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Search: Keyword(s): ; Posts Made By: jennabean
Forum: Special Needs Parenting   08-03-2011, 10:26 AM
Replies: 10
Views: 971
Posted By jennabean
Wow, that's fantastic!  Glad to see you're...

Wow, that's fantastic!  Glad to see you're back... hope all is well :)
 
Would love to pick your brain about Conner's speech/palate issues... my Al (also 22q) is having some issues and you're one...
Forum: Special Needs Parenting   04-25-2011, 07:05 PM
Replies: 5
Views: 417
Posted By jennabean
I would 2nd the idea of a genetic work up.  My...

I would 2nd the idea of a genetic work up.  My son has 22q11.2 deletion and many of the things you describe sound similar to him...he'll be 3 in a few weeks. The delays you describe for your...
Forum: Special Needs Parenting   02-24-2011, 04:25 PM
Replies: 5
Views: 261
Posted By jennabean
I don't have any experience with Down's but my...

I don't have any experience with Down's but my son has/had 22q11 deletion syndrome and was always a tiny, skinny little thing :)  We didn't know what was going on when he was just a nursling but I...
Forum: Special Needs Parenting   12-28-2010, 08:48 AM
Replies: 2
  22q
Views: 239
Posted By jennabean
My son Al was diagnosed this past late summer......

My son Al was diagnosed this past late summer... overall I'd say its a relief to have the diagnosis, and truth be told I'd actually suspected 22q from all my internet 'research' but as of now, we're...
Forum: Special Needs Parenting   12-12-2010, 07:11 PM
Replies: 7
Views: 633
Posted By jennabean
Well, she seems like she's hypotonic to me but...

Well, she seems like she's hypotonic to me but wherein that alone might explain much of what you've mentioned, I think I'd still, as the child's parent, want a workup done to look for other causes...
Forum: Special Needs Parenting   11-16-2010, 07:11 PM
Replies: 13
Views: 850
Posted By jennabean
I couldn't read and not reply :(  It just sounds...

I couldn't read and not reply :(  It just sounds like you and your son have been through sooo much :(  Just a hug of support to both of you and I hope you all are able to get the school on board. ...
Forum: Special Needs Parenting   10-08-2010, 05:03 PM
Replies: 10
Views: 631
Posted By jennabean
My son has Pt and Speech, both with very...

My son has Pt and Speech, both with very skilled, seasoned therapists... and truthfully, I'm still not sure its b/c of their help that my son is improving... if it weren't for the fact that he...
Forum: Special Needs Parenting   09-30-2010, 10:23 PM
Replies: 10
Views: 830
Posted By jennabean
oh I am so sorry for all that is happening to...

oh I am so sorry for all that is happening to you right now http://www.mothering.com/discussions/images/smilies/greensad.gif I wish I had words of wisdom for you... hopefully someone else with...
Forum: Special Needs Parenting   09-30-2010, 10:15 PM
Replies: 6
Views: 811
Posted By jennabean
aw, we ALL have had those moments... I try to...

aw, we ALL have had those moments... I try to have a sense of humor about it but I know you're worried your dd may have hurt the other mom's feelings, etc.

but truthfully, its just one of those...
Forum: Special Needs Parenting   09-27-2010, 06:50 PM
Replies: 15
Views: 2,937
Posted By jennabean
congrats and I do hope you get some answers...

congrats and I do hope you get some answers soon! http://www.mothering.com/discussions/images/smilies/smile.gif
Forum: Special Needs Parenting   09-24-2010, 10:46 PM
Replies: 15
Views: 2,937
Posted By jennabean
I hope we didn't scare you with our stories...

I hope we didn't scare you with our stories http://www.mothering.com/discussions/images/smilies/greensad.gif My son Al has 22q11 but I shared that to hopefully make you feel less worried about your...
Forum: Special Needs Parenting   09-22-2010, 05:38 PM
Replies: 43
Views: 2,764
Posted By jennabean
I understand your worry and concern...

I understand your worry and concern http://www.mothering.com/discussions/images/smilies/greensad.gif My son had some differences we couldn't figure out and I practically made myself vomit one night...
Forum: Special Needs Parenting   09-16-2010, 10:23 PM
Replies: 7
Views: 543
Posted By jennabean
I don't have any experience with a child with...

I don't have any experience with a child with Autism, but wanted to send some good vibes your way http://www.mothering.com/discussions/images/smilies/smile.gif

I will say that my daughter who is...
Forum: Life with a Toddler   09-06-2010, 09:16 PM
Replies: 16
Views: 469
Posted By jennabean
My son had to wear the helmet and I hated it......

My son had to wear the helmet and I hated it... hated it... but he was younger, @ 9-12 months, and it did improve his head shape somewhat. I can't say the level of benefit for a 16 month old.

We...
Forum: Life with a Toddler   09-06-2010, 09:03 PM
Replies: 6
Views: 291
Posted By jennabean
I second the video idea, but my SIL who is a...

I second the video idea, but my SIL who is a stylist showed me how to take a section of hair, twirl it, them sort of snip snip snip into it to layer it... you just sort of take the twirled section...
Forum: Special Needs Parenting   08-05-2010, 10:47 PM
Replies: 1
Views: 334
Posted By jennabean
That's always so tricky... but I'm inclined to...

That's always so tricky... but I'm inclined to suggest another opinion.

My son had a neurologist and at his recommendation we had an MRI done b/c of weakness in my son's left side. My son also...
Forum: Special Needs Parenting   07-22-2010, 05:02 PM
Replies: 4
Views: 381
Posted By jennabean
Best of luck with the appt.! I guess it just...

Best of luck with the appt.! I guess it just depends what the Dr. says, but my son sees and ortho. and gets PT and we've never had any issues between the two...
Forum: Special Needs Parenting   07-16-2010, 09:19 PM
Replies: 6
  Walking
Views: 410
Posted By jennabean
oh wow, that's very kind of you... thank you...

oh wow, that's very kind of you... thank you http://www.mothering.com/discussions/images/smilies/smile.gif

do you mind if I ask how severe your DH's contractures were/are?

my son has the...
Forum: Special Needs Parenting   07-14-2010, 09:38 PM
Replies: 4
Views: 427
Posted By jennabean
very cool! congrats to you and Conner!!! my son...

very cool! congrats to you and Conner!!! my son finally got on a chart a few months ago, and even though I knew I shouldn't compare him, etc. I was just soooo delighted...
Forum: Special Needs Parenting   06-21-2010, 10:17 PM
Replies: 6
  Walking
Views: 410
Posted By jennabean
My son who is 2 has distal arthrogryposis and...

My son who is 2 has distal arthrogryposis and his clubfeet were severe and atypical. He has hypotonia but I suppose that comes with arthrogryposis...

He has juuuust started to take a few steps...
Forum: Special Needs Parenting   06-21-2010, 10:02 PM
Replies: 3
Views: 331
Posted By jennabean
"painting" on the patio/deck/walkway with water...

"painting" on the patio/deck/walkway with water and a brush.... my kids love that http://www.mothering.com/discussions/images/smilies/smile.gif they use chalk too with that sometimes to do...
Forum: Special Needs Parenting   06-10-2010, 08:26 PM
Replies: 18
Views: 2,156
Posted By jennabean
Out of curiosity, why is she in PT? just...

Out of curiosity, why is she in PT? just wondering what her differences are that brought her to PT in the first place http://www.mothering.com/discussions/images/smilies/smile.gif

My son has...
Forum: Special Needs Parenting   06-03-2010, 10:23 PM
Replies: 9
Views: 953
Posted By jennabean
wow, we're going through the same thing here...

wow, we're going through the same thing here with my 2yo, Al... ear infection, fever (with a febrile seizure in the office waiting room!), and then when the fever hit 105 last night, back to the...
Forum: Special Needs Parenting   05-31-2010, 10:01 PM
Replies: 43
Views: 3,311
Posted By jennabean
I'm not sure where you moved from, but if you're...

I'm not sure where you moved from, but if you're in the Palmyra area that's near Charlottesville, its a pretty hip, progressive town and I bet you could find a great ped. there in C-ville. Both of...
Forum: Special Needs Parenting   04-11-2010, 08:46 PM
Replies: 3
Views: 310
Posted By jennabean
My son Al has some differences that aren't...

My son Al has some differences that aren't blatantly obvious and some that are (he'll be 2 in May) and I've struggled with how much to reveal right off the bat to a new babysitter...

What I...
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