Sharing a poem I wrote about grief and anger - Mothering Forums

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#1 of 2 Old 01-15-2014, 09:51 AM - Thread Starter
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I wrote this a few months after my son was diagnosed with a rare genetic disorder where he can't be exposed to UV light. He's still alive, so I don't fit into the grief forum in the same way as others here probably, but there still is a lot of grief. Grief that his life will be shortened because of this disease. Grief for what he won't get to experience. Grief for the way the rest of the family's lives have and will continue to be changed. 



Snippets of anger trickle into my life.
When I drive and see the mothers with the strollers,
The father wearing the baby,
The children walking around in shorts and flip flops.

Snippets of anger trickle into my life
When I go online and see the photos
Of babies at the beach,
and playing at the park.

Snippets of anger trickle into my life
As I ignore the glares while my baby cries from his covered carseat
As I endure the stares as I close the blinds
And wave my magic device around, seeking safety.

Snippets of anger trickle into my life
When I hear about another person's sister's boyfriend's cousin who has a disease not actually similar at all.
When I laugh again at the unoriginal tension breaker "At least he lives in the right city"
When I remove the affect from my voice while explaining the effects of this disease.

Snippets of anger
Snippets of sorrow
Snippets of pain.

Mom to ds 10/12 and dd 2/05 ribbonrainbow.gif

Blogging about living with xeroderma pigmentosum at and about life in general at
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#2 of 2 Old 01-19-2014, 06:22 AM
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Thank for sharing DTmamal. 

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Grief And Loss

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