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Ocular albinism

622 views 0 replies 1 participant last post by  Katie2016 
#1 ·
Hi everybody, very new to this and not sure what I'm hoping to get out of joining this at the moment, as I received the news my 13 week old daughter has more than likely got ocular albinism, of course my husband is a God send for support but as a mum I feel very scared/worried/upset! And wondering if there's anybody else out there who is going through/been through this. As she is 13 weeks consultants have advised us she's still very young so they can't tell us the severity of the condition, which makes it even harder to deal with! I've read it's more rare on girls as it's usually found in boys, is this true? I don't really like to google because of course it gives the worst case. My daughter's next appointment isn't for 4 months.. here's to the next long 4 months 😑
 
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