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Forum: Special Needs Parenting   04-24-2012, 08:39 PM
Replies: 6
Views: 238
Posted By mekat
No, my son's diagnosis is rare.  We don't fit in...

No, my son's diagnosis is rare.  We don't fit in with the Autism crowd.  We don't fit in with the Down Syndrome crowd.  All the local special needs activities are aimed at the later two groups.  I...
Forum: Special Needs Parenting   10-21-2011, 09:44 AM
Replies: 16
Views: 475
Posted By mekat
You have gotten some good advice.   Most people...

You have gotten some good advice.   Most people are in the special education field because they love working with the special needs population.   The staff I worry about most are the aides because...
Forum: Special Needs Parenting   08-23-2011, 08:56 PM
Replies: 11
Views: 1,329
Posted By mekat
 Quote:Originally Posted by...



Quote:Originally Posted by hdirks http://www.mothering.com/community/img/forum/go_quote.gif (http://www.mothering.com/community/t/1324388/hypotonic-cp-anyone#post_16618613)She does get very...
Forum: Special Needs Parenting   08-20-2011, 08:39 PM
Replies: 11
Views: 1,329
Posted By mekat
Hypotonic CP isn't really an all encompassing...

Hypotonic CP isn't really an all encompassing diagnosis so there can be quirks outside of this diagnosis.  If they give her the diagnosis that doesn't mean that will be her primary diagnosis.  My...
Forum: Special Needs Parenting   08-19-2011, 11:16 AM
Replies: 36
Views: 1,303
Posted By mekat
I wouldn't say anything in this situation...

I wouldn't say anything in this situation either.  Also I didn't jump to the conclusion of autism.  I thought of sensory problems first when reading your post.  My son does some of the same things...
Forum: Special Needs Parenting   08-18-2011, 06:17 PM
Replies: 66
Views: 2,261
Posted By mekat
Update & a bit of venting- My son's IEP is still...

Update & a bit of venting- My son's IEP is still the same old, same old.  I have spent several weeks trying to get him enrolled in a school that could even handle his medical needs never mind his...
Forum: Special Needs Parenting   08-09-2011, 10:32 PM
Replies: 15
Views: 3,111
Posted By mekat
I would recommend following the above...

I would recommend following the above recommendations first since they have some decent inexpensive ideas.  If you run out of options or just want to pay a little extra for something that is ready...
Forum: Special Needs Parenting   08-02-2011, 06:03 PM
Replies: 66
Views: 2,261
Posted By mekat
We have to redo Alec's IEP because he has to...

We have to redo Alec's IEP because he has to switch schools due to a move.  We are still in the same district and his needs are somewhat mostly the same.  I would like them to work on more academic...
Forum: Special Needs Parenting   07-24-2011, 11:00 PM
Replies: 1
Views: 998
Posted By mekat
I gave them a small picture of ds, a bookmark...

I gave them a small picture of ds, a bookmark and handwritten Thank You card.  One of ds's therapist wanted to know the URL for his Caring Bridge page.  I didn't really go all out especially since...
Forum: Special Needs Parenting   07-18-2011, 02:31 PM
Replies: 8
Views: 549
Posted By mekat
My son isn't on the spectrum but I have been...

My son isn't on the spectrum but I have been dealing with a somewhat similar issue.  He has two genetic syndromes, neurological problems severely delayed in all areas of development and and has...
Forum: Special Needs Parenting   07-10-2011, 09:36 AM
Replies: 25
Views: 8,144
Posted By mekat
My 6 year old has microcephaly.  His...

My 6 year old has microcephaly.  His microcephaly is because he has two genetic syndromes both of which cause the brain to form smaller and stay smaller.  His brain is actually structurally normal...
Forum: Special Needs Parenting   07-09-2011, 11:24 AM
Replies: 14
Views: 1,510
Posted By mekat
If you feel strongly about this you may want to...

If you feel strongly about this you may want to become familiar with your school district's policies.  Some require each special ed student (yes even special ed students in preschool) to have...
Forum: Special Needs Parenting   07-08-2011, 10:25 PM
Replies: 14
Views: 1,510
Posted By mekat
   Quote:Originally Posted by...


 
Quote:Originally Posted by hannahgrace http://www.mothering.com/community/img/forum/go_quote.gif...
Forum: Special Needs Parenting   07-06-2011, 08:42 AM
Replies: 14
Views: 1,510
Posted By mekat
I am going to be honest and say I am stunned you...

I am going to be honest and say I am stunned you think a wheelchair is going to impede development.  You are the parent if you know your child can use a walker or gait trainer for an outing vs a...
Forum: Special Needs Parenting   02-08-2011, 11:36 PM
Replies: 25
Views: 935
Posted By mekat
I'm sorry to hear about what you are going...

I'm sorry to hear about what you are going though.  I really think now is a good time to speak to an OT or behavioral therapist.  Dealing with special needs kids is drastically different as you are...
Forum: Special Needs Parenting   11-30-2010, 10:05 AM
Replies: 1
Views: 367
Posted By mekat
My son has it.  He has a permanent colostomy.  I...

My son has it.  He has a permanent colostomy.  I highly doubt your ds will go through what we have gone through since my son's is a result of his 7q deletion/monosomy syndrome.  Because his GI tract...
Forum: Special Needs Parenting   11-15-2010, 09:58 PM
Replies: 26
Views: 2,563
Posted By mekat
The chair looks fantastic!  I hope your kiddo is...

The chair looks fantastic!  I hope your kiddo is enjoying it.  What a cute idea with the stickers.  I had looked at wheel inserts previously and never cared for the designs since so many of them are...
Forum: Parenting   11-15-2010, 09:43 PM
Replies: 162
Views: 31,756
Posted By mekat
I'm the mother of a special needs child and have...

I'm the mother of a special needs child and have an ex that got addicted to crack cocaine.  It started off with stress, then depression and then seeking mental help.  When the mental health system...
Forum: Special Needs Parenting   11-15-2010, 01:08 AM
Replies: 9
Views: 326
Posted By mekat
First off without knowing what issues you are...

First off without knowing what issues you are dealing with it is kind of hard to even know what would work but below is what has worked for me with my son.  To put our discipline into context, my...
Forum: Special Needs Parenting   10-22-2010, 04:01 PM
Replies: 13
Views: 1,043
Posted By mekat
I used to live in Florida and I can tell you it...

I used to live in Florida and I can tell you it is highly doubtful you will get vision therapy from the schools. They don't do vision therapy what they have are vision teachers who help the student...
Forum: Special Needs Parenting   09-05-2010, 05:18 PM
Replies: 15
Views: 1,409
Posted By mekat
My son is in a self contained classroom and we...

My son is in a self contained classroom and we love it. He has moderate to severe developmental delays and significant physical handicaps & medical conditions. I don't want him mainstreamed at all...
Forum: Special Needs Parenting   07-18-2010, 09:02 PM
Replies: 26
Views: 2,563
Posted By mekat
Turn around times for us in the past; ...

Turn around times for us in the past;

Quickie Zippie TS folding frame model w/ custom seating- 4 months we were on private insurance

Tilite YRA w/ custom seating - 6 months Alec only has SSI...
Forum: Special Needs Parenting   07-17-2010, 05:14 AM
Replies: 26
Views: 2,563
Posted By mekat
Congrats! I took a peak at the chair and it...

Congrats! I took a peak at the chair and it looks fantastic! I'm sure he will love it and he will be one of the first in his school to get a brand new chair just launched by Sunrise Medical. Alec...
Forum: Special Needs Parenting   07-16-2010, 06:05 PM
Replies: 10
Views: 680
Posted By mekat
If you belong to a religion often times the...

If you belong to a religion often times the pastor, priest or what ever your religion calls the head of their neighborhood branch will listen and provide a third party to vent to for free. My dad is...
Forum: Special Needs Parenting   07-15-2010, 11:56 PM
Replies: 5
Views: 960
Posted By mekat
I have a child with micro. We haven't done a...

I have a child with micro. We haven't done a head circ measurement recently but he will be 6yo next month and hats designed for six month olds are a tiny bit big on him so his head is extremely...
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