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Now I have to vent. I should have known better than to call, I guess. This always happens...
I talked to the nurse this morning. She said it sounds like normal pregnancy stuff, and that I'm probably dehydrated or changing position too quickly. I have a really difficult time talking to medical professionals, and always end up feeling I didn't get my point across. There's no way on earth I'm not drinking enough water, and the lightheadedness isn't related to movement.... it, in fact, gets worse the longer I lie still.
Then she said "Don't worry unless you have shortness of breath" and I said "Well, I do have shortness of breath when this happens" and she replied "That's normal during pregnancy."
So I gave up, thanked her for the advice, hung up, and cried. (I'm a person who rarely cries, but if I am crying, you can bet it's because i just talked to a doctor or nurse.
Steedalyn, what was your experience before getting diagnosed with POTS?
Nobody at my clinic seems to know that this syndrome exists--even the cardiologists. My cardiologist himself is good to me and did find some problems nobody's bothered to look for before (and scheduled a tilt-table test for after the pregnancy), but several other people have been awful.
One time after I lost vision and collapsed, the practicioner who saw me afterward accused me of making it all up because "You're too young to have this happening to you". She yelled at me until I broke down and cried in the office, then wrote "has anxiety problems" in my chart (which I only found out about because the next nurse I spoke to was horrified at this comment and worried that it would prevent me from being listened to in the future). I'm a shy, quiet person and it's hard for me to go to the doctor in the first place... doubly hard to be treated like I'm a dishonest hypochondriac while I'm there.
It's not even like I'm at the doctor all the time. Before my problems got worse this past year, I hadn't gone to the doctor at all since my post-partum appointment 3 years prior! I hate going to the doctor and certainly wouldn't go there for something trivial or made up.
So now I try to avoid talking to any of them, if I can. I just wanted reassurance on this issue, because I know I'm not getting enough blood to my extremities, as I keep waking up in the night with my hands and feet tingly/asleep. I don't think it's neurotic of me to wonder if this might hurt the baby... or is it?
It comforts me that you all seem to think it was worth calling over, at least.
Thanks for listening...
I don't think so. It happens each time I lie down and doesn't seem to be impacted by what or when I eat. I'm getting my GD screening in a couple weeks though.
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