Our baby (28 weeks pregnant) has been diagnosed with CCAM (Congenital Cystic Adenomatoid Malformation). Although it doesn't seem to be life-threatening at this point, we would like to start looking for a physician who has experience with the surgery to remove the malformed lung tissue after the baby is born. We are looking for someone who has experience with laparoscopic surgery (I think that is a possibility--don't know enough about it yet). Although we live in Portland, we have family in the Seattle area so either would work.
Just wondering if your baby is still dealing with the CCAM? We got the same diagnosis at our 18 week ultrasound and we are very frightened. I am trying to find as many moms as possible who have gone through this to get a better idea of what we are dealing with. I would love to hear your story and if your LO did, indeed, get the surgery.
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