Any insight, advice, direction, links, resources, etc. would be soooo appreciated. Finding help has been difficult, and we are losing hope.
We enrolled Anna in Kindergarten this past fall, armed with past IEPs and 2-3 inches of 'documentation' of her condition, expectations, hurdles, etc.
Out of a team of 8 district employees, not ONE of them had ever even heard of SID. We started out fighting a losing battle. Her teacher labled her autistic from day one and never expected anything out of her. We pulled her from school last week after our family had begun to fall apart in our efforts to make the school comprehend Anna's condition.
Anna is not anti-social, but other children don't know what to make of her behavior. So they tend to keep their distance, unless I intervene. I want to connect with other parents who are in a similar situation for support/play, etc... but are finding the doors difficult to open. It is almost as if parents are hiding. I suppose I can understand that, though.
I never imagined just having a beautiful little girl could be such a battleground.
I have a 4 year old, and we just moved to Eugene in August of 2009. She had a terrible time adjusting, and after several months and starting OT, we finally found out she has Sensory Processing "issues". I can't really say she has SPD (or SID) because nobody here has officially diagnosed her. We have gone the early intervention route through the state's program, only to be told she is on Autistic spectrum. We are seeing a great Behavioral/Developmental Pediatrician and she has observed her in her classroom and has told us she is not on the spectrum. I would love to connect with you offine somehow to compare notes of the resources you have found in Eugene and to see how your daughter is doing. When I read your posts, I was able to totally relate.
Take care, and I hope you get my post.