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Forum: Special Needs Parenting   09-28-2009, 01:35 PM
Replies: 1
Views: 251
Posted By mama-a-llama
I remember reading here about the possibility of...

I remember reading here about the possibility of this. Looks like someone did it! http://www.proloquo2go.com/
Forum: Special Needs Parenting   09-18-2009, 01:42 AM
Replies: 4
Views: 452
Posted By mama-a-llama
I know, it all seems to fit so well. I was...

I know, it all seems to fit so well. I was really thrown for a loop when the head of the metabolics dept of a major children's hospital said he probably didn't have a metabolic issue. Is 80 percent...
Forum: Special Needs Parenting   09-17-2009, 05:47 PM
Replies: 4
Views: 452
Posted By mama-a-llama
Before starting the blended diet last year we...

Before starting the blended diet last year we trialed foods one at a time, and only used ones that didn't cause reaction.

Dairy is particularly interesting to me, b/c he's never been dairy free....
Forum: Special Needs Parenting   09-17-2009, 12:57 AM
Replies: 4
Views: 452
Posted By mama-a-llama
Background...

Background here:http://www.mothering.com/discussions...d.php?t=979202 (http://www.mothering.com/discussions/showthread.php?t=979202)
The short version is that last July we tried giving ds real food...
Forum: Special Needs Parenting   05-06-2009, 04:40 PM
Replies: 1
Views: 507
Posted By mama-a-llama
Anyone done this? The form has a "professional"...

Anyone done this? The form has a "professional" field required. I could just buy a PECS book, but I'd like to customize.
Forum: Special Needs Parenting   04-14-2009, 08:50 PM
Replies: 3
Views: 265
Posted By mama-a-llama
How/where do you store them? We have some icons...

How/where do you store them? We have some icons that ds's school sent home for us to use. At school they have a sentence strip and they velcro the icons on, so they have velcro on the back. I'm...
Forum: Special Needs Parenting   02-20-2009, 12:02 AM
Replies: 3
Views: 302
Posted By mama-a-llama
Quote: Originally Posted by sbgrace...

Quote:
Originally Posted by sbgrace http://www.mothering.com/community/img/forum/go_quote.gif (http://www.mothering.com/community/forum/post/13222533)
third option? Get connected with a better...
Forum: Special Needs Parenting   02-19-2009, 09:40 PM
Replies: 3
Views: 302
Posted By mama-a-llama
Quick background, we put ds on food in July, by...

Quick background, we put ds on food in July, by Sept he had pretty much crashed. Went back on medical food, started doing better again. Saw metabolic dr who said he almost certainly didn't have a...
Forum: Special Needs Parenting   02-19-2009, 09:34 PM
Replies: 8
Views: 459
Posted By mama-a-llama
This is something that's been really freaking me...

This is something that's been really freaking me out recently. I admit that I don't do a whole ton about preparedness in general, but I do have lots of canned food around since we buy by the case....
Forum: Special Needs Parenting   02-07-2009, 12:46 PM
Replies: 10
Views: 503
Posted By mama-a-llama
http://www.mothering.com/img/vbsmilies/smilies/jo...

http://www.mothering.com/img/vbsmilies/smilies/joy.gif: Those pics look so familiar to me. When ds was doing so poorly on food, in the morning he looked like the afterpoo pic, and by the end of the...
Forum: Special Needs Parenting   01-09-2009, 09:26 PM
Replies: 11
Views: 357
Posted By mama-a-llama
bump for update

bump for update
Forum: Special Needs Parenting   01-08-2009, 02:27 AM
Replies: 11
Views: 357
Posted By mama-a-llama
The sad part is this was the head of the...

The sad part is this was the head of the metabolism dept at a prestigious children's hospital. I have to wonder if he would have been a little more, well, interested if ds was where he was in Oct....
Forum: Special Needs Parenting   01-07-2009, 09:00 PM
Replies: 11
Views: 357
Posted By mama-a-llama
Quote: Originally Posted by preemiemamarach...

Quote:
Originally Posted by preemiemamarach http://www.mothering.com/community/img/forum/go_quote.gif (http://www.mothering.com/community/forum/post/12937393)
I think your doctor made a gross...
Forum: Special Needs Parenting   01-07-2009, 04:41 PM
Replies: 11
Views: 357
Posted By mama-a-llama
And the dr did not think ds has an inborn error...

And the dr did not think ds has an inborn error of metabolism. He said usually individuals with metabolic disease become very ill and have to be taken to the ER b/c they're pretty much comatose. (I...
Forum: Canada   01-01-2009, 07:04 PM
Replies: 7
Views: 4,240
Posted By mama-a-llama
My SIL is living in Toronto at the moment, and...

My SIL is living in Toronto at the moment, and is looking for a midwife who will do homebirths. I don't know if they are on a health plan or not, but I think not.
Any leads?
Forum: Special Needs Parenting   12-10-2008, 09:35 PM
Replies: 7
Views: 252
Posted By mama-a-llama
that doesn't have to have special bolts in the...

that doesn't have to have special bolts in the ceiling, and doesn't cost $80 just for the support bar. Is this possible? Can I just get a standard pressure mounted pullup bar and attach lycra to it?
Forum: Special Needs Parenting   11-13-2008, 01:14 PM
Replies: 7
Views: 316
Posted By mama-a-llama
I haven't managed to contact a specialist. DH...

I haven't managed to contact a specialist. DH got a brand new article through his community college library about therapeutic applications of histone deacytalase (sp?) inhibitors and RTS. Neither of...
Forum: Special Needs Parenting   11-13-2008, 02:58 AM
Replies: 7
Views: 316
Posted By mama-a-llama
So he doesn't have tethered spinal cord....

So he doesn't have tethered spinal cord. http://www.mothering.com/img/vbsmilies/smilies/joy.gif: First thing in the AM I'm calling Biochemical Genetics.
Forum: Special Needs Parenting   11-12-2008, 03:03 AM
Replies: 7
Views: 316
Posted By mama-a-llama
He's always had kind of smelly poop. As a baby...

He's always had kind of smelly poop. As a baby he didn't seem constipated, but on prune juice his poop actually smelled like EBF poop, without it he smelled more yucky. But I think this is worse...
Forum: Special Needs Parenting   11-12-2008, 12:54 AM
Replies: 7
Views: 316
Posted By mama-a-llama
Just lumbar spine. Also his poop smells...

Just lumbar spine.

Also his poop smells terrible. Like guaifenisin sort of, if anyone knows what I mean by that.
Forum: Special Needs Parenting   11-11-2008, 11:25 PM
Replies: 7
Views: 316
Posted By mama-a-llama
And generally seems back to his normal self....

And generally seems back to his normal self. Today is day 4 of Nutren again, and yesterday he seemed to really turn a corner. I didn't expect to see a difference so fast. This is me right now...
Forum: Special Needs Parenting   11-07-2008, 01:47 PM
Replies: 47
Views: 1,879
Posted By mama-a-llama
MRI is scheduled for Wed. We're also going back...

MRI is scheduled for Wed. We're also going back on Nutren as soon as HHC sends it.
Forum: Special Needs Parenting   11-05-2008, 04:36 PM
Replies: 47
Views: 1,879
Posted By mama-a-llama
Quote: Originally Posted by mamaverdi...

Quote:
Originally Posted by mamaverdi http://www.mothering.com/community/img/forum/go_quote.gif (http://www.mothering.com/community/forum/post/12544670)...
Forum: Special Needs Parenting   11-05-2008, 01:39 PM
Replies: 47
Views: 1,879
Posted By mama-a-llama
So we went to the ped yesterday, b/c on our...

So we went to the ped yesterday, b/c on our bathroom scale he'd lost another pound in 2 weeks. Had started walking again some, but then got a cold and stopped again.
The ped agreed we should check...
Forum: Special Needs Parenting   10-24-2008, 04:18 PM
Replies: 47
Views: 1,879
Posted By mama-a-llama
He seems to be improving slowly. He's actually...

He seems to be improving slowly. He's actually started walking some again, although he's still very hesitant. The bloating is definitely better. We took in another stool sample today to check that...
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