Pelvic Organ Prolapse, Support Thread - Page 37 - Mothering Forums

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#1081 of 1505 Old 02-28-2010, 03:44 PM
 
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Originally Posted by selkat View Post
Nope. You have company in this. Actually, my urethra bulges out of the urethral opening too, and everything typically feels irritated and sort of rubbed wrong. Not super pleasant, hey?

In other news, I was going through some of my old midwifery magazines and recycling them, and I stumbled across a Birth Gazette from 1994. Super surprising to me: Aviva Jill Romm has dealt with uterine prolapse! Maybe you guys already knew this, but it was fun to stumble across someone I've actually read before and to find that she had personal experience with pop. It's not a super long article, but she outlines a few pt exercises, some herbal aids, sepia and chinese medicine, and more than once says, "prolapse is not a medical emergency". She does talk about surgical options, but also stresses that there will always be a surgical option, so take your time and try a few things before jumping to it. Anyway, Summer 1994, Vol. 10, No. 3, pp 19-21. I have no idea if you can find it online, and I don't have a scanner, but I'm not opposed to dropping a copy or two in the mail if someone has a burning desire to read it.

My own pop is still the same, despite everything I have tried and continue to try to heal it a bit. It is definitely worse than it was 6 months ago, and was worse then than it was immediately post partum. It is what it is though, I guess. I did send my midwife a big long email with a few links to articles and possible treatments for pop, along with a few of my (gently worded, I hope) thoughts on my experience with her as I developed my first prolapse. I really feel she sort of left me hanging and completely dismissed any emotional aspects as well as did absolutely nothing to provide me with additional information or support. She also freaked out when I called her and said, "I was just running the dogs and all of a sudden felt a huge bulge. I think I have a cystocele." Not exactly how I would have liked to have been treated. She's on vacation until May (!!!!!!), but I hope she does respond when she gets back to work. We'll see, I guess. It felt good to write that out for her though, even if it doesn't help ayone else.

It's nice to hear about everyone doing better, although I do admit that it is discouraging on a personal level, to hear that everyone seems to be experiencing a reduction in symptoms, while I continue to feel my bladder and rectum inch out of my body. I wish I was among you!
I'm sorry things are getting worse. I also get that weird urethra feeling. I think that might be a symptom of atrophic vaginitis. As hard as it might be, you may need to try to retrain your brain to stop sending you discomfort signals. For a while whenever I felt funky down there (granted I have a different pop than everyone here) I would snap a rubberband on my wrist. That helped me to stop focusing on the symptoms. If you're in pain that might be different, but if your sympotoms are just annoying you can probably learn to ignore them. Ugh! I wish I had something better to suggest. Keep in mind that everyone has different healing times, and everyone has different sensitivity levels. I mean, pretty much every parous woman has a prolapse, but so few ever even notice.
Have you been to a urogyn?

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#1082 of 1505 Old 02-28-2010, 10:41 PM
 
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Eclipse- It must be a jolt to have your body totally recover from childbirth and then suddenly crap out this way. I was two months pp and already felt enough over childbirth that the prolapse really stunned me, so I do have just the very vaguest fraction of an inkling about how it must feel to be over the hump and then get bitten in the ass by this. I also get it about picking up the kids. Prolapse seems so against nature that way.,
Do you think your Mirena could be aggravating things? I have read some posts on other forums about the uterus drooping with an iud, just two, I think, but I thought I'd mention them to you. I'll even try to link them if I can find them. It will have to be when the kids are busy.
Selkat and Eclipse- I have read one study about menopausal women recovering from prolapse and another about younger women losing the symptoms over spans of two to five years. It will be another project to dig up those links, but I'll get to it. I think both studies showed most of the improvement in prolapses of grades one and two. Anyway, I will post it for you, because I just think this stuff is such a mystery, and I hate to see anyone feeling like they lost to it, because it seems like there is always a chance things will turn around.
Anyway, I hope today has been easier on both of you.
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#1083 of 1505 Old 02-28-2010, 10:53 PM
 
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Thanks for the personal replies, mamas. (I almost always kill threads. It's a gift, what can I say.)

I do have a pessary. And a grade 3 prolapse. The research is pretty bleak for people like me (young, no risk factors, more severe prolapse), but it's lovely to hear that you've read about improvements in menopause! There may be hope yet. Usually, I'm mostly ok with the situation. It is what it is, you know? But, sometimes, it really sucks. However, that sentiment is not unique to my situation, I know!

Eclipse - have you been able to get in on a cancellation or anything? POP is a pretty emotionally devastating thing, especially at first. I hope you get in soon, because that at least helps you feel like you're "doing" something.

For greater things are yet to come...

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#1084 of 1505 Old 03-01-2010, 07:48 PM
 
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Selkat and Eclipse- I have read one study about menopausal women recovering from prolapse and another about younger women losing the symptoms over spans of two to five years. It will be another project to dig up those links, but I'll get to it. I think both studies showed most of the improvement in prolapses of grades one and two. Anyway, I will post it for you, because I just think this stuff is such a mystery, and I hate to see anyone feeling like they lost to it, because it seems like there is always a chance things will turn around.
Anyway, I hope today has been easier on both of you.
Those studies sound very interesting. The research on prolapse doesn't seem to be very encompassing (not quite the right word, but so many studies just seem to address surgery/kegels), so it's always good to hear about people that have approached it from a different perspective.

I find the personal experiences and words from the mamas here so much more encouraging than the ww forum. There seems to be more hope here!

Selkat, I don't have your degree of pop, but I have an tiny idea of how you feel...
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#1085 of 1505 Old 03-02-2010, 01:05 AM
 
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Here's the one with the menopausal women. 'pretty sure there is a more detailed version of it. I looked and looked for the one about the younger women, 'must look later.
http://www.sciencedirect.com/science...8074a5c0ba274f
I may have posted a link to it way earlier on this thread.
Can anyone make this thread a subforum? I have questions hit me throughout the day that would just be distracting on a thread this long.
For instance, does anyone with a rectocele really notice it most in a sitting position, like when wiping on the toilet?
and does anyone remember what their insides felt like before the prolapse?
I don't believe I was ever concave inside, although I sort of feel that way when I bend over.
Is anyone else's rugae a little saggy, too?
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#1086 of 1505 Old 03-04-2010, 11:38 PM
 
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I posted this in Health and HEaling, but thought maybe you guys would have some input...

Does my Baby Have POP?!

--------------------------------------------------------------------------------

Pelvic Organ Prolapse, that is.
I have fairly severe prolapses, so, obviously, I'm a little more attuned to this stuff than a "normal" person. I hope I'm just hyper-sensitive, and this is all nothing.
Pretty much as soon as dd was big enough for her labia to seperate completely, I've noticed her cervix hanging out right at the introitus. At first, I thought maybe it was normal at first, like, maybe everything is so packed in to that tiny little abdomen that there just isn't room for her uterus to be as high as it should. I thought maybe, with time, it would ascend. Not so much. She's coming up on 15 months now, and her cervix is still hanging out, right at the introitus. It doesn't protrude past, but it's *right* there. I've only done a bit of research, but what I've read of pediatric gynecological exams indicate that the cervix is typically difficult to visualize. DD's is definitely NOT difficult to visualize.
We don't have a gp, and I don't want to subject her to an exam by a random doctor at a walk in clinic (who, guaranteed, doesn't have much experience with pediatric gynecology!) if it's all just a variation on normal. Man, I wish doctors took phone calls! Any thoughts on this? Do you mamas notice your daughter's cervix?




Hawkwind - I remember what my vaginal vault felt like before pop, only because I thought maybe there was something wrong, but no one would take me seriously. I think, in retrospect, that I had a minor cystocele. Anyway, if I lay on my back, the vault was in the shape of a "u", like, someone cut a paper towel tube in half lengthwise. We are so unaware, hey, as a general population of women? It's crazy how no one tells you, "Hey, you should check out your genitalia" when you're a teenager. I mean, it's a simple thing, to look in a mirror and/or feel what things are up to in that region of your body, but we just don't do it. Partially because I don't think it even occurs to half of us, and partly because it's so societally taboo to touch "down there". It's good and normal to know what your knee looks like, or that mole on the back of your neck, but somehow, it's weird or taboo to be aware of your genitals, especially as a young person? Bah!

For greater things are yet to come...

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#1087 of 1505 Old 03-05-2010, 12:49 AM
 
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Hi Selkat, do you have a community health nurse phone line, or any other phone resources? Or a nearby children's hospital? If you do, I would try calling them and ask if they are aware of this, or if they can give you the number of someone else to call and ask (you may have to explain that you do not want your daughter to be examined by a random doc, as I'm sure that's the first thing they'll tell you.)
On the subject of self-exams, the sexual health clinic that I work at does train us to teach (verbally) clients how to do a vulval self-exam. It's something I had never been taught, but I will certainly teach my daughter, and any other females within listening range.
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#1088 of 1505 Old 03-06-2010, 01:40 PM
 
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I'm 8 weeks pp from my second child, a wonderful healthy little boy. About 3 weeks after the birth, I started feeling like something was falling out of me. At first, I thought that it was just "normal" pregnancy recovery, but I recently saw a doc and I have prolapse -- bladder (stage 2), rectum (stage 2), and uterus (stage 1). I've been crying every day since, and finding this thread has been so helpful. I felt so alone! And I'm so ANGRY, since I think I did this to myself by launching back into regular activities (like lifting my 2 year old, doing stairs) way too soon and not doing enough Kegels. I ruined my body, and now I have to live with it.

I'm going to see a PT soon, but I was hoping to get some advice from real moms who deal with this... I'm a runner, and I was so looking forward to running again after being off of exercise during most of my pregnancy. The doc made it sound like I should never run again, b/c it would aggravate the prolapse. Is that true? Doesn't sound like the kind of life I was planning. Also, does anyone have experience with a pessary? Is it as horrible as those dry, medical websites make them sound? Can you feel it when it's inside, and when you wear one, can you do all the things you used to?

Finally, and this may seem silly, but -- is sex okay? I hear that there's still a chance that this might get better, and I don't want to do anything that might worsen those odds in any way. I certainly don't feel sexy now -- just kind of damaged and broken -- but I'd like to know if it might hurt things.

Thank you all for sharing -- reading this thread has made me feel a bit less alone.
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#1089 of 1505 Old 03-06-2010, 05:18 PM
 
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So sorry you're joining us, CountingBunnies. Discovering you have pop is pretty devastating, hey? It will get better though, I promise. I make no promises about your pop, but your emotional state, that will definitely get better. Hang in there.
I wear a pessary. It helps, and you don't really feel it. I can hike long distances and lift things when I wear it, and don't feel like my entire abdominal cavity is going to empty out on to the floor. It's a little tricky to get the right fit though, so don't be afraid to ask for multiple appointments with space in between to try out a few different options.
Sex is not going to make it worse. Many resources actually cite sex as beneficial for prolapse. I still have emotional hang ups with sex (still a little insecure about the look and feel of the prolapse for my partner, even though he says everything feels good and that he is unbothered by the changes in appearance), but physically, everything works and is still good.
I cannot imagine running, but there are women on here who do! Exercise is so tough to fit in with young children, and running seems so ideal - shoes on and out the door, instead of packing up all sorts of stuff and going to a secondary location. You may be able to figure it out - maybe a pessary will be enough for you. I really like swimming, but don't get to the pool as often as I would like!
You're not alone, and you're so early in your pp journey, don't despair! There are lots of possible treatments mentioned in the pages of this monster thread. PT seems to be universally recognized as a very beneficial treatment, so good on you for going that route.

For greater things are yet to come...

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#1090 of 1505 Old 03-06-2010, 05:58 PM
 
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eclipse- (and a TMI warning...) When I have a persistent or more exaggerated than normal (for me) bulge, I find that I can use my fingers to gently press them back out, from the inside of my vagina. And I have also found that if I assume I need to splint to have a BM and I do it consistently, ie every time, Things stay put much better.

I have figured out that there is actually what seems to be an opening in the solid muscle between my vagina and my rectum through which my rectum bulges, and if I kinda tuck things back in and then so a good strong kegel squeeze, it'll stay put until I have to have a bm again.



anyway, HTH.
heidirk
I've tried pushing things back into place, but I find it painful to put my fingers in my vagina. I seem to run into something very tender (cervix maybe? I don't feel an IUD string, there, but it sort of has that pokey feel of something hitting my cervix. i don't know if my ueterus is prolapsed or not). Splinting is actually very painful for me, too - the only thing I seem to be able to do is keep everything coming out very soft (dang, this thread is the Queen TMI thread, isn't it? )

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Do you think your Mirena could be aggravating things? I have read some posts on other forums about the uterus drooping with an iud, just two, I think, but I thought I'd mention them to you. I'll even try to link them if I can find them. It will have to be when the kids are busy.
I've wondered that, but I've had a hard time finding anything about IUDs and prolapses. I sort of think that if there was a strong connection, there's be tons of people talking about it on the net, since people seem to blame everything bad that happens after they get a Mirena on the Mirena . One thing I'm going to do when I see the specialist is ask if he can check the placement of the Mirena. I haven't been able to feel the string since not long after the prolapse happened (but the gyn who checked the prolapse initially trimmed them at that apointment, because they were irritating me).

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Eclipse - have you been able to get in on a cancellation or anything? POP is a pretty emotionally devastating thing, especially at first. I hope you get in soon, because that at least helps you feel like you're "doing" something.
Unfortunately, I haven't been able to get in. My situation is complicated because I need a few hours notice. I live in Mexico and my doctors are in San Diego, so I need time to cross the border, in addition to the time to line up child care. My appointment is on (I think!) the 16th (maybe 15th - I need to check), so it's coming up soon.

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Originally Posted by selkat View Post

Pelvic Organ Prolapse, that is.
I have fairly severe prolapses, so, obviously, I'm a little more attuned to this stuff than a "normal" person. I hope I'm just hyper-sensitive, and this is all nothing.
Pretty much as soon as dd was big enough for her labia to seperate completely, I've noticed her cervix hanging out right at the introitus. At first, I thought maybe it was normal at first, like, maybe everything is so packed in to that tiny little abdomen that there just isn't room for her uterus to be as high as it should. I thought maybe, with time, it would ascend. Not so much. She's coming up on 15 months now, and her cervix is still hanging out, right at the introitus. It doesn't protrude past, but it's *right* there. I've only done a bit of research, but what I've read of pediatric gynecological exams indicate that the cervix is typically difficult to visualize. DD's is definitely NOT difficult to visualize.
We don't have a gp, and I don't want to subject her to an exam by a random doctor at a walk in clinic (who, guaranteed, doesn't have much experience with pediatric gynecology!) if it's all just a variation on normal. Man, I wish doctors took phone calls! Any thoughts on this? Do you mamas notice your daughter's cervix?



Have you found out any more about this? I can't say I've ever heard of it being in the rainge of normal for a baby/toddler to have a cervix that low. I would think it could be dangerous in terms of exposing her to potential infections. Personally, I would get it checked out, and I almost never take my kids to the doctor. Maybe you can get recommendations for someone who specializes in pediatric gynecology?

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Finally, and this may seem silly, but -- is sex okay? I hear that there's still a chance that this might get better, and I don't want to do anything that might worsen those odds in any way. I certainly don't feel sexy now -- just kind of damaged and broken -- but I'd like to know if it might hurt things.

Thank you all for sharing -- reading this thread has made me feel a bit less alone.
I'm sorry you're dealing with this, too. Like Selkat said, sex actually seems to make things a little better for me. I guess his penis sort of pushes everything back where it belongs, temporarily. I will admit, though, that sometimes intercourse starts out painful for me, and I need him to go very slowly to start with. And, of course, when I actually had something bulging from me, I really didn't want sex at all, and it sort of felt like I didn't even have a vaginal opening at all . I am a little bit self conscious of the state of my vagina while making love, but like selkat's partner, mine says it doesn't bother him at all - and if anything, it feels a little bit better (um, I'm guessing because everything caving in makes for a snugger fit. or something.). And I'll add, attempting to stay within the User Agreement, that there are certain less traditional activities that we formerly enjoyed that we have chosen not to attempt, for fear of making things worse.

selkat

About the pessary - is it something you have to wear all the time, or remove to clean or anything. Is it something you can leave in during sex, or is it too big for that? I haven't found anything that actually addresses what life is like with a pessary in detail - just that it's this medical device you put in your vagina to keep everything in place.

Also, has anyone had the surgery for it? Or are considering it? Or completely rejected the idea? It took me so long to get into the specialist, that I want to make sure it was worth the wait and ask as many questions as I can of him.
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#1091 of 1505 Old 03-06-2010, 06:42 PM
 
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I remember reading about someone on here who wears her pessary all the time, even during sex, but I have no idea how that would work! It fills your vagina. No room for anything else in there! There are seriously a good 25 different kinds, for different kinds of prolapses and bodies, and about a million sizes. I wear mine most days, but not always, and not all the time. I find it sort of irritates the tissue of the labia minora some days. I take it out at the end of the day, rinse it off and put it away. I just wash it with some gentle soap before I insert it again, wet, the next day. The gynecologist had me using gobs of lube when I was trying them out at his office, but I'm not very comfortable with what's in most lube and find water works just as well.
I'm not on my computer (we're away from home), but I'll post the links to a few studies I found about the surgical option. I think you should totally ask about it when you get to your appointment, just to hear what he has to say about it. The studies I find seem to indicate that the success rate is between 40% and 60%, and lower for young women with more severe prolapse. Not very encouraging. I'm holding out for some new technique in the next few years. Really, you're so early on in your journey, and I think you need to give both time and PT a chance to work before you think seriously about surgery. But, information gathering about it is always good.
Good luck.

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#1092 of 1505 Old 03-06-2010, 06:52 PM
 
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counting bunnies:
It's so scary to find you have pop. I was terrified and obsessed about it all day those first few weeks.
I had a 2-3 cystocele (now at 6 months pp, it's usually a 1) and feel I have a rectocele too. The PT couldn't feel it lying down but when I have to poop and am a bit constipated I can feel it bulging into my vagina and have to splint.

My pop has definitely improved, and you have plenty of time to keep healing, you had your baby so recently!
I did got to PT, and think it may have helped some, but I think that time helped most of all.
As for running, I can't run to save my life , but have had to even take walking really easy. My PT said pop can be something that you deal with forever (in terms of having to take it easy, or watch what type of exercises you do) or it just goes away. You never know.

Anyway, don't blame yourself. I felt so great after my DS was born- with DD I had a looong recovery, and very well may have had some POP but never noticed with all the pain from tearing. This time I was at the county fair when he was 6 days old (I love the county fair!).
Of course I blame myself some, but have been told that it's unlikely to be caused by that, although possibly exacerbated by it.

Anyway, others on this thread are much more knowledgeable than me on the specifics, but I just like to come by and give moral support. It's a tough diagnosis- physically and psychologically.

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#1093 of 1505 Old 03-06-2010, 11:27 PM
 
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Yeah, I'd definitely rather avoid surgery on my girl parts, but if it comes (eventually) down to surgery or living with it, I'd be willing to try surgery. I really can't imagine wearing a pessary everyday - I've never even been able to handle tampons. I'm a sexual assualt survivor, and I think that has something to do with it - it's psychological, not physical. I get panic attacks from tampons. I imagine POP freaks any woman out, but I think I'm having a particularly hard time with it due to my history. Physical pain and discomfort in my pelvic area is tough to handle mentally.

There's something else I've been meaning to ask here - is POP at all associated with back pain, particularly sciatica? I've been experiencing a lot of lower back pain since the prolapses occured, with an increase around the time of the rectocele. Now I'm having a lot of sciatic pain, shooting down my leg everytime I stand up. I don't want to blame everything on POP, but I'm wondering if my pelvic organs being out of whack has changed my center of gravity or something and is affecting my posture or the way my muscles have to work.
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#1094 of 1505 Old 03-08-2010, 11:55 AM
 
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CountingBunnies- Welcome! I'm glad you found us, though wish you didn't need us. This thread is a great place, with lots of ideas, so keep reading! And sex? It shouldn't worsen anything. Experiment a bit with positioning, but a lot of women find that prolapse doesn't "get in the way" and partners generally don't notice anything either. I had worried about conceiving with prolpase, but ds was actually our quickest conception.

I've been sick off and on for four weeks now and the cough has been making my POP worse. Also I think hormones are starting to move again (I'm 6mo pp and this is about how long my cycles stay away). I had a "women's cycle calendar" when I was first figuring out my POP... I may need another one soon.

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#1095 of 1505 Old 03-08-2010, 05:45 PM
 
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I think I've read all or most of this 55 page thread (PHEW!!) and am not sure what's going with me. I'm almost 36 weeks pregnant with my second child. First birth (no drugs) was hard for me as I tore a lot and ended up with anal fissures too. Anyway, I noticed a few weeks ago, while on the toilet, that there was a bulge sort of on my perineum toward the vagina. I had my midwife check it out (I'm kicking myself for not being examined upright as suggested here, but she had me bear down) and she said everything was fine and this wouldn't interfere with the birth or pushing. I felt relieved, but the pain has gotten worse. I didn't see anything mentioned on here about how any of the prolapses actual FEEL.

It feels like I got kicked in the crotch or that I fell on a man's bike bar . It hurts more after I have rested, like when I get up in the middle of the night to go the bathroom. It just aches so much all the time.

I think I may have had something like this after DS's birth because it felt like everything was inside out, but I thought it was just because of the severe tearing. I avoided looking or dealing with it too much at that time.

Does this sound like any particular type of prolapse to any of you? Are kegels the best/only way to 'fix' this situation?
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#1096 of 1505 Old 03-08-2010, 09:26 PM
 
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I think I've read all or most of this 55 page thread (PHEW!!) and am not sure what's going with me. I'm almost 36 weeks pregnant with my second child. First birth (no drugs) was hard for me as I tore a lot and ended up with anal fissures too. Anyway, I noticed a few weeks ago, while on the toilet, that there was a bulge sort of on my perineum toward the vagina. I had my midwife check it out (I'm kicking myself for not being examined upright as suggested here, but she had me bear down) and she said everything was fine and this wouldn't interfere with the birth or pushing. I felt relieved, but the pain has gotten worse. I didn't see anything mentioned on here about how any of the prolapses actual FEEL.

It feels like I got kicked in the crotch or that I fell on a man's bike bar . It hurts more after I have rested, like when I get up in the middle of the night to go the bathroom. It just aches so much all the time.

I think I may have had something like this after DS's birth because it felt like everything was inside out, but I thought it was just because of the severe tearing. I avoided looking or dealing with it too much at that time.

Does this sound like any particular type of prolapse to any of you? Are kegels the best/only way to 'fix' this situation?
This *sounds*, to my not entirely educated self, like SPDish stuff more than prolapse stuff in terms of pain. I think there's a variety of sensations with prolapse, but it's mostly a feeling of pressure, bulging or fullness, sometimes with lower back pain. The tissues hurt, sometimes, because they are being rubbed where they were never rubbed pre-prolapse. *I* get some swelling of the vulva when things are worse than normal, but I don't think that's super common. SPD is more along the lines of getting kicked in the crotch, accompanied by constant aching. The pain is worse after exercise, when standing on one leg, when rolling over with legs not glued together... There are tensor bandage like braces/supports that can help a bit with the pain, if the SP joint is the problem.
It is to be noted that prior tearing can be a risk factor for prolapse, that most midwives are not very trained to diagnose/deal with prolapse and that a lot of people find they have concurrant prolapse, SPD, diastasis and tearing. Not that everyone has all of the above, just that people with prolapse seem to be more prone to them (or the vice versa).
Can you ask for a referal (to a gynecologist, or an urogynecologist)? My prolapse developed during pregnancy also (30weeks), and there's really nothing they can do, but it is nice to have a definitive diagnosis.

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#1097 of 1505 Old 03-08-2010, 11:12 PM
 
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SPD is more along the lines of getting kicked in the crotch, accompanied by constant aching. The pain is worse after exercise, when standing on one leg, when rolling over with legs not glued together... There tensor bandage like braces/supports that can help a bit with the pain, if the SP joint is the problem.
selkat, thanks for your reply. What's SPD or the SP joint? Maybe this is more of what I have. I haven't seen anybody else for this problem. I'm going to see my midwife in two days, so I will be asking more questions. I guess I was just so relieved that it wasn't going to be a problem during birth that I didn't go into more detail.
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#1098 of 1505 Old 03-09-2010, 01:35 AM
 
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SPD is symphisis pubis dysfunction - the ligaments connecting the left and right sides of the pubic bone can separate a little during pregnancy causing a lot of pain. Definitely the pain getting up in the night sounds like spd, b/c prolapse usually feels a lot better when you're laying down. I found that my prolapse (rectocele mostly) was very painful when it first appeared - a constant aching pain in the perineum/rectum. I wouldn't describe it as being kicked in the crotch - that was what the spd felt like, but the spd wouldn't cause a bulge on your perineum. Spd often resolves after pregnancy (core exercise really helps), and prolapse also often resolves itself (kegels help), so I wouldn't worry too much (other than making it through your pg and delivery!). If you do have spd, you should avoid certain delivery positions (basically anything where your legs are being pushed far apart, like a traditional lithotomy position) as they can further damage the joint.
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#1099 of 1505 Old 03-09-2010, 01:18 PM
 
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Thank you so much for the information. I think you are right that the pain is due to SPD but not the bulging. I guess I have two things going on at once--and they happened to appear at the same time, so I thought they were related.

I still do think the bulging is some sort of prolapse, but I think I can deal with it because I'm hopeful that it will go away after the birth. But the thing that's on my mind every minute is the pain which seems to be what you described as SPD.

So thank you, thank you, thank you!!!!!
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#1100 of 1505 Old 03-18-2010, 06:09 PM
 
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I gave in and had sling surgery. My problem wasn't a prolapse but urinary incontinence after having twins. I had the problem before my pregnancy but was it was mostly stress induced - coughing, sneezing etc. It got progressively worse over the last few years to the point that I was leaking so much and so frequently that I had to wear several pads a day. I could not have sex. I was so concerned about odor. I couldn't live like this anymore. My doctor said she has about a 90% success rate and that was good enough for me. I thought I would share my experience although I know most would not go this far.

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#1101 of 1505 Old 03-18-2010, 06:19 PM - Thread Starter
 
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I gave in and had sling surgery. My problem wasn't a prolapse but urinary incontinence after having twins. I had the problem before my pregnancy but was it was mostly stress induced - coughing, sneezing etc. It got progressively worse over the last few years to the point that I was leaking so much and so frequently that I had to wear several pads a day. I could not have sex. I was so concerned about odor. I couldn't live like this anymore. My doctor said she has about a 90% success rate and that was good enough for me. I thought I would share my experience although I know most would not go this far.
Lucky Mia, if you don't mind sharing, I would find it really helpful to hear about your experience as I may go that route at some point also. Can you share about how the surgery was performed, your recovery, life after surgery, and anything else you think would be helpful? Thank you so much.

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#1102 of 1505 Old 03-18-2010, 06:58 PM
 
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Lucky Mia, if you don't mind sharing, I would find it really helpful to hear about your experience as I may go that route at some point also. Can you share about how the surgery was performed, your recovery, life after surgery, and anything else you think would be helpful? Thank you so much.
The surgery was performed by a Urogynocologist at Mass General in Boston. She was recommended to me by several other doctors. First I had a urodynamic study done and the results showed that I had a fairly significant problem. Typically, the surgery is performed under general anesthesia but I asked to have it done under sedation instead since I have a bad history with anesthesia. The procedure takes about an hour and it is a day surgery. I have two small incisions in the pubic area and I am just one day out and I feel great. Some pain but managable with Advil. Today is the first day I have not had leaking in several years. I can't lift over 5 pounds for 6 weeks but my kids are 4 years old (and I can hardly lift them anyway). I just felt too young to have this problem running my life. My kids are out of diapers, I don't want to be in them.

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#1103 of 1505 Old 03-18-2010, 07:53 PM
 
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lucky mia, I hope you'll keep us updated through your recovery. My prolapse seems to just be getting worse and worse. I have the opposite problem from you, in that I have difficulty fully emptying my bladder, though I also have some issues with leaking as well.

I saw the urologist yesterday. He wasn't able to examine me because my back is royally messed up right now and I would have been in a lot of pain (and probably undone the slight improvement I've had since starting PT this week). From my description of symptoms, he said it definitely sounded like a rectocele and cystocele at least, and that the rectocele sounds fairly significant. I go back next month (hopefully with a mostly healed back) for a test invovling inserting a camera into my urethra to take a look at the inside of my bladder to see if anything more serious is going on with it. He said he'll give me a full examination then to see what's going on. He also suggested that I try to pee every hour or so, even if it doesn't feel like I have to go. I guess the more urine I have built up, the harder it can be te empty the bladder. Anyhow, we discussed different treatment options, but obviously he couldn't make any recommendations until he gets in there and sees exactly what's going on. He said a pessary could be an option, but that usually the women who preferred them were not sexually active, because some women have a hard time removing and replacing them. Also, a lot of women find them uncomfortable. Again, he said that's a bridge we can cross when he sees more of exactly what I'm dealing with.
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#1104 of 1505 Old 03-18-2010, 08:00 PM
 
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I had a pessary for a while but I didn't like it and it was really hard for me to get it in and out.

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#1105 of 1505 Old 03-18-2010, 08:20 PM - Thread Starter
 
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Lucky mia, so you just needed the bladder sling, not a hysterectomy also? I would need both.

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#1106 of 1505 Old 03-18-2010, 08:33 PM
 
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Lucky mia, so you just needed the bladder sling, not a hysterectomy also? I would need both.
Correct, I didn't need hysterectomy, just the bladder sling.

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#1107 of 1505 Old 03-19-2010, 03:08 AM
 
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Eclipse I'm sorry you're feeling so badly right now. I hope that things turn around for you soon - maybe the PT will be helpful.

I haven't been feeling that great this month - it really sucks to think you're making progress, and then realize that you're not. Oh well. I have an appt to see a physio who specializes in prolapse - but not for two more months! (And she also charges $180cdn/hr. Unbelievable.)
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#1108 of 1505 Old 03-31-2010, 02:21 PM
 
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thank you for this thread. I am feeling like the lack of education out there is extreme- I did a homebirth and a homebirth class and NOT ONCE was this possibility mentioned to us...I just feel a combination of things, but some love loss for my beloved midwife and doula. From a more traditional setting I might expect it, but from my homebirth class?

I didn't have this issue until 5 months pp! I was told it was minor but that I could get PT, which I have not done yet- have people seen a difference? does it make sense to worry about the next birth?

I look forward to making my way slowly through this thread but wanted to introduce myself and do research at the same time. This was my first baby, and I was just so surprised at the whole thing.

thanks all.
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#1109 of 1505 Old 03-31-2010, 03:10 PM
 
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lovetheheights, the urologist I saw a couple of weeks ago told me that, in his experience, the women who do the best and see the most improvement with PT are those with minor prolapses who have recently given birth. I'm not sure what he meant by recently (like if he ment recent in terms of weeks, months, a couple of years?) and I didn't ask because I my last was born 4.5 years ago and my prolapses don't seem to be minor. I do want to give a word of warning, though, the OB (actually, I think she's an OBGYN Nurse Practitioner) who eventually referred me to the urologist tried to tell my my bladder prolapse was "minor" and it clearly isn't. She really didn't want to refer me out and tried to just tell me to do kegals. She also did the exam with me laying down in stirrups, which minimizes the appearance of prolapses because of gravity issues. I'm not saying yours is worse than you think it is, but it might be helpful (if you haven't already) to see a urologist or a urogynecologist.
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#1110 of 1505 Old 03-31-2010, 04:26 PM
 
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thank you so much! Honestly I feel angry all over the place- my midwife just texted me back with "oh, you have VFO- vagina falling out" and completely diminished it. She offered to come and check it out but basically saying there is nothing to be done.

Would the place that does the PT be able to help? Because I have that referral already and it would be great not to have to go to another appt.

I am sorry to hear your issues are more severe. thank you for your help.
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