Join Date: May 2005
Location: #12 Grimmauld Place
Mentioned: 7 Post(s)
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The NT is a new one to me this pregnancy. I chose not to do it because the options once you have the "positive" if you want to know more are amnio or CVS.
Those are two tests I refused with the other three because I felt they carried too much risk and my odds were with everything being absolutely fine.
also, dh and I would not terminate.
And, I worked just long enough in special education to learn that a diagnosis is pretty meaningless until you meet the person. (for example, I've worked with 3 kids of the same age who I know had a diagnosis of "cerebral palsy" One child was severly disabled, very limited ability to move independently, little/no language--some understanding, will likely be dependent on others for life. Another used a wheelchair, could speak but was *very* hard to understand--this was unfortunate, it led to people often underestimating intelligence--this child was intellectually close to average, some LD classes in school, could do some things, but adapted--feed self, use a computer to do schoolwork, etc. Ability to use hands was affected.
The third was entirely 'typical" other than using a walker sometimes and walking differently. (obviously things like running, climbing were affected too) )
So...for me, between the chance of the false positive, and the knowledge that individuals with the same diagnosis vary *greatly* in how it impacts their lives....there was absolutely no point in doing the test.