I need some advice. A friend of mine's little one is 2 months old and tragically has a mitochondrial disease meaning she will not be around much longer. My friend is in a different province from me and as such I cant be physically with her through this time. I am putting together a care package to send to her and I was wondering if any of you can help me with ideas on what would be nice to send to them at this time. I was thinking some personal care items? I have not been through this with a friend before and am a bit lost. I am attempting to get them a photographer through now i lay me down to sleep.
Any advice would be appreciated. I want to show that I am there for them despite not being able to be there physically. My heart is breaking for this family. :(
I would make sure that the diagnosis of mito is considered fatal. I have a friend whose son has mito and he is now 5; make sure you're not jumping the gun.
Sarah-Wife to Kelly, mostly organic crafty SAHMama to my angel, Canaan (11/01/07-03/15/2013) and Ezra (05-12-09).
A care package would still be nice even if the baby lives for a few years. I'm sure the parents are exhausted.
SAHM to 6
This baby isnt expected to live much longer, she has been in NICU since birth (2 months). She also only has one kidney and a few other health issues. I really do wish that she would live for another few years but the family are expecting a much shorter time.
I am going to send a care package in a few weeks regardless of what is going on. Any ideas of what parents could use at this time?
SAHM to 6
i agree with a 100% mom when i was in the nicu with my youngest those type of things help alot maybe you could send them a hair brush too and another thing that was good fresh baked cookies as well tooth paste and tooth brush too
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