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#1 of 9 Old 01-01-2012, 03:01 PM - Thread Starter
 
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  My 5 yo daughter has been getting bladder infections once a month for the last two years. She was hospitalized a year ago because they wanted to get the antibiotics into her for a faster recovery because of the pain she was having. Since then we have endured many scary and invasive tests just to try and figure out why she gets them so frequently. They have done many ultrasounds and a VCUG (they cathed her and filled her bladder with dye to see if she had any deformations or bladder reflux). I have the same problem however mine have greatly decreased since the birth of my son three years ago. Throughout my experience with them, I have learned that certain foods and drinks can cause a bladder infection in her and I. (Orange juice, pop, liquids containing HFCS, and large amounts of sugar in a small amount of time.) On the rare occasions that she is not in my presence, she chooses her drinks and food wisely and will more often than not choose water instead of the alternatives.

  Since this has started, we have tried probiotics, cranberry pills, cranberry juice, alkaline water, uva ursi, and D-Mannose, and nothing has worked to fight off the infection. We are an all natural family that does not vaccinate or medicate. (With the exception of the antibiotics for every bladder infection she has had because I have yet to find a natural remedy.) I am praying and begging for any information on the cause, prevention, and NATURAL treatment of bladder infections for my DD. I hate the pain she endures monthly and truly want to help her the way a mother is supposed to, without medication.

I am open to any and all suggestions as they pertain to my wishes to remain a naturally living family.

Many Thanks in Advance!

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#2 of 9 Old 01-01-2012, 03:20 PM
 
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I doubt it's the problem for her, but do you wear high heels? I used to live in them, and I had constant UTIs. Usually I didn't show any symptoms until they turned into severe kidney infections, so I got a lot of hospital time out of it until I started keeping test strips around. I ended up reading about a study somewhere that found a coorelation between wearing high heels and frequent urinary tract infection. The theory was that frequently wearing high heels changed the tilt of the pelvis just enough to make it more difficult to completely empty the bladder. It seemed to fit, especially since I had fewer UTIs when I was pregnant with my DD and during the newborn stage than I'd had in years, because I was sticking to flats. When I went back to heels, the frequency of UTIs got ridiculous again. I went back to exclusively wearing flats and it got better again.

 

I also found triple voiding to be very helpful. I was told about that a little over a year ago, and haven't had a UTI since. Basically after you empty your bladder the first time, you wait 10 seconds, empty it again, wait 10 seconds, and empty it again (no straining, though).

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#3 of 9 Old 01-01-2012, 05:57 PM
 
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Does she take bubble baths?  I've heard that can cause irritation.


Cathy mom to 13 y/o DD, 10 y/o DD, 7 y/o DS

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#4 of 9 Old 01-01-2012, 06:15 PM
 
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I understand that you are a natural family but you are seeing a DR- what are you being told? This is not "normal"- I'm curious as to what the Dr is leaning towards here. Have you seen any specialists? Since you have had the same is this some type of genetic problem? and I find it curious that you had a decrease since your last birth -what do they attribute that too?

 

if they are not finding a "medical" reason given all the tests-what options did they give you? WOW monthly??

 

I assume you know she is doing proper wiping? how often does she bathe? 

 

are these diagnosed each time as a bladder infection? has she had yeast infection too given al the antibiotics?


 

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#5 of 9 Old 01-01-2012, 06:42 PM
 
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Ugh, just lost an entire book of info I was writing for you.--ah, technology....anyways....My dd has reflux and even though she's on a low dose of meds, she still gets infections.......so I feel your pain, and hers......okay, in brief........did the VCUG scans show anything? (make sure you get a copy of the report). And what about the urine dips? Were the dips also cultured........ask for copies of the culture and sensitivity reports...make sure they have been giving her the correct meds...........HMMM, what else.......follow up with a urologist...(they will want copies of the scan and latest labs as well)..........I second the no bath thing........and bleach your bath mat................no colored/scented toilet paper.also, my personal experience with cranberry pills for an adult was opening up a capsule (I think GNC sold a pill that had 505mg of pure cran powder) and mixing it with juice---about 3000mg twice a day.........but I have no idea what you would do for a little one.......OHH, and there are two more tests out there.....we haven't had them done yet...but one is very similar to the VCUG....(I think it's a non voiding cath?) and then a kidney scan that looks for scaring and damage---uses radioactive dye I think.  The other thing...is she constipated alot? Our urologist has dd on daily dose of mirolax? to help with that....something about the stool stuck in tummy adds to the pressure of the bladder? kidney thing---something like that. Feel free to PM me.....we're about to look for a second opionion from another urologist and see what's up......BUT I CAN'T STRESS ENOUGH TO GET COPIES OF THE URINE LABS.... it's so important to find out what kind of bacteria is lurking around.........our dd kept getting ecoli and then it suddenly changed to enterocaucus (spelling), which was resistant to all but one drugs on the culture/sensitivity report....Good Luck, Pm if you want to exchange ideas.

 


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#6 of 9 Old 01-02-2012, 09:08 PM - Thread Starter
 
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Ok, to reply to all...I hope:

I rarely wear heels as I am a stay at home mother/student. DD doesn't wear them either. No prognosis was ever made for my frequent bladder infections (childhood or adult), yet no tests were done either. Here is a little background on my BI history: All dark pop gives me a full on bladder infection in 45 minutes after consumption. OJ has the same effect with a more delayed time. I am able to take baths but without the use of additives like soap and salts. (I add Arm and Hammer Baking Soda which has been beneficial for the prevention of getting one from bathing.) Sexual intercourse without both my husband and I showering first causes a BI every time. My DS was born via emergency C-section (short wrapped cord) so I am not sure if that is the reasoning for the frequency of mine declining. I should also add that a year ago I had a hysterectomy (cervix, left ovary, and uterus) due to endometriosis, a painful cyst, irregular and constant bleeding (3 weeks on, 1 week off), and the inability to have intercourse due to excruciating pain during and after.  

 

Quote:

I understand that you are a natural family but you are seeing a DR- what are you being told? This is not "normal"- I'm curious as to what the Dr is leaning towards here. Have you seen any specialists? Since you have had the same is this some type of genetic problem? and I find it curious that you had a decrease since your last birth -what do they attribute that too?

 

if they are not finding a "medical" reason given all the tests-what options did they give you? WOW monthly??

 

I assume you know she is doing proper wiping? how often does she bathe? 

 

are these diagnosed each time as a bladder infection? has she had yeast infection too given al the antibiotics?

 

 

We switched DD to showers and not using soap when she washes her vaginal area, just a clean, wet wash cloth. She has recently been bathing however, which I need to change back to strictly showers. (No soap other than shampoo when bathing though and it is used at the very end of her bath.) Her doctor sent us to a nephrologist and she really only spoke about the reflux, suggested tests, and options to treat that. (She also suggested at our FIRST visit that if the results were negative, I put my daughter on a palcebo and into the study she was performing....instant dislike!!) We did the tests, VCUG, renal and bladder ultrasound, and a blood panel to check her kidney function. All the tests came back normal. I stopped seeing the specialist, mainly because she was very pushy and against our natural ways, so I now do only the BI appointments with her Ped. He also has not spoke of additional options or causes and treats each individual infection with a urine test, tummy check, and a culture. All the urine tests so far have come back with a 100,000+ WBC and with Ecoli present. Sometimes she has tummy pain but it is not every time. Most symptoms that she has are pungent smelling and cloudy urine, frequent urination (but not just a trinkle), whiny temperment, and a pale complextion. She rarely complains of burning and I notice the smelly urine before she even complains of having a problem. No yeast infections so far, yes to wiping properly, and diagnosed each time.

 

Quote:
........and bleach your bath mat................no colored/scented toilet paper.also, my personal experience with cranberry pills for an adult was opening up a capsule (I think GNC sold a pill that had 505mg of pure cran powder) and mixing it with juice---about 3000mg twice a day.........but I have no idea what you would do for a little one.......OHH, and there are two more tests out there.....we haven't had them done yet...but one is very similar to the VCUG....(I think it's a non voiding cath?) and then a kidney scan that looks for scaring and damage---uses radioactive dye I think.  The other thing...is she constipated alot? Our urologist has dd on daily dose of mirolax? to help with that....something about the stool stuck in tummy adds to the pressure of the bladder? kidney thing---something like that.

 

 

We do not use a bath mat, and no scented/colored TP ever used. The VCUG she had she was cathed during, filled with a dye and saline mix until full and the urge to pee presented. They then took an x-ray of her full bladder and a couple more as she voided the dye mix out. I am not sure if that is different from the one you speak of. DD is not constipated...she actually has some of the largest bowel movements I have ever seen come out of a child so small (36lbs). However, when she does get a bladder infection, she still associates BM's with the pain from her first BI so I will catch her trying to hold her BM and make her go.

 

I forgot to mention that we have also used the recommended dose of Silver suggested for a BI by the company that we get ours from. Once again, this method did not work either.  Since I made this post I have increased her intake of cranberry juice and Uva Ursi. Her urine odor is better and she has not complained about the pain she had been having in her tummy. I am going to keep up with this while I continue my search for better treatment and prevention. Please continue to offer any advice even though she seems to be doing better, there is always next month...and the month after that...and the month after that...oh the trials of our monthly bladder infection :-(

In case I forgot to say it, THANK YOU ALL!! The fact that you took the time to care about my DD and our situation means more than you can imagine!!

    

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#7 of 9 Old 01-02-2012, 09:31 PM
 
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Frequent BI's can be associated with scar tissue.  For your DD that's a bit odd.  My friend had them all them time and she actually ended up having a kidney that was bunk!  Hardly functioned at all.  However this took years for them to figure out. 

 

I hope you guys find something.  If I hear of anything or speak to my friend anytime soon I'll see if she has any ideas.

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#8 of 9 Old 01-03-2012, 10:56 AM
 
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OMG......100,000 of ecoli........that's high.........if you addressed this already,then just ignore......but what about you physically looking at her cultures............to make sure that she is being given the correct meds? Some doctors do not send urine out for cultures...they go only by a positive dip...........we now have to have a note in DD file that all dips, no matter what, get cultured..........maybe if you haven't already, ask PED for a copy of her last three reports and look at the sensititivies.......it will list a medication....R means resistant, S means suseptible and it should work.........The other thing is if she's had 4 infections, they should not be giving her the same medication each and every time....bc it may just stop working...........again, they would need to look at her culture and see what med options are available---amoxicillin one time, omniceph another, sulfa another, macrobid another........and do a follow up.....maybe the 4th or 5th day of being OFF meds, go in and have PED redo dip and culture to make sure it's gone.............As for the specialist, what about a urologist.........(and just know, most doctors are not going to be supportive of anything out of the norm..........). Oh, (sorry about writing a book here............but she could still be constipated...if her poops are big....it is hurting her little butt....so the stool softener will help.........and with my DD she was pooping big and turns out she was all blocked up in her intestines and that was a small % of the issue.)And there are two kidney scans....one is a basic ultrasound....nothing to it, she lays down, they squirt some gel on her tummy and a few scans.......The other kind, is where they hook her up to an IV and inject some radioactive dye.....and this actually checks kidneys for scar tissue and other damage............Ugh, I feel your pain..........I hope some of this is helpful for you. AND....you can get a second opinion too! if the first neph. wasn't working out, find another. 


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#9 of 9 Old 01-05-2012, 09:08 AM
 
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Yours and your daughters symptoms sound like mine. The food/drink "flares" really stand out to me. You mentioned avoiding things that are huge markers for interstitial cystitis. Might be worth talking to a urologist about. Many uro's may try to tell you kids can't get this, which just isn't true. Many people go into remission around the time of pregnancy and breast feeding, which would also correlate with your symptoms lessoning. The good news is that the treatment for IC CAN be very natural... many people can avoid symptoms by doing what you've already discovered: avoid what hurts! PM me if you'd like more information.


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