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  Topic Review (Newest First)
11-11-2013 03:59 PM
HeidiC

There is a wonderful support group on Facebook called IGT and Low Milk Supply Support Group...it has been great for me to have a community of women who are going through the same thing I am and to have the information that they give at my fingertips.

12-04-2008 01:30 AM
HeatherWong Hi All,

This thread helped me back in 2006 when my first child was born and I was bewildered by what was happening. I started a website to share my story and spread the word: http://www.NotEveryoneCanBreastfeed.com

I hope it helps some of you in the same situation.
Heather
05-25-2008 10:34 PM
Mimi's mom Hello!

I know exactly how you feel about bf!
I have IGT and until now that I found this forum I could forgive myself and know, as a fact, that I did enough.

I learned that the most important thing is to LOVE and feed your baby in your own possible way.

I had pd after the first 8 weeks trying to bf my dd. It was so bad that I'm still on therapy... 2 years later. Now that I forgived myself I think I can handle it better.

The only advise that I have for you is to do your best and find what fit your family.

Do your best, use the SNS and do not feel bad about not producing enough milk. ENJOY the baby, hugh him, touch him, kiss him. I know bf can be an obsession (BELIVE ME) but is not the most important part. Babie's need to feel safe and you need to be in your right state of mind to provide it.

Good luck!

I'm also found out that I'm pregnant and knowing that I never be able to produce enough milk for my baby makes me feel sad. I'm planning to use a SNS and see what happens!
Also if someone want to give me some advice what to do to at least have more than 1/2 to 1 oz milk it will be GREAT!

I' so happy to hear there's a little hope for IGT from svmaine!

I just find this site and it is WONDERFUL! Peace of mind and encouraging!
http://www.mobimotherhood.org/MM/article-lms.aspx
05-25-2008 08:59 PM
meenajo Looks like there's not a ton of activity on this board, but I am enjoying reading some of the older stories.

I *think* I might have IGT, though I'm not sure. They don't seem terribly insufficient, but are kind of widly spaced and when you take my large size into account they are disproportionately small. The "obese" pic from the first page looks more like it.

I had so much trouble w/ my daughter and feel like I'm still carrying a lot of baggage around. I had no breast changes during pg, no engorgement when I gave up and when I tried pumping to increase supply, I was lucky if I got enough drops to cover the bottom of the bottle. All this time I've felt like I just didn't try enough to build my supply. I was one of those militant-about-bfeednng-types before dd and I guess it was an important lesson for me to learn.

I was quite depresed about my inability to feed my baby and I have to admit that that's played into our decision to adopt this time around.

So, fast forward 5 years and I'm in the middle of an open adoption. Baby is due in just a few weeks and I'm trying to relactate.

Am I crazy, or what?!

I'm taking tons of herbs/domperidone and even saw some significant breast changes after taking goats rue but after 6 weeks of pumping around the clock, haven't made a drop. I'm trying not to get discouraged and not giving up. I'm planning on using a SNS with donor milk but am starting to wonder if it's worth the trouble to keep this up if I'm not making any milk

I'm feeling pretty caught up in trying to figure out if it really is IGT or if there might be something else? or if relacation is just tougher than expected? I don't want to go through this again
03-14-2008 12:51 AM
svmaine There is hope mom's with IGT, tubular and/or hypoplasia!!! I posted earlier some of my trials and tribulations and do need to correct one thing I said. I did not use Goat's Rhue with DS #1, I took it the last month of pregnancy with DS #3, who was just born in January. I continued with the goat's rhue after the birth along with Domperidone and am now on More Milk Plus and a reduced amount of Dom.

I don't know if the difference is just child #3 or the additional supplements this time, but I actually felt my milk come in about a week after birth, and about a week and a half after his birth during a late night feed I actually heard him gulping! I'm still getting engorged(FYI my boobs don't get any bigger, just uncomfortably hard), especially if he goes more than 2 hours between feedings, and I've actually seen my milk dribble out of his mouth at a few feedings, again! Unfortunately I do still need to supplement during the day and since I haven't started pumping yet I don't know how much I'm producing, but I know he's getting so much more of my milk than my other two DS's and that just warms my heart, again sometimes your body can change for the better, there is hope.
01-16-2008 10:15 PM
JANmom13 I don't know anything specifically about this issue but after my 3rd pregnancy I have found calcium supplements (not the chocolate chewy kind with vitamin D but the round white tablets) make a big difference, as does taking B complex. After my 2nd I used Fenugreek and Blessed Thistle. I just didn't like the smell or gagging down pills so I switched. I also eat oatmeal.

I have more of an energy issue, though- working full time with 3 kids age 6 and under. But maybe this could work for you as well...
01-16-2008 08:52 PM
khanni I believe I have insufficient glandular tissue as well. I tried everything with my last baby, and did not have enough milk. I'm 7 months pregnant now, so have been re-researching, and this is my conclusion.

I'm posting two websites, I think one of which was posted earlier in this thread (it has the pictures). But the other one just made me feel better. I was really made to feel that I had failed, and NOBODY seemed to believe that I couldn't produce enough milk and that I just wasn't trying hard enough (save my LC, midwife, husband, and family). I caught a lot of flack, and I love the last sentence in this, which I'll just quote here:

"Preserving the 'every woman can nurse' myth contributes to perpetuating a simplistic view of lactation and does a disservice to the small percentage of women with primary causes of unsuccessful lactation."

http://pediatrics.aappublications.or...tract/76/5/823
http://www.007b.com/breast_size_breastfeeding.php
01-15-2008 01:39 AM
lyterae I have insufficient glandular tissue and was diagnosed as having hypoplastic breasts. It was heart wrenching to discover that I couldn't make enough milk to feed my daughter. I was taking Reglan, fenugreek, blessed thistle, on top of all the oatmeal, water ,etc... The most I was able to pump on any given day was 2 ounces ( I was pumping after every feeding as well as every two hours if she hadn't woken to eat.)

I couldn't understand how no one had thought to mention that there might be a problem, and I didn't think there could be any way I couldn't make enough milk. At one month my dd hadn't gained any weight, she was 7 oz less than her birth weight... A friend of mine donated breastmilk for a time while I tried to increase my supply. I have pictures of my daughter from that time and I wish I had noticed earlier... She is sickly looking and I didn't see it.

After a very trying 7 weeks of nursing and pumping 24/7 to no avail, I was so exhausted, stressed, and heart broken from the ordeal that I quit nursing and went to formula full-time. I am in the process of preparing now... We are hoping to TTC this summer, with a hopeful HBAC, and I plan on making it to one year with as much of a supply as I can manage.
01-10-2008 11:12 PM
ruhbehka
Quote:
Originally Posted by basset View Post
I don't have tubular breast, but LC noticed that the shape of my breast indicate that I am IGT. I never had any changes in my breast during pg and after I only had an hour or 2 with mild engorgement.
Can you give me more info about this???

I am suspecting this may be my issue, too. Or very mild tubular stuff.

Mine have always been kind of underdeveloped-looking, a bit conical. Similar problems with milk supply, little to no engorgement, no breast changes, etc. Peaked at about 20 oz per day with insane pumping/SNS/domperidone/oatmeal/MMP regimine.
01-10-2008 10:18 PM
bumblebeej The first link isn't working for me. The second one I've never seen before, so ty very much for posting!
01-10-2008 09:21 PM
MaryJaneLouise Is this the site you are looking at with different pics of breasts?

http://www.leron-line.com/IGT.htm

ETA Sorry that link doesn't work I'll look for more.

Here's from Riordan's BFing & Human Lactation:

http://books.google.com/books?id=-Xh...EU&output=html
01-10-2008 06:02 PM
thepeach80 I'll bump a way old thread. lol I guess I'm just curious what links there are other there about this. I've looked at the one site w/ all the breasts and I'm having a hard time seeing differences between the one that has tubular breasts as opposed to some of the 'normal' breasts. Is it just one of those things where if you don't make enough milk despite busting your butt, you probably have tubular breasts? I mean my breasts look like the tubular one, but I never thought anything of them. I'm a B cup normally, never got any bigger while pg or bfing, never got engorged at their birth, and have had to supplement all 3 of my kids, the last one being almost FTT by the time the DR suggested I better try it (she was happy to starve). I have been engorged before, specifically a week after (yes, it took a week) Ilana decided she was done bfing at 9 mos and I was too tired to fight w/ her still about it. Does that mean anything? Thoughts? It doesn't really matter now as this whole bfing thing is one reason we're not thinking about more kids, but I guess inside it would make ME feel better to know there was a reason I couldn't ebf my kids and I feel like knowing would make it so I could help others.
09-27-2007 05:20 PM
basset I am so happy to see this thread. I posted my story a few weeks ago. I would do anything to be able to not have to supplement. I hate buying formula but donor milk is out of reach for us. My average day's worth of production is 7-9 oz. I see it this way.... It is better than none at all. There are millions of germ fighting antibodies in the 1 bottle my LO consumes everyday. I put my LO to my breast and he punches my chest because it is his way of extracting milk from mama. So, we pump. I pump 5x's a day. I used to pump 12+ x's a day to no avail and I got to the point I was losing my sanity! My supply never increased. I took dom, goats rue, special blend... nothing. My LO lost so much weight in the begining. I don't have PCOS. I don't have tubular breast, but LC noticed that the shape of my breast indicate that I am IGT. I never had any changes in my breast during pg and after I only had an hour or 2 with mild engorgement.

I agree with the pp re no info on LLL web-site nor info in the book "womanly art". There needs to be more studies done on this. I just get so mad knowing that had my dr. not been an LC my baby might have been labeled FTT.

Anyways, all of you are awesome!!!!!!!
09-27-2007 04:20 PM
svmaine Greetings, while I'm new to the mothering forums I'm 2 big boys into dealing with self diagnosed hypoplasia. I also went through the devastating heartbreak of not being able to completely feed my children and now I'm 25 weeks into pregnancy #3 with hopes of some new miracle that will help. I tried fenugreek, goat's rhue, teas, with my first ds, and with my second was told about domperidone. I was on that for months and I'm not sure if it was all the herbs and domperidone or that is was my 2nd ds, who was a voracious eater, but I produced twice as much. Before you get too excited that meant I produced 1oz. per boob per pumping: . So soon I'll be placing another order of domperidone and trying one of the new motherlove concoctions that I think I can begin taking before I give birth. I'll also be looking for some donated bmilk since I can't afford the organic formula this time. I'm happy to offer up all the trials and tribulations I've gone and will be going through, if I can help another mom get through this then maybe the guilt will lessen someday. And if there any new brilliant ideas please post!!!
08-16-2007 10:33 AM
mkmb129 Corey, I have a friend who is exclusively pumping, so keeping up a supply is a bit difficult. She stopped pumping when her ped told her she can't mix formula and ebm, and just about lost her supply completely. She started taking domeperidone and now she said she makes enough for 2 or 3 babies at least! She's got a freezer full, only pumps half the time she used to, and gets so much. Good luck, I hope that it helps you!!
08-16-2007 12:58 AM
ILoveMyBabyBird
Quote:
Originally Posted by sarahandlily View Post

anyone tried natural progesterone cream?

I am wondering the same thing, I read an article online that said it worked for one mom.

I am still bfing ds, eventhough have never been able to fully supply his needs.

Around 9 months I realized that he had a lip-tie, which may have been the reason he could never have a great latch, but at that point it was too difficult to fix the problem. Needless to say, he has a gap inbetween his two upper front teeth, so I suppose he will have to get braces some day, or we will have to get it clipped later.

Above all, I know I still have IGT, but I am hoping that the next future lo will not have the lip tie and if he/she does, we will get it clipped from the beginning, and I know that will improve my production, next time I am not hoping for a miracle full supply, but I am certain with more info and experience I will be able to produce more, and deal with the obstacles better than with ds.

BTW-Keep up the good work! We are all troopers in this, but it is worth it.
06-14-2007 11:45 PM
sarahandlily wow! i have searched for months and just happened upon this thread.

anyone tried natural progesterone cream?

goat's rue?

i am pregnant with #3 and wanting to get everything lined up now.

i have the same story as pp. i have tried to get answers the last 5 years about why i can not bf. i have shown everyone my boobs that will look, and i just now discovered what is going on.

thanks for sharing your stories - they really make a difference.

thanks!
sarah
06-09-2007 10:12 AM
Quirky Oh, many to you for doing such a great job!

I don't have IGT, but I did have luck with domperidone in increasing my supply. It is very safe, and in fact is approved by the AAP for use in nursing mothers. Here are Dr. Jack Newman's handouts on it. You may want to try emailing him -- I will try to round up his email address for you, I know he is very approachable and helpful.

http://www.kellymom.com/newman/19a-domperidone1.html

http://www.kellymom.com/newman/19b-domperidone2.html

http://www.kellymom.com/health/meds/...actagogue.html

http://www.kellymom.com/health/meds/...#Galactagogues (domperidone is L1, the safest category for lactation)

Goat's rue is an herb that is thought to be very helpful in increasing glandular tissue -- you can get goat's rue in tincture form at www.motherlove.com (Motherlove Herbals). You would need to try it for at least a month.

Have you seen the link here with more info on hypoplastic breasts?

http://www.007b.com/breast_size_breastfeeding.php

Have you talked to your doctor about trying to determine whether YOU have a metabolic disorder associated with IGT, such as PCOS? If you have PCOS, you can go on metformin (Glucophage), and that may help with your milk supply issues.

Hang in there.
06-09-2007 08:40 AM
luminesce My lactation consultant confirmed that I have IGT. We have estimated that I'm probably making 70-75% of his needs with the effects of fenugreek (which aren't reliable because I build up a tolerance to it and have to stop and start it again for the effect.) My son has been gaining all along but is at the very low end of normal. He has been trending downward on the growth charts. He is at the 5th percentile now at 10 weeks - down from 46th percentile at birth.

This has been the most difficult thing I've ever dealt with. I wanted so much for our breastfeeding relationship to be a beautiful thing - and it is, but it has also been rife with frustration for both of us. I find myself crying a lot - I feel so bad when he gets frustrated and I can't give him what he needs. I also get angry when I think of all the women I know who chose not to breastfeed for convenience!

I think one of the most difficult aspects of dealing with this was the ups and downs I experienced trying to figure out if something was wrong. I was all over the board - thinking he was just a slow gainer to thinking I had a supply issue. I even once thought when he didn't nurse long he was getting more efficient at removing milk when what actually was happening was that the flow stopped. My son has been such a good baby through all this. Many times, he would just eat what I had and then sleep, wake up a little bit later, eat what I had then sleep again. This cycle continued until recently when he started to get more hungry and started to express frustration at slow let-down and small quantity. It truly has taken me 10 weeks to put it all together and to find a LC who could confirm what was happening and help me. I wish that my midwives would have told me what the size and shape of my breasts could mean and what I might be dealing with. I know that MOST women should have no trouble breastfeeding if they manage it right but I know now that I'm one of the ones who physically CAN'T. I've been reassured by several care givers (because my son was gaining, albeit slowly) that my son was doing ok, despite his thin frame, the repeated uric acid in his diapers (which even made us think he might have a metabolic disorder) and his infrequent stooling (longest stretch was 12 days!) All of these things can be normal but all together they should be viewed as suspicious especially when the mother thinks there is a problem and has breasts that are classic IGT. There were several opportunities for early intervention and help but I had to figure it out for myself and trust my gut instinct that he wasn't getting enough and locate a LC who could help me. When I saw her and she looked at the test weighs I had done with feeds she told me that I had beat all records of nursing frequency. There were 27 weighs in a 24 hour period. For 10 weeks I've nursed around the clock to try to build my supply and transfer small amounts of milk to my son. The funny thing is that I never thought this was a problem. I thought babies needed to be nursed this often.

I always wondered why my breasts looked so funny but when I saw the pictures of women with IGT I finally knew what was wrong with them. On top of the IGT, I had a small benign fibrocystic lump removed from my (bigger) right breast and the incision was made right around the areola which is the worst place to have surgery when it comes to severing milk ducts.

I'm going to try Domperidone and keep up the insane nursing schedule - and if that doesn't work, look at trying to get some donated breast milk. I'm worried about taking this drug but I don't like my other alternatives (I refuse to take Reglan. Even though he has been exposed to formulas, I don't want to use them.) I was wondering though - has anyone else with IGT had any luck with Domperidone?
06-18-2006 04:10 AM
ejones I am sceduled for a c-sec on the 31st of July. I am still planning on a vbac. I'll have to wait and see if I go into labor. We are having a girl! I'm sad to say though, that my boobs, again have not enlarged at all during my pregnancy!!! I will just wait and see after I give birth of any changes that do occur. I will still keep you all posted. I don't have high hopes, but at least I know what I'm looking forward to.

Peace out ladies!
05-08-2006 12:07 PM
Corriander Definately bf at night and co-sleep if that works for you. I have known women you have had hardly any supply during the day, but have had their babies latched on and feeding all night. That works if you can get some sleep at the same time.

Some babies who when they are awake and hungry do not have the patience to stay latched on if you take a long time to let down or don't have much supply. But they will stay latched on and nursing while they are sleeping or napping.
05-08-2006 11:28 AM
CathMac Corriander,
I had supply issues as a full time working mom but nothing as severe as this so I would feel presumptuous making a suggestion. I will pose a question to you as a BTDT Mom.

Would you recommend co-sleeping and nursing on demand overnight and during the early hours when prolactin supplies are highest?

Just a thought.

Thanks for the inspiring thread. It makes me realize how lucky I am, despite the issues I have faced.
~Cath
05-06-2006 09:30 AM
Corriander I started this thread so long ago I can't remember! So I'm glad that it is still providing support to those of us who can't find help even from LCs.

About your son not latching on, keep offering! If you can still pump, do that for as long as it works for you also. It's such a gift, that breastmilk. My first child, who only bf for 6 months because of all the difficulties, latched on again when she was 2 years old! It was a little strange. I had just had my second child, I was lactating again. She knew that the baby was breastfeeding and she asked me if she could too.

But when you have had enough and the frustrations are outweighing the benefits and it is negatively impacting your relationship with your child, then give yourself permission to give it up. Considering the uphill battle that women like us face, I figure a month of our bf is equivilent to 3 for those women who find it so effortless! like dog years.

Good luck! You're doing great!
05-05-2006 07:11 PM
newmonny I thought it was just me. My breasts are also shaped like those on that website. I've struggle with breastfeeding using sns since he was 4 days old. Which I didn't mind using except for the fact that I wished he was only getting my milk. I had to return to work full time at 3 months so my son has unfortunately gotten use to the bottle and will not latch any longer. Which has been devastating for me. I still continue to pump at work and hand express at home and I probably get a measly 3 ounces out a day. At one point I was able to get out 2 ounces a feed and I was so excited. This whole experience with not being able to supply enough milk for my son has been devastating, but I still would not trade those precious moments we had together when my son was half asleep and bf. He looked so beautiful there. I'm having a hard time even giving up pumping at work... even though he's not latching on any more. I still try every once in awhile to bf to see if he'll latch... no luck for 7 days. I keep hoping he'll start enjoying bf again and I don't want to give up the little supply I have. Any thoughts or support? My son is now 6 months old by the way and I also used every herb, drug, and constant pumping to build supply with no prevail. I'm sorry to hear other women had to go through what I have, but it's good to hear I'm not the only one.
02-04-2006 01:52 AM
ejones Hi girls! Hope everyone is doing well. I just stopped nursing my 15mo old son and I'm 31/2 months pregnant with our second child! I have noticed that my breast feel a little sensitive and lumpy since I've stopped nursing. They have also slowly increased in size, but not much. They are still so tubular with, of course, NO CLEAVAGE! I am planning to nurse our 2nd as long as I did w/ my 1st or longer. I'll let you girls know if this time I will be able to produce more milk. Cross your fingers. I now know what challenge I have ahead of me when it comes to nursing. I can't wait to tell all those LC that didn't know a thing about my condition. They were sooo clueless, they pissed me off! They just made assumptions that were not true. I can't stand bottles, but I've learned to make peace w/ them. Doing both has worked best for us. So we'll see what happens.

I'll keep you posted.
01-02-2006 06:46 AM
Stormintheattic Aylene, great link, very helpfull, thank you! Type 2 looks just about right for me too.
Just wanted to add that you are doing a great job! IMO you're right, you are giving Jamie every single drop you can. And he's benifiting from every feeding.
12-28-2005 09:16 PM
scubamom Thank you for the link, its very informative. I am also sorry to hear you are having to deal with all of it again
I am 7 months pg right now and dreading going thru this again, as i know i will as still have no breast changes.
what i always found the hardest is just that people dont understand, and it takes way to much explaing why i Bf then pull out a bottle (i didnt like using sns when NIP) I also get peeved when people use low milk supply (when clinically its not) as a reason to quit, as its so not the same as we go thru.
sorry for venting but its startimg to dawn on me that i have this battle to face again.

But i also truly believe that every drop of BM is worth its weight in gold, and i would never give up on the closeness i felt with my son while nursing, milk or no milk.

I am just praying that this little guy has a great strong latch like his brother did.
12-28-2005 03:24 PM
Ayleneb Hi all, I just started researching this issue. I gave birth to my third son last Monday and was hopeful that bfing would be more successful with him than my other two. I was thrilled when he immediately had a good strong latch and dreamed that this time maybe it would work. By day four it was clear that I was doomed to be letdown again as his wet diapers were scarce, still showing urine crystals and my breasts still hadn't changed size even though my milk had "come in".
I read in Huggins Mothers Nursing Companion about hypoplastic breasts (never noticed that entry when I was struggling for four months with my last son - tried *everything*, fenugreek, SNS, twice weekly visits with the IBCLC for the first two months and finally "gave in" and started giving him bottles of formula). They do sound like what might be my case; however the picture posted at the start of this thread is much more extreme than my situation. This link http://www.leron-line.com/IGT.htm however shows several different sets of breasts with differing levels of lacking tissue and the one marked #2 looks almost exactly like me when I'm on the engorged side of things...so I'm starting to believe that I may truly be one of those 2-5% that just can't produce enough breastmilk.
At this point I'm struggling to figure out how much formula I should be supplementing with and still keeping up as much bfing as possible. I feel that every drop of bm is valuable to the babies health but I refuse to allow him to be classified as FTT as my last son was. It's great to find a group of like-minded ladies who value bfing as much as I do and understand what it means to really try but still not be able to bf.
Noone around me understands how heartbreaking this experience is for me - fortunately this time I'm really just trying to focus on making sure that the baby gets what *he* needs and keep reminding myself that this isn't about *me* being a failure as a mother, etc...
I hope that link will help someone else who is trying to dx themselves.
Aylene
Mom to Simon, Matthew and Jamie
05-26-2005 03:24 PM
ejones Michelle that's great that your county has a support group for exclusive bf. I will totally look into it. Do they have a web-site?

That Quote is so true. But I will always wish I had enough milk for my son.

I also want information on that special blend.

Stormintheattic, I'm sorry for your loss. I really do try to look at the positive side of all of this. I have to or else I will fall apart. It has just been a slow process for me. I do give my self some credit for everything I give to my son.
05-26-2005 01:13 PM
HaveWool~Will Felt
Quote:
Originally Posted by Stormintheattic
"Women should not feel guilty if they are unable to breastfeed, but they
*should* feel guilty if they are unwilling to do so, and they should be
intellectually honest enough to know the difference." -Elizabeth Gene

Oh so true.....I LOVE IT!!!!

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