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Sounds like a reaction to me. I would definitely report it.
NO WAY I would continue vaccinating after a high pitched screaming fit reaction.
If you're truly SO scared of all the diseases- you need to do more research. STOP the vaccines until you have finished your research. There is NO rush.
what am I supposed to do now? No one is going to believe me that his body is doing this thing differently.
And is there a reason the high-pitched screaming is such a red flag? Believe me, it absolutely breaks my heart to hear him scream like that, but on the other moms forum I'm on, it seems like the high-pitched screaming is the "norm" (horrible I know) after shots. Is there something I'm not aware of though (i.e. is it thought that the screaming is more than pain/soreness?).
Has anyone ever heard of the reaction I am describing in terms of his arms when I pick him up?
And I agree with what you are saying that I need to research more, but I will be honest that the more research I do, the more confused I am, the more paranoid I am - about the diseases, and the vaccine dangers. Everything I read seems biased one way or the other. I thought that selective and delayed vaxing was the answer for us, but now I'm not so sure, but the numbers and info about the diseases are still just too frightening for me to skip them all together. I am most concerned about Hib and whooping cough. I am also most concerned (obviously) about diseases that are most likely to be deadly for infants.
It has been established that pertussis and measles-containing vaccines cause encephalitis. For the purposes of VICP guidelines, onset of encephalitits from pertussis-containing vaccines is 24-48 hours and between day five and fifteen for the MMR, M, MR and R vaccines.
From the Vaccine Injury Compensation Program in the late 80's:
The neurologic signs and symptoms of encephalopathy may be temporary with complete recovery or may result in various degrees of permanent impairment.
Signs and symptoms such as high-pitched and unusual screaming, persistent inconsolable crying, and bulging fontanel are compatible with an encephalopathy, but in and of themselves are not conclusive evidence of encephalopathy. Encephalopathy usually can be documented by slow wave activity on an electroencephalogram.
Today it reads:
The following clinical features alone, or in combination, do not demonstrate an acute encephalopathy or a significant change in either mental status or level of consciousness as described above: Sleepiness, irritability (fussiness), high-pitched and unusual screaming, persistent inconsolable crying, and bulging fontanelle. Seizures in themselves are not sufficient to constitute a diagnosis of encephalopathy. In the absence of other evidence of an acute encephalopathy, seizures shall not be viewed as the first symptom or manifestation of the onset of an acute encephalopathy.
FTR, they have put a name to this adverse reaction: Crying Syndrome or Screaming Syndrome.
Now to put things into perspective -- how many parents of the of the signficiant number children who have experienced this type of reaction are told to go to the emergency room in order to do the necessary testing for encephalitis?
In just a ten year period (1991-2001), there were 10,000 reports of unusual crying and screaming syndrome. Just in this period alone. Couple that with the fact that just a tiny amount of vaccine adverse events are even reported . . .
What is bacterial meningitis?
- Bacterial meningitis is most commonly caused by one of three types of bacteria: Haemophilus influenzae type b, Neisseria meningitidis, and Streptococcus pneumoniae bacteria.
- The bacteria are spread by direct close contact with the discharges from the nose or throat of an infected person.
- Bacterial meningitis can be treated with antibiotics.
- Prevention depends on use of vaccines, rapid diagnosis, and prompt treatment of close personal contacts.
Bacterial meningitis is a serious infection of the fluid in the spinal cord and the fluid that surrounds the brain.
We started at 12 weeks with DTaP and Rotavirus (going to stop doing this one though), and a month later (a week ago) we went back for Hib and Prevnar. He had a horrible reaction to one of those two - screaming all day, screaming himself to sleep, arching his back, a weird whiny cry he has never done before in between screaming, etc. We gave him Tylenol once or twice that day and he was close to back to normal the next day (but slept like all day) and is "normal" now, EXCEPT for something that doesn't really make sense to me but that is definitely different.
When I pick him up by under his arms, his arms feel different, it feels like how it felt when he was younger, or like when he is sleeping. Like he isn't "helping" anymore, kwim?
Obviously after his reactions to the Hib and Prevnar I am seriously wondering where we should go from here with continuing to vax or not vax. Not sure what to do.
Hang on everyone...if I'm reading her post correctly, her DS had the screaming after Hib and Prevnar, not DTaP. I don't believe that prolonged high pitched screaming is common after Hib or Prevnar. I'd have to look at the insert again.
This was a study of VAERS reports from 2/2000 - 2/2002:
SOURCE: Wise, R. Journal of the American Medical Association, Oct. 13, 2004; vol 292: pp 1702-1710. News release, JAMA/Archives.
A study conducted by researchers Robert Wise, MD, MPH, of the U.S. Food and Drug Administration, and colleagues analyzed data from the national Vaccine Adverse Event Reporting System (VAERS) during February 2000-February 2002, the first two years since Prevnar was licensed.
Prevnar vaccine protects infants and toddlers (the most vulnerable age group) against infection caused by the bacteria Streptococcus pneumoniae. Prevnar fights potentially lethal pneumococcal infections, such as infection of the brain and its surroundings, infection of the blood stream, and severe pneumonia.
A vaccine against pneumococcal infection is given as part of routine pediatric practice and is typically given to children at ages 2, 4, 6, and 12 to 15 months, with catch-up doses through 9 years of age.
Reviewing more than 4,000 reports of side effects after licensure of the Prevnar vaccine, Wise's team found that most reports were for "minor adverse events" previously seen while the drug was being tested in clinical trials.
"Common adverse events in the first days after vaccination included injection site reactions, fever, irritability, drowsiness, restless sleep, decreased appetite, vomiting, and diarrhea," write the researchers.
Most reports of side effects (74%) occurred in a setting where multiple Prevnar vaccinations where administered at the same time. In the majority of cases (87%) reported symptoms began a week after vaccination.
However, 600 cases were described as "serious events," including 117 deaths and 34 cases of invasive pneumococcal infection indicating possible vaccine failure. The interval between time of death and vaccination with Prevnar varied although the average was 51 days.
Of all the reported cases nearly 38% included at least one neurological symptom, such as altered walking or stance, and seizures were reported in 400 cases.
"Although allergic reactions, prolonged or abnormal crying, fussiness in infants, dyspnea [breathing difficulties], and GI distress are common childhood symptoms apart from immunizations, their occurrence with positive rechallenges after PCV increases the possibility of occasional causal relationship with vaccination and, therefore, warrants continued surveillance for these events," the authors write.
Does it seem strange to anyone else that his arms just feel that way when picking him up - that he hasn't lost arm strength in general, he grabs things just fine, etc.. ? When I describe this to the doctor she may say, well, there's not a problem if he is meeting his developmental milestones.
|...we had a lot of this in 1987, after a vaccine called menomune A. okay, that's not Hib or Prevnar, but it's a "bacterial meningitis" vaccine.
There were two types of weakness noted.
One was [weakness similar to what was described], but it was accompanied by a reluctance to be touched, to have diapers changed. Some paediatric neurologist speculated that it could be mild Guillain barre, which any vaccine can cause. 99% of GBS is abortive, which means it only involved the limbs and stops. 1% goes on to affect and switch off the breathing, which can be scarey, or affects the arms and shoulders long term.
The other type of weakness was hypotonia, but this was more generalised.... Usually about a month later, the mother would notice strabismus, or 'vacant' staring spells, which by another couple of months would develop into petit mal, or other types of seizures. But a mother has to be on the ball to see them, because they usually look quite different to grand mal seizures. There's a whole raft of different types.
you may want to keep notes on it in case you need to follow up on it later with a specialist.