about and she didn't like that....but wow. It's a damn good thing we are medically trained and that I am aware of holistic alternatives and happened to have Rescue Remedy on me and was able to bring down the reaction on my own. I told the ped about it when we got back from vacation and she had no comment.
As for her records...Well I said we left the practice at 13mos. They asked whether or not I wanted her paperwork sent to a new practice or sent to me and of course I requested that it be sent to me because I was curious as to what it would say.
1. Her severe vax reactions were briefly mentioned in the context of "normal" crying and redness at injection site and zero mention of the true severity or the conversation I'd had with the ped and her acknowledgement of it being vax related. No where does it actually state "vaccine reaction".
2. Only mention of dairy issues was all in the context of "mom feels baby is reacting to dairy" and "mom eliminated dairy from her diet and feels it is working". NO mention of the actual change in behavior following the dietary change, no mention of the change in bowel movements. Nothing.
3. As for her oat allergy and the phone call I made? NOWHERE. No mention of it at all. It was as if it never even happened.
4. All over her paperwork it is littered with "DELINQUENT" (in all caps!) next to vaccination status. No comments on her reactions or the conversation we had to delay and the peds approval to delay.
I have no idea if it was altered in any way following my request for paperwork or is she was so rude as to leave it all out on purpose in the first place. I do know that my DD's medical records are completely false and NOT in any way a true picture of her health. Thankfully her records with the ND are MUCH more in depth. Seriously, the original ped spent more time typing about my marital status and the fact that we have animals in the house than she did about any pertinent medical info.
I have no problem sharing this because it's completely unacceptable for doctors to write people off this way and completely unfair for people to think that this NEVER happens and that all doctors offices are filled with sunshine and fairies and will have you shitting rainbows. I want people to know that there is a dark side so they can be aware of it and hopefully avoid what we went through.