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Forum: Talk Amongst Ourselves   11-16-2009, 04:34 AM
Replies: 55
Views: 1,351
Posted By jackson's mama
Quote: Originally Posted by a-sorta-fairytale...

Quote:
Originally Posted by a-sorta-fairytale http://www.mothering.com/community/img/forum/go_quote.gif (http://www.mothering.com/community/forum/post/14679304)
I saw her walk out of the house in...
Forum: Special Needs Parenting   11-12-2009, 04:41 PM
Replies: 62
Views: 3,471
Posted By jackson's mama
It kind of sounds like you're looking at a Gtube...

It kind of sounds like you're looking at a Gtube as an alternative to night nursing, and that doesn't qualify as medically necessary. I doubt she's going to stop wanting to nurse just because she's...
Forum: Parenting Multiples   11-11-2009, 04:49 AM
Replies: 7
Views: 870
Posted By jackson's mama
Betsy, my girls' middle names are Lillian and...

Betsy, my girls' middle names are Lillian and Katherine http://www.mothering.com/discussions/images/smilies/love.gif. I always smile when I see your sig.
Forum: Parenting Multiples   11-09-2009, 05:12 AM
Replies: 7
Views: 870
Posted By jackson's mama
That definitely would have made me pause as...

That definitely would have made me pause as well!

I was at a fair the other day with my girls and a woman said "Double Trouble!" to me. I kind of rolled my eyes and said, "No, twice as nice!" She...
Forum: Special Needs Parenting   11-09-2009, 04:42 AM
Replies: 4
Views: 438
Posted By jackson's mama
PM'ing you.

PM'ing you.
Forum: Special Needs Parenting   10-03-2009, 04:19 AM
Replies: 2
Views: 246
Posted By jackson's mama
Our placements have always been outpatient. The...

Our placements have always been outpatient. The port can be used immediately. Typically they access the port in surgery to make sure it's working, then deaccess before bringing the child to...
Forum: Special Needs Parenting   09-25-2009, 03:10 PM
Replies: 30
Views: 1,977
Posted By jackson's mama
You've gotten some good advice already. Surgery...

You've gotten some good advice already. Surgery is a drastic step, and it's likely that other interventions will be successful without requiring surgery. (And if surgery is required, it's probably...
Forum: Special Needs Parenting   08-25-2009, 02:52 AM
Replies: 3
Views: 454
Posted By jackson's mama
Hi Angela, My son has Krabbe Disease,...

Hi Angela,

My son has Krabbe Disease, another leukodystrophy. I'm so sorry to hear about your daughter's diagnosis. http://www.mothering.com/discussions/images/smilies/mecry.gif

I know two...
Forum: Birth and Beyond   08-20-2009, 08:40 PM
Replies: 62
Views: 3,234
Posted By jackson's mama
Quote: Originally Posted by preemiemamarach...

Quote:
Originally Posted by preemiemamarach http://www.mothering.com/community/img/forum/go_quote.gif (http://www.mothering.com/community/forum/post/14264532)
I simply DO NOT believe that any of...
Forum: Special Needs Parenting   07-25-2009, 02:54 PM
Replies: 63
Views: 3,318
Posted By jackson's mama
I'm so glad you're making progress and I hope...

I'm so glad you're making progress and I hope you'll update with what happens at the skin clinic. My son also gets severe infections in his eczema - it sounds a lot like what you describe, although...
Forum: Special Needs Parenting   07-25-2009, 02:46 PM
Replies: 5
Views: 435
Posted By jackson's mama
That is awesome.

That is awesome.
Forum: Allergies   07-24-2009, 03:51 AM
Replies: 17
Views: 462
Posted By jackson's mama
Quote: Originally Posted by Shiloh...

Quote:
Originally Posted by Shiloh http://www.mothering.com/community/img/forum/go_quote.gif (http://www.mothering.com/community/forum/post/14131695)
bleach and water.
(ds gets severe infections...
Forum: Special Needs Parenting   06-02-2009, 04:27 AM
Replies: 13
Views: 602
Posted By jackson's mama
My suggestion would be to make as many...

My suggestion would be to make as many appointments with various specialties as you can. Neurology (different than neurosurgery), genetics (the one that specializes in metabolics, even with a longer...
Forum: Special Needs Parenting   05-31-2009, 11:42 PM
Replies: 12
Views: 1,295
Posted By jackson's mama
Quote: Originally Posted by mbravebird...

Quote:
Originally Posted by mbravebird http://www.mothering.com/community/img/forum/go_quote.gif (http://www.mothering.com/community/forum/post/13855442)
The cream/oil aspect of it harbors...
Forum: Special Needs Parenting   05-31-2009, 02:59 AM
Replies: 3
Views: 787
Posted By jackson's mama
I agree, it's worth a call to her ped or...

I agree, it's worth a call to her ped or neurologist. Keep a video camera handy and see if you can catch it on tape - that's always helpful when trying to describe it to the doc.

Hope it's just...
Forum: Special Needs Parenting   05-31-2009, 02:56 AM
Replies: 12
Views: 1,295
Posted By jackson's mama
DS got his first port (port-a-cath) when he was...

DS got his first port (port-a-cath) when he was 2. It was placed on his lower ribs rather than the clavicular area that you generally see with adults. It has worked out great for him! Likes:...
Forum: Special Needs Parenting   04-26-2009, 04:53 AM
Replies: 7
Views: 369
Posted By jackson's mama
That's awesome!! Wow, a high tech communicator...

That's awesome!! Wow, a high tech communicator for $150 (plus the cost of the iPhone and cell service) - that's a pretty great deal. I'm interested to hear how well it works.
Forum: Special Needs Parenting   04-20-2009, 03:10 AM
Replies: 14
Views: 911
Posted By jackson's mama
I don't think it's routine like it is to teach...

I don't think it's routine like it is to teach parents how to care for central lines, but they'll probably train you if you ask (especially if home IV meds/fluids/TPN are going to be involved). The...
Forum: Special Needs Parenting   04-19-2009, 04:21 AM
Replies: 14
Views: 911
Posted By jackson's mama
Quote: Originally Posted by mbravebird...

Quote:
Originally Posted by mbravebird http://www.mothering.com/community/img/forum/go_quote.gif (http://www.mothering.com/community/forum/post/13580462)
A lot of parents I know whose kids have...
Forum: Special Needs Parenting   04-18-2009, 09:22 PM
Replies: 14
Views: 911
Posted By jackson's mama
Jackson is always a bit sore after getting a...

Jackson is always a bit sore after getting a port placed, because they kind of have to 'dig around' to make a spot for it. Nothing that Tylenol w/Codeine can't handle though, and usually only for a...
Forum: Special Needs Parenting   04-09-2009, 07:51 PM
Replies: 20
Views: 750
Posted By jackson's mama
Quote: Originally Posted by 2bluefish...

Quote:
Originally Posted by 2bluefish http://www.mothering.com/community/img/forum/go_quote.gif (http://www.mothering.com/community/forum/post/13526714)
How do you start the process? Is this...
Forum: Special Needs Parenting   04-09-2009, 02:31 AM
Replies: 20
Views: 750
Posted By jackson's mama
What age was your child when they started using...

What age was your child when they started using one? Mid-tech devices at age 2, high tech device at age 3.5
Were they cognitively delayed? No
What reasons did you have for using one? Completely...
Forum: Special Needs Parenting   02-05-2009, 11:14 PM
Replies: 13
Views: 435
Posted By jackson's mama
I think there's a theory out there that in order...

I think there's a theory out there that in order to qualify for speech therapy ALONE a child needs to be of the age where speech would begin to emerge. But for a child with other delays that will...
Forum: Special Needs Parenting   01-28-2009, 10:20 PM
Replies: 47
  g-tube?
Views: 1,696
Posted By jackson's mama
We've had Jackson's G-tube (now a GJ tube) for...

We've had Jackson's G-tube (now a GJ tube) for nearly 4 years now. For us it wasn't really an option, and I don't regret it in the least. I agree with the others that I would choose a G tube over...
Forum: Special Needs Parenting   01-28-2009, 08:51 PM
Replies: 20
Views: 1,271
Posted By jackson's mama
Teacher wrote my phone number down wrong...

Teacher wrote my phone number down wrong yesterday so she didn't call back last night. I kept DS home from school today because he looked like he might be getting pink eye, so I called and left a...
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