|Topic Review (Newest First)|
|03-02-2006 12:39 AM|
|Panserbjorne||Just wanted to reply quickly and then I'll move to March...cmadb12, it doesn't sound behavioral AT ALL to me. I mean, WTH? He's not acting out to get attention, he's physically uncomfortable. A diet change may help, but he needs some healing. Craniosacral therapy would be great, but you really need to stick to it. I'm so sorry you are going through this. It's really heartbreaking. Please join us in the March thread. The ladies here will have a lot to offer you.|
|03-02-2006 12:34 AM|
Please move over to March thread...
|03-02-2006 12:34 AM|
If this sounds familiar to anyone, I would greatly appreciate ANY information you may have!!! My 4 year old son has been suffering from what two different drs. have only generally described as "constipation" and a "behaviorial" issue related to his constipation. He has been seen by his own ped. and his new allergist - so far. Neither of which I am happy with b/c I feel dismissed every time we have to discuss this recurring problem.
My son has been crossing his legs when he feels the urge to poop for over 2 years (pardon the medical terms - we're all moms here, right?) and holds in - or tries to at least- his poop. He cries, sometimes screams, when he does this. My husband and I have referred to it as the "poopie dance", until something just didn't feel right, after many months have passed. He has been constipated before, of course, as I'm sure many kids have, and he did once tear his rectum and get a strep infection after. this was when he was 18 months+ - a long time ago.
My son has a major peanut allergy along with many severe enviro. allergies, but according to his new allergist, not significant other food allergies. He was tested recently for milk and soy to which he reacted, but not severely according to his dr. He has eczema that come and go and has always battled it, even as an infant. His dr. says that he cannot def. say that he is "allergic" to milk b/c his skin reacts to even the control (water) slightly. But his arms just light up when they test him for everything, pretty much.
Most recently he's been on Florstor Kids (SOOO expensive!), Benefiber powder and his allergist just told me to put him on Lactulose liquid (sp?), even AFTER I told him that my son already has major stomach pain, gas and cramps (all side effects of Lactulose) and after we discussed his possible allergy or sensitivity to milk?!? My son rarely eats a "real" meal, if at all, cries at the table over his food after he tells me he's very hungry, but just can't eat it b/c his belly hurts. My son is thin and underwight, he east NOTHING. I've stopped letting him drink cow's milk (or soy for that matter) myself, but don't know whether to cut out ALL dairy, yogurt...the allergist says we'll discuss it at his next appt....right. Can't wait.
Also I guess something imp. to note - he ALWAYS has some form of poop in his diaper. Yes, I said diaper b/c he CAN go pee on the potty and wants to use the potty, but cannot be w/o a diaper at anytime b/c there is always poop literally hanging out of his bum. There is always poop, whether it's formed, which is the case most of the time, or a loose kind of liquid in his diaper. He runs into another room to cross his legs ALL day, even in public and shouts and cries if you even look at him. He strains so hard.
I cannot tell you how frustrated we are for him. We are afraid that he will still be in a diaper when he enters school and will be picked on-or worse. As I mentioned before, I am only being dismissed by the drs. and I can only look to you all for some informed advice.
By the way, we did try craniosacral therapy once, can't really comment on what that did or didn't do, but that was a while ago. Should I try acupuncture? Diet changes? Doctor changes? Does this sound at all like it's merely behavioral on his part? If you can, please help - I am at my wit's end and sad everyday for him.
Many thanks to you all for your precious time reading this message!!!
|03-02-2006 12:29 AM|
|03-02-2006 12:28 AM|
Yeah, you gotta give up convenience foods! I was just reading on the Yahoo group that it's a common practice to add sugar to tomatoes b/c the acid levels have to be stable to can. It's just not worth the trouble to grind nuts, make your own bread, etc. etc. etc. and waste your time on hidden sugar that will keep you from healing. Reactions do occur from tiny amounts of things, I've seen it, and so have others. And having a reaction means one step back in your healing.
There are hot dogs coming that will be legal, I forget the brand.
What about trying cod liver oil in a syringe? If you shoot it to the side of the cheek towards back of mouth you can bypass the tongue.
I can't speak to kids that are picky eaters, my DS eats pretty much anything.
|03-02-2006 12:21 AM|
What bothers you about fungal enzymes? Karen makes a strong case for them in that they work in both upper and lower stomach as well as intestines too. Not so with animal derived enzymes.
|03-02-2006 12:17 AM|
I lost my first pregnancy too
It's really hard to know what would have been or why.
SCD is the Specific Carbohydrate Diet based on the book written by Elaine Gottschall after she healed her daughter from seizures and Crohn's disease:
See www.breakingtheviciouscycle.info the Beginner's section and Science Behind the Diet link there.
Also www.pecanbread.com is the SCD geared towards kids and ASD kids in particular.
I had yeast issues and this diet showed immediate results, the gas and bloating was gone very quickly. Our story is here: http://www.mothering.com/discussions...d.php?t=260393
For us the eczema responded to initial diet changes and essential fatty acid supplements. Try adding some evening primrose oil too.
Stick around, hang out, read some back threads.
|03-01-2006 11:00 PM|
|Pattyla||mlleoiseau- other than getting yourself used to the different things you will need to do to maintain this diet I think that the benefit you will see from doing it part way will be minimal if that and you may put out a bunch of effort and become discouraged and convinced that the diet itself won't work because doing it mostly didn't seem to make a difference. I spent months cutting back on my gluten intake. It did make it easier when I finally quit gluten because I already was less dependant on it and had some alternatives I was comfortable, but I had also mostly convinced myself that I wasn't gluten intolerant because cutting back seemed to make no difference in how I felt. Well one week after I cut it out completely I had a bad reaction to a trace ammount of gluten that was hidden in something I ate at a resturant. Clearly I had/have a gluten intolerance but nothing short of complete elimination could show that. If what she says in the book is true, you won't regret doing this diet. It isn't a life time comittment but it is a long time comittment. It is helping me be more vigelant knowing that the more careful I am now the sooner I get done (at least that is what I am telling myself). I have also promised myself a donut from the 100 year old donut shop near our house once I fully graduate from this diet. If I don't do the diet I'll never get that donut since the gluten sensitivity would be too painful to even consider it.|
|03-01-2006 10:57 PM|
These ladies have all kinds of ideas, plus there are other good support systems you can find online w/all kinds of ideas for kids. It won't be as hard as it seems right now, I promise. Maybe you can start phasing out the junky stuff with your dd right now little by little while you're getting ready to commit? Oh, and about the constipation: From what I understand, that does not happen to everyone. My dd was constipated for a few days and now everything's fine.
A little OT, but it may give you inspiration: *I* am feeling great on this diet and it is helping my dd2 without a shadow of a doubt. I will share all the positive things about it in another post or maybe a new thread. I'd like to read about others' success stories as well.
|03-01-2006 07:50 PM|
I'd like to get my intestinal ducks in a row, too. We are going to try to get pregnant after we move this summer.
So, I'm really thinking about the scd diet. Can't do the dairy, eggs or nuts, though. And I'm thinking we'd probably have to go off of it when we move until we get settled in.
So, a few questions.
Do you think the diet has to be followed exactly in the different stages to work, or could I just switch what we eat to scd legal foods? (I've gotten the book twice through interlibrary loan, and I really don't want to do it again. I guess I should just break down and buy it.)
Do I absolutely have to give up my convenience foods? Right now they are just canned tomato sauce, canned tomatoes, gerber diced baby food fruit, and the Applegate farms lunchmeat and hotdogs? I am guessing the answer is yes, but I really don't want to give them up right now.
Can you still see results with some foods and/or supplements that are illegal?
And how long would it take before you think a child would start eating the foods served to them. Right now, dd will eat meats with no problems, but will not eat any veggies at all and only sometimes eats apples, pears and peaches.
And how would I get the cod liver oil in her? Right now she only does it in oatmeal. (She doesn't drink anything but water.)
And would it be constipating for how long? I've noticed recently that dd tends to get constipated unless she has oatmeal or brown rice regularly.
I am slowly moving towards doing this. It just takes me a while to gather information and commit.
Thanks in advance for the help.
|03-01-2006 07:38 PM|
The digestive enzymes I tried were a prescription from a naturopath. I think they were Thorne Di-Pan. I have been thinking about doing enzymes again. It just bothers me that the enzymes recommended on the enzymestuff website are fungally derived. Still thinking about it.
And about the diet. I was definitely eating much healthier on an elimination diet. Throwing out the top allergens really limits the amount of packaged food you can find.
|03-01-2006 07:35 PM|
or at least the past three years?
my dd has suffered from ezcema, i think, because of a mama's leaky gut and a bad reaction to a DTaP shot (live and learn). it has been bearable most times and terrible, terrible, terrible others ("what's WRONG with your baby!?" style, heard on the bus, several times - we couldn't drive or she would scratch her sweet cheeks bloody.) we're better now, a trip to a famous chinese herbalist worked wonders, but we're slipping down some kind of yeast ridden road again, me thinks.
anyway, i lost a pregnancy recently, and have to wonder....
i'd like to start ttc but i need help getting my intestinal ducks in a row.
any book suggestions would be greatly appreciated.
also, what's SCD?
we avoid eggs, cow dairy, refined sugars. and all processed foods.
she takes probiotics and fish oil.
i take probiotics and just started trying grapefruit seed extract a few weeks ago, and am possibly seeing a die off of sorts?
anyway, i just wanted to thank you; you are all so knowledgable. and introduce myself, as i'll be hanging around gleaning all i can from you mamas
|03-01-2006 12:25 PM|
I tried goat milk yogurt last night. No reactions whatsoever :
I'm still waiting on the book I ordered. I hope this works. Right now I'm just not eating any of my known triggers but now that I've cut them out I've started noticing that I have stomach aches with things that aren't on my list. The stomach aches are mild, nothing like with soy, dairy, etc, so it's hard to pin point what is causing it. Anyway, I hope this works for me. It would be nice to have a day without digestive problems yk?
|02-28-2006 10:41 PM|
|02-28-2006 10:40 PM|
Darn server issues... lost my previous post.
Beans are not for early stages of diet. Personally I would wait to see if you can do well on raw fruit before introducing such advanced things like beans, lentils, dried fruits and whole nuts.
I'm confused about the nut milk/butter thing. Pecanbread lists them as the same in Stage 2. I don't remember the book saying anything about it.
Diarrhea or Constip. can be signs of die off, it's all individual depending on what particular microbes you are fighting. BTVC website has in Knowledge Base several Constip. links.
BTVC says if yeast is an issue to limit the honey at first to 25% of recipe.
|02-28-2006 06:07 PM|
Patty, in an earlier incarnation of this thread, someone (Jane?) said you can go ahead and introduce things like beans earlier if there was never any diarrhea. You could try and then see what happened, or wait a bit. Did you already have die-off, I can't remember? I still have yeasties myself, and am thinking I introduced stuff a bit too early and maybe am being a bit too heavy on the honey. Do what you feel is right for your body. We're all so different!
Just wanted to add for those who think they have celiac, that there is a non-invasive test for it, that uses stool samples, that is supposedly very accurate. You don't have to reintroduce gluten into the diet with this test, which is a major plus for many. I haven't done it myself yet, but heard about it from another mama on another board who has celiac. It's: http://www.enterolab.com/
|02-28-2006 04:43 PM|
Okay so I posted yesterday about taking sepia and how it was helping my skin.
I woke up this morning to discover small, dry eczema-like patches on the insides of my elbows. I haven't had this since I was maybe 12.
I joined this thread talking about ds's allergies, but I guess I'm on the path with him now. I hope I start seeing results for him too.
|02-28-2006 12:38 AM|
I'm pretty sure you can eat all the fruit you want. Just make sure it's peeled, de-seeded and cooked. I like my yogurt like that too! It tastes like ice cream to me w/fruit and honey.
Oh, and no D here either. I think that constipation can be common when starting. It happened to me and to dd but didn't last long. Are you drinking A LOT of water?
|02-28-2006 12:32 AM|
My book arrived!!! And I read it today. I'm not much clearer than I was before. I'm esp confused about introducing foods etc. She keeps refering to when diahrea stops as an indicator of things. No D. here. Mostly constipation if anything (and that just since starting this darn diet). So should I be waiting for that to clear up to introduce more foods?
Also why is nut milk introduced later than nuts? That seems counter intuitive to me.
We had a yummy supper tonight. I love winter squash and I am esp loving getting to eat it regularly. I modified a baked chicken recipe that has a parmasean cheese coating and replaced the bread crumbs with ground up almonds. Worked great and tasted great too. I'll post it if anyone is interested. It was MIL's recipe and one of dh's favorites from growing up. I like it too.
Am I totally messing myself up by eating fruit all the time and using some honey? I can't eat the yougart plain, just too tart. I want to wipe this stuff out asap but I need to survive the process as well. I'm just confused...
|02-27-2006 08:56 PM|
|Pookietooth||Wow, spam post! Anyway, Jane, could you re-post your cashew butter bread recipe over in meal planning? I didn't print it when you posted it and now I can't find it. Thanks!|
|02-27-2006 07:52 PM|
Well I've spent the last couple of days researching possible homeopathic remedies for ds and narrowed it down to one. I gave it to him just a little earlier, so now we will play the waiting game and hope for the best. I am really hoping that this will help and we won't have to go the route of elim. diet/SCD. Trying to avoid his trigger foods too, but at this point I don't even know forsure what they all are. I have read many case studies of homeopathy helping with allergies, so here's to hoping. Yes, I know I should see a professional homeopath, but there is no one in our surrounding area, and the last professional diagnosis we got was wrong. So, in the meantime, it can't hurt to try, right?
On a positive note, I took some sepia for my *mother-stress* about a week ago, and it not only seems to have lifted my mood, it also appears to be helping my skin. I've had awful cracked, dry, bleeding hands (especially my right hand) all winter just from constant contact with soap and water, and the very dry air here. I can't believe how much better my hands look, just over the last couple days. I wish I had a before and after pic!
|02-27-2006 05:32 PM|
Wow do I have a lot to post today!
First, dd slept 4 and 1/2 hours last night! (Almost a record!) Her cradle cap is almost completely gone (never did go away since birth). She's left with only a very dry looking scalp. I know this diet is working.
We had an appt. with a very mainstream allergist/immunologist this morning. We are going to have her blood drawn and test that way. He said the *prick* test was more accurate, but I don't want her going through that right now.
Now some news I know you'll be interested in Jane: The lady who runs our organic co-op (and the one whose sister works for Dr. Sears) told me today that Sears recommends AGAINST vaxing (apparently he can in the State of California.) (?)
Well, she and her husband are looking into starting a Weston-Price Foundation something or another here. (I don't know much about it but I know you do Jane. ) She also is trying to get the author of Nourishing Traditions (is it Fallon?) herre to speak.
We had a quick conversation about this while she was on her cell phone so I don't know many details but immediately thought of you Jane.
BTW, all you northerners: I used to live in Albany, NY and am now in sunny and rural FL. (Maybe you could all take a vacation here to listen to this author speak!)
Oh, one more thing for firefaery: I would be interested in hearing what that intuitive of yours has to say. Why not?
|02-27-2006 04:56 PM|
All animal milk has lactose in it. The benefit to raw is that the enzyme needed for breaking down lactose (lactase) is intact. Wild Oats in CT carries a raw goats milk cheddar that is SCD legal. I think the brand is Alta Dena. Maybe you could see if they will ship?
Oh, and Jane, I found an online source for raw pastured butter that will ship! I'm so excited. They also do meat and fish (pastured and wild) I like the site alot. It's www.slankersgrassfedmeats.com Thanks anyway for your link.
|02-27-2006 04:35 PM|
So here's a question I'm about ready to try some goat milk/yogurt to see if it gives me excema like cow milk does. I googled and raw milk is illegal in NJ, so basically I'll be getting store bought goat milk, yogurt or cheese. Which would be the best to try? I know SCD says to make your own, but I want to see if I can even tolerate goat milk before I go to that effort.
Also, does goat milk have lactose in it? Because I'm also lactose intolerant so . . . . . . So many things to think of
|02-27-2006 02:29 AM|
If I had raw milk, then I would not heat it up before making the yogurt.
|02-27-2006 02:18 AM|
|02-27-2006 01:47 AM|
I just read on a raw milk site that to pasturize their milk heat it to 161 and cool it quickly. I am wondering if I'm killing off any good remaining enzymes on my low temp pasturized milk by heating it to 190 before cooling it for the yougart.
Can anyone explain to my why I have to heat it? I'm confused on that point.
|02-27-2006 01:47 AM|
|Panserbjorne||My uncle's in Tolland! I'm in Pleasant Valley. My homeopath is in Woodstock, though-not too far from your old digs!|
|02-27-2006 01:42 AM|
|Pattyla||OT- To firefaery- I'm from CT origionally but not any more. I tried to pm you but you are full. I'm from Tolland. Where are you located?|
|02-27-2006 01:25 AM|
Jane-that's ds's constitutional! He takes it at 10M though...but it's a perfect fit. Let me know how it goes!
Also I had to post this. Some of you may think I'm nutty, but here goes. For my birthday this past June my dear friends gave me a reading with an intuitive. I did it over the phone (she's in CA, I'm in CT) and it was really cool. Pretty cheap, too. She sends you a tape of the reading (for $5) so you can listen to it later. I remember the reading being very good, but that was the end of it. Until I pulled out the tape two days ago.
She NAILED just about every one of the kids allergies before I ever got the blood test. Even down to the degree of severity( she uses a 1-10 scale for all foods. 10 is nourishing, 1 is harmful and you shouldn't eat anything below a five. She named the foods that the kiddos were allergic to all below a five and some at a zero.) She talked about my liver being very damaged, and I just had testing about two months ago that revealed significant liver damage. She told me what minerals dd and I were deficient in. She also recommends supplements based on her numbers system for your body. For instance, Primal Defense came up great for me (9), but the GOL enzymes did not (2). She recommended the WOB enzyme for me.
Anyway, I'm talking to her again tomorrow to ask more specific questions. Last time she just sort of talked, and since I was thinking it was just for fun I listened. Now I have questions about particular foods, and supplements I want to try. I'll let you know (if you're interested) how it goes.
I normally wouldn't post this here, but I just discovered in listening to the tape that there were complete parallels between her reading and the allergy testing. You also get alot more (recommendations, deficiency reading and the best ways for YOU to deal with it) for alot less money.
Sorry if this was weird, but if it can help another mama...I guess it's just another form of testing?
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