milk protein allergy i was told different things so i basically he is almost 2 and has serious sensory, feeding, behavioral issues that i am still unsure and need some guidance. - Mothering Forums
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#1 of 9 Old 08-26-2013, 03:11 PM - Thread Starter
 
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Hello i am a mother of 2.  I am in need of some sort of support answers or experiences of people in my situation. My son will be 2 in September. he was born with no problems whatsoever. my delivery was perfect. But that all that changed... he was diagnosed as a failure to thrive baby... and diagnosed with MILK PROTEIN ALLERGY!!! my son wouldn't keep any of his formula down constantly spit up. I took him in they said it was normal. dealt with that again and again. he was put on 5 different formulas. they finally checked his stool which came back positive for blood or bacteria of some sort and also he wasn't growing  at 7 months he only weighed 13 lbs.  ran every test you can think of all came back negative.. he finally got into a GI specialist, he needed a swallow study he was aspirating on his fluids causing him to get sick let alone the other issues of him being allergic to the milk they had him on finally they have him on a neocate jr but doesn't drink or eat like he should. sorry if i sound so scattered but. it breaks my heart not being able to fix it.. and still in aw with why these doctors never caught on sooner.. but  he is in Easter seals gets therapy but i am having problems with getting this Lil boy of mine to eat or drink anything. is there some sort of advice, stories some sort of guidance that will help me get on the right track with a high calorie diet for a my picky stubborn Lil toot that he will enjoy?? i know this all sounds crazy! but if you are confused and have questions or need filled in a bit more on certain area. i will be more than happy to get some feedback... i need help with ways to help him get some kind of non dairy products or ingredients that will be suitable for my son. hope someone can help.....

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#2 of 9 Old 08-26-2013, 03:32 PM
 
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http://www.mothering.com/community/f/307/allergies

 

Hi and welcome to Mothering. Sorry that it took so long to get answers from the doctors. I don't have experience with this particular allergy, but the ladies on the allergies forum were really helpful when I was trying to sort out things with one of my girls. You might trying posting there as well... 

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#3 of 9 Old 08-26-2013, 03:36 PM
 
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http://happyfamilybrands.com/products/coconut-orange/

 

I wonder if he would eat these, which are made with coconut "milk" instead of dairy... 

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#4 of 9 Old 08-27-2013, 11:22 AM
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HI and Welcome to Mothering! 

 

I see you got linked to the Allergy forum up above.  I hope they have some good answers for you, that sounds really hard.


winner.jpg Adina knit.gifmama to B hearts.gif 4/06  and E baby.gif  8/13/12 (on her due date!) homebirth.jpg waterbirth.jpg

 

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#5 of 9 Old 08-31-2013, 06:51 PM
 
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Coconut is a great dairy substitute. Coconut oil can be used in place of butter, just use 80% coconut oil 20% water for baking.
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#6 of 9 Old 08-31-2013, 09:58 PM
 
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I had this problem with my first. We had to do a full allergy panel and she was allergic to way more than milk. I learned to cook feom scratxh and read labels and learned tricks to get more calories in her (loaded smoothies, dipping bread in olive oil. Dousing everything in olive oil). She is six and still skinny. Wears size 5/4 clothing. Every thibg must have an adjustable waist band. We got to a point where I was tired of fighting to get her to eat and shoving formulas and drink mixes down her throat. She was developmentally fine so I left it alone and life became ao much easier. So Delicious products are good. They are made from coconuts. Smart balance margerine doesnt have milk or casein in it.
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#7 of 9 Old 09-01-2013, 01:35 PM
 
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So sorry you had such a horrible experience! Doctors tend to dismiss symptoms of allergies in infants because they think most parents exaggerate their children's symptoms. That's why many kids go through a lot of unnecessary trauma before they're finally diagnosed. 

 

My little girl was diagnosed with milk protein allergy when she was two months old and we have been on an elimination diet since the (I breastfeed so everything I eat affects her too). It seems daunting at first but it's really not that bad. The only thing is, you need to start making all your food from scratch. You wouldn't imagine how many food products have milk proteins in them! Read every label before you give it to your son and before long, it will become second nature to you and you won't even think about it anymore. My MIL got me a great cookbook on allergy-friendly cooking by Pippa Kendrick that I would recommend

 

Also, most kids outgrow milk allergy so I'm sure it will get better soon!

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#8 of 9 Old 09-01-2013, 02:14 PM
 
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In no particular order...

Donated human milk
Goat milk
Raw grass fed cow milk
Bone broth
Probiotics
Lacto-fermented fruits and vegetables
Eliminate all grains
Research gut healing diets like GAPS

Bring back the old MDC
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#9 of 9 Old 09-02-2013, 12:51 PM
 
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Quote:
Originally Posted by blessedwithboys View Post

In no particular order...

Donated human milk
Goat milk
Raw grass fed cow milk
Bone broth
Probiotics
Lacto-fermented fruits and vegetables
Eliminate all grains
Research gut healing diets like GAPS

Sorry, do you mean those are the things you recommend for milk protein allergy? Surely you don't mean cow's or goat's milk? Human milk is not recommended either unless the woman is on an elimination diet. I've just published an article on this: http://www.rootsbaby.co.uk/2013/09/how-to-tell-if-your-child-has-allergies.html. I hope this helps!

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