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Thread: Fertility Challenged Graduates Thread - Spring/Summer 2014 Reply to Thread
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  Topic Review (Newest First)
Today 05:36 AM
tinytina Hi to everyone,

I am so sorry you are dealing with all this @Xerxella , hugs hun. And prayers
Yesterday 09:58 PM
Tear78 Thinking of you, X!
Yesterday 08:54 PM
tracyamber @Xerxella

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Yesterday 06:43 PM
iixivboots Xerxella, I am so so sorry to read about all the complications with your twins. I hope you have a great care team. I know nothing can really comfort you or ease your worries except time. Really really hoping that you hear good news soon.
Yesterday 06:33 PM
Sourire Hi guys, it's been a while since I logged in here. My baby girl has been keeping me busy! Being a mom is tough but I'm so happy

Silverbird - I'm so happy to hear about your BFP! Congrats!

Milkshake - I'm over the moon to hear that this pregnancy has made it further than any other! This baby sounds like a winner!

Xerxella - sorry you're in a stressful situation right now. I'm thinking of you and you babies, and I'm hoping so hard that everything works out.

Monkeyscience, tracyamber, everyone else... Hi!
Yesterday 06:03 PM
Xerxella Thank you all for your thoughts. I'm out of surgery. The doc was happy with one stitch and not so happy with the other. She was concerned about how short the cervix is. Now we just wait and see.
Yesterday 01:39 PM
tenzinsmama Xerxella, just wanted to tell you that I have you and the babies in my thoughts... I hope you receive some answers soon.
Yesterday 12:34 PM
tracyamber @Xerxella
When is the cerclage? Will you be staying overnight? Hugs

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Yesterday 08:44 AM
Tear78 X, DD was a twin and her twin didn't make it. I know how scary it is to wait and hope that at least one pulls through, because we were told we would just have to wait and see if my body would hold in to DD. I'm rooting for Baby A to hold on tight, and for Baby B to push through and be your second precious snugly. Huge, huge hugs during this scary time!

Ps - I hope that comes across as being empathetic and not a "story of hope" that just doesn't help. Sending you love!
Yesterday 08:36 AM
monkeyscience Well, Tracy's son is living proof that survival is possible, which I think is pretty incredible. You tell your babies they have a big cheering section rooting for them!
Yesterday 08:06 AM
Fertility Challenged Graduates Thread - Spring/Summer 2014

I think it's the regular progesterone. But, I'll find out more. I've read the studies on twins and progesterone and think that it's not proven prophylactically for twins. But, PTL is PTL. If B dies would it work then? Clearly, it's not that simple. I definitely think it's in the "couldn't hurt" category.

Right now I just hope A is a fighter and can survive through B's troubles.
Yesterday 07:26 AM
hope4light Ohhh X, I'm so so sorry. I'm hurting so bad for you right now. I'm keeping my fingers crossed that B is a fighter and will make it through. Please update us whenever you feel up to it. Big big big big group hugs are coming your way.
Yesterday 06:30 AM
monkeyscience Thanks for clarifying, Milk. I thought you were talking about the progesterone shot that you only get a couple of times (I think). Anyway, I clearly don't know what I am talking about.
Yesterday 01:11 AM
Milk8shake I don't really know if there is any progesterone difference - I don't know enough about IVF meds. But I'm just taking normal progesterone pessaries, and will move to injections at some point in the coming weeks. Regarding multiples, I'd say just because it's not proven, doesn't mean it won't work. I'd put that down to a potentially lesser sized research pool. Not that Monkey's link isn't valid, but I'd be going with the "can't hurt, might help" theory.

Hope you got my garbled FB message re cerclage. Sorry, but I was typing from work on my phone, so I hope it wasn't too hard to follow. The basic premise is that there are definite risks with a cerclage, but that the potential benefit is likely to outweigh the risk. Regardless, it's good to know what to expect.

I think it's great you got to see the cardiology specialist, but I also think a second opinion is the right move, even if you are in the hands of an MFM already. I'm definitely thinking of you - Google tells me it's 3am there, but I wouldn't be surprised if you are awake. I'll check in on my several nightly pee breaks tonight to see how you go tomorrow.
08-19-2014 07:17 PM
monkeyscience X - Hopefully Milk will clarify, but I think the progesterone they give for preterm labor is different than the stuff you do at the beginning of an IVF pregnancy. But I may be wrong. Here's a link about it - they say it is actually not proven to help if you are carrying multiples, but I didn't dive into the details of that. I really hope they can figure out a way to help you and your babies. I was crying at my computer earlier. I want this to work for you so much (obviously not as much as you yourself do), and I hate feeling helpless. I'm sure you feel the same way. I'm always here to listen, and if there's somehow more I can do, let me know.
08-19-2014 05:19 PM
Xerxella We know it's non-immune because I'm O- and DH is B+, I've had my rhogam shots everytime and with this last bleeding episode at 12 weeks, they did it again and checked to see if I had already build up any antibodies and I had not. I would think they'd check it again tomorrow. If not I'll ask them to along with my thyroid, which I understand can be a rare cause of hydrops.

Unfortunately, there's no one to refer me to. I'm already seeing an MFM. I've made a call to the best hospital in our area for a second opinion. I'll wait for the call back.

Right now we're classified as idiopathic, ie unexplained.

I facebook messaged you about the cerclage. Any information you can give me would be welcome. I've done NO research on it.

I still have progesterone from the ivf cycle, so I'll give myself an injection tonight and then ask the doc about it tomorrow.
08-19-2014 03:20 PM
Milk8shake Damn this bullshit! @Xerxella you don't deserve this, and I'm angry. Really angry. My quick Googling tells me they need to determine the cause of the hydrops before they can determine possible treatments. I hope that they have referred you to a maternal fetal medicine specialist?

Re: cerclage, yes -I've done enough research to be an expert in the field. I wrote a whole bunch of details for you, and now I have deleted it. I"m sure you're freaked out, and maybe you actually want to listen to a real expert on this. But if you want my take, Facebook me.

My primary advice is to ask for progesterone shots to prevent preterm labour. It's common with cerclage/incompetent cervix. VERY IMPORTANT.
08-19-2014 03:05 PM
Tear78 X, I'm so sorry. Hoping with you for the very best scenario. Keep us posted when you can.

Milk8, how are you doing? Any update on the possible appendicitis?
08-19-2014 02:43 PM
chuord Hugs Xerxella! Sending energy and prayers xxx hoping they can make all ok
08-19-2014 01:29 PM
Xerxella They'll test me tomorrow, but a lot of the tests come back negative even if it WAS an infection. My body handled it and cleared it quickly, but the baby is still managing it.
08-19-2014 12:07 PM
tracyamber @Xerxella the only way to know if it is an infection is to wait? Ugh, I'm so sorry mama.

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08-19-2014 10:47 AM
alivewithyou So sorry to hear @Xerxella .
08-19-2014 10:45 AM
Fertility Challenged Graduates Thread - Spring/Summer 2014

@tracyamber - we don't know much. The primary focus is to save baby A. I think the cerclage will be on time.

The fetal cardiologist happened to be in and did a detailed scan on B. His heart overall looks great. But, it did slow down into the 70's at one point during the scan. Very bad. But, it appears the hydrops is putting pressure on the heart, not the other way around. But, that still leaves us with the question as to why is the baby in hydrops? It comes down to 2 possibilities. Either, it's an inherent genetic problem or its caused by some sort of infection. Fifth disease, for instance, causes this. If it's a virus and he can fight it off, the hydrops may resolve on its own. If he can't fight it off....

If it's genetic, it depends what happens from here. If it gets better, he has a chance. If it gets worse or stays the same, he won't make it.
08-19-2014 10:30 AM
monkeyscience I'm sorry it wasn't all good news. I'm with Tracy on all the questions, but understand if you aren't feeling up to answering them. Still praying for you guys.
08-19-2014 10:18 AM
tracyamber Oh @Xerxella
I'm so sorry to hear about baby B. I'm so sorry. What did the doctors say about baby B. Are they doing more testing. Will the baby make it to term?
When I was pregnant with two my baby A had hydrops. Oh I'm thinking if you. You have a lot going on now. Hugs mama, hugs.

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08-19-2014 10:14 AM
Xerxella It's bad. Baby A looks good. Baby B has severe hydrops. That's massive amounts of fluid in his chest as abdomen. It's a very bad sign.

In addition, my cervix is funneling and shortening. It's at 1.8. I'm getting a cerclage tomorrow. You just had to go get a cerclage, didn't you @Milk8shake ?
08-19-2014 09:39 AM
monkeyscience Hopefully you're almost done, and hopefully you I to see the doc immediately to get good news!
08-19-2014 09:10 AM
tracyamber @Xerxella
Stalking and sending positive scan energy!

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08-19-2014 08:07 AM
alivewithyou Sending you good thoughts. I'm sure it will go great!
08-19-2014 07:19 AM
Xerxella I'm in the waiting room now. Nervous.
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