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  Topic Review (Newest First)
07-20-2014 09:00 PM
Shelsi
Quote:
Originally Posted by mamaladybug5 View Post
Shelsi, I don't even know if you would get this since it's been 6 years since your post but I am wondering if you could give me some info on the total elimination diet. I have suspected that my 4 month old has food sensitivities since he was about 2 weeks old but my doctor isn't concerned. I have eliminated dairy and have tried to eliminate soy and wheat. But I just don't really know where to start. I have tried to find info on it but haven't had much luck
This is so weird because I haven't been on the forums here in years. We just moved however and I was trying to find some like minded moms so I logged in to see if I could find any and my eye caught this post!

It's actually kind of funny, in a not so funny kind of way, to read what I wrote 6 years ago. Why? Because we later found out my dd has celiacs disease and all the oats and spelt I was eating was of course terrible for her! She wasn't having reactions to those foods like she was reacting to the other foods so I had no idea! Instead her reaction to gluten was to form all those reactions to all the other food. We figured out she had celiacs in 2009, removed gluten, and within 6 weeks she had gained 5 lbs (she had been only 15 lbs at 2 years old), grew 1.5 inches, and after a few months all her other food sensitivities vanished along with the reflux and accompanying symptoms. She's now a totally normal nearly 7 year old little girl.

Anyways I basically followed the Dr. Sears information for a TED except that my dd seemed to react more to rice so I remember switching quite quickly to quinoa instead. In retrospect I realize I added things in too quickly, like the oats which were more than likely gluten contaminated. Also, and I know this is often heresy on these forums, I wish I'd just switched her to formula. If I had it all over to do again but with the knowledge I have now I would have went to a hypo-formula. I think mentally/emotionally it would have been better for me (once I got over the formula guilt) and physically it would have been much better for her. I did go on to let her self-wean at the age of 3 but I don't like how "food centered" our relationship became starting at just 4 months old.

Anyways, WAY more info than you asked for and probably not helpful at all.
07-14-2014 05:19 PM
mamaladybug5 Shelsi, I don't even know if you would get this since it's been 6 years since your post but I am wondering if you could give me some info on the total elimination diet. I have suspected that my 4 month old has food sensitivities since he was about 2 weeks old but my doctor isn't concerned. I have eliminated dairy and have tried to eliminate soy and wheat. But I just don't really know where to start. I have tried to find info on it but haven't had much luck
08-01-2008 05:59 PM
Ruthla I'd suggest cutting out all gluten along with the wheat- then once you reach baseline you can test other grains (rye, spelt, oats, barley) individually to see if it's a problem with wheat in particular or gluten in general.

There really isn't that much out there that's wheat free but still contains gluten, so it's not all that much harder to do.
08-01-2008 05:51 PM
mommydancer If someone had told me a year and a half ago that I would be going this long without milk, soy, nuts, eggs, legumes, wheat, apples, coconut, fish, beef, pork, and probably a couple more...why, I may have fainted. Surely, I wouldn't have believed I could. There are days I still don't know how I am doing it. You will do the best you can, and you will find your own path...not the same things are right for every mom or every child. You did a great job being stubborn and playing Nancy Drew.
08-01-2008 04:04 PM
changingseasons ITA with all the PP. Like menomena, I found that I also had issues with dairy, wheat, almonds, and some others after DD started having problems. (I don't know if I've always had them, or if pregnancy [& abx during] just did a number on me, but that's another story...)

There is a "breadfast help" thread around here that might help you with ideas. It might be on the second page of the Allergy forum by now. There's also a "meal ideas/recipes" sticky at the top of the forum. And we can help you out with any food questions that you have!!

I think that dairy, soy, eggs, and wheat/gluten are probably the top offenders in babies with food allergies. I would definitely suggest keeping those out of your diet for a while to see if things improve.

Things like dairy take weeks and weeks to fully leave your system, but other foods are probably more like a week. It usually takes 3-5 days after I eat a bad food for DD's symptoms to start clearing.

Oh- and check out my blog (in my sig) for info about leaky gut.

And your doc is like so many we have seen.... : Good for you for listening to your gut instead of him!!
08-01-2008 03:55 PM
Shelsi If you go to your local health food store you can find a rice breakfast cereal as well as quinoa. I went on a total elimination diet when my dd was 4 mos to figure out her allergies. At that time, for breakfast I would eat quinoa flakes...it's sort of like cream of wheat. After a month I started adding things in. Luckily we don't have any soy issues and oats are OK for us. So many mornings I have oatmeal or I make a smoothie out of soy milk and safe fruits. Also even though my dd is allergic to wheat she does ok with spelt which is very very close to wheat so I've been able to use that in all my cooking and baking. This morning I actually had some donuts for breakfast that I made last night. For lunch I'll probably have a turkey burger or leftover taco meat from last night.

It's been 8 mos since I was on the TED and so of course I've added many things safely back in.

One of my fave allergy cookbooks is "The Whole Foods Allergy Cookbook" It's free of the Top 8 and I've had really great luck with all the recipes in it.
08-01-2008 09:45 AM
katy1844 Wow, so what do u eat, say for breakfast? Soy is also a big no no, figured that one out the hard way too.... not sure about nuts I haven't been eating them just in case but its hard to really know because she hasn't even been totally okay, does that make sense. Like I stopped eggs but it didn't seem to make a difference so I'm back on them but it could be that eggs is a problem but so is wheat and I was having wheat then so its hard to know, does this make sense????
08-01-2008 08:40 AM
menomena

I can't answer all of your questions. I can tell you that we are wheat- & dairy-free (as well as a host of other things including corn, soy, nuts, peanuts, legumes, gluten, GARLIC, and more). I originally thought that there was noway we could do it long term. However, here we are 15m dairy-free and 9m free of everything else. Just like anything else, you adapt and you deal. You are strong, mama, you can handle it. As a bonus, I discovered my own wheat, soy & dairy issues, and I've lost just about 30lbs (incidentally, 30lbs that I've been hanging onto for 10 years - since freshman yr of college) unable to lose until now....).

I can also tell you that dairy & soy issues go hand in hand. Dairy & wheat issues seem to also be related. If you find after cutting out wheat that your LO is still fussy, you might try cutting out soy, too.

Good luck. We're here to answer any more questions & to give support.
08-01-2008 07:30 AM
katy1844 So even though the doc said I would never figure out what was bothering my baby and I should just go to formula, I think I finally figured it out! I had tons of this new pure wheat bread the other day and that evening my six week old was in so much pain, the next day she was swollen and had watery pooh, etc. This is the only "new" thing I had eaten that day although I've been eating wheat products since her birth which would explain why she never seemed very comfortable even after I stopped dairy (although it did improve some)and once I had a lot of wheat I was able to pin point it, so it looks like dairy and wheat are going to be our issues. Does anyone have any idea how long it takes for wheat to leave your breastmilk, it's been two days and she's still fussy. Also I would love to hear stories of other babies who had these issues but outgrow them and by what age. I nursed my other two kids for 2+ years but can't imagine going that long without dairy or wheat, I'm already struggling with what the heck to eat! Oh, and also I had lots of rice that day but had rice many times before without such a huge reaction, but could it be grains instead of just wheat and the combination of the two that day just killed her? Could she be allergic to all grains? Thanks!!!!!!!!!!

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