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Forum: Special Needs Parenting   12-09-2010, 10:04 AM
Replies: 9
Views: 349
Posted By carrotsprout
   Quote:Originally Posted by...


 
Quote:Originally Posted by BethSLP http://www.mothering.com/community/img/forum/go_quote.gif...
Forum: Special Needs Parenting   12-07-2010, 07:28 PM
Replies: 20
Views: 831
Posted By carrotsprout
"that definitely is cool.  now that you know it...

"that definitely is cool.  now that you know it will reach, please keep your port tube out of your belly button from now on."
Forum: Special Needs Parenting   12-07-2010, 12:12 AM
Replies: 10
Views: 1,372
Posted By carrotsprout
you may want to save a video for future...

you may want to save a video for future reference.  i certainly wouldn't worry about it but i would document it anyway.  hopefully you'll never need it.
Forum: Special Needs Parenting   12-06-2010, 11:45 PM
Replies: 11
Views: 722
Posted By carrotsprout
 Quote:Originally Posted by...



Quote:Originally Posted by gealach http://www.mothering.com/community/img/forum/go_quote.gif...
Forum: Special Needs Parenting   12-06-2010, 11:40 PM
Replies: 11
Views: 722
Posted By carrotsprout
 Quote:Originally Posted by...



Quote:Originally Posted by MotherWhimsey http://www.mothering.com/community/img/forum/go_quote.gif...
Forum: Special Needs Parenting   12-06-2010, 11:35 PM
Replies: 7
Views: 585
Posted By carrotsprout
that is such a great idea!  you inspired me.  i...

that is such a great idea!  you inspired me.  i never thought of taking the list to the doctor.
 
Quote:


I'll try the temperature thing. It would be good to have some hard data to give to his...
Forum: Special Needs Parenting   12-06-2010, 11:25 PM
Replies: 20
Views: 831
Posted By carrotsprout
 Quote:Originally Posted by...



Quote:Originally Posted by Kristine233 http://www.mothering.com/community/img/forum/go_quote.gif...
Forum: Special Needs Parenting   12-06-2010, 11:07 PM
Replies: 0
Views: 162
Posted By carrotsprout
This may be disturbing for some, but it was very...

This may be disturbing for some, but it was very healing for our family.
 
It started as a school assignment and then just evolved to be something more:
 ...
Forum: Special Needs Parenting   12-03-2010, 06:31 PM
Replies: 21
Views: 712
Posted By carrotsprout
you're welcome.  glad you found a walker.  i'm...

you're welcome.  glad you found a walker.  i'm so glad she responded well to the increase in meds.
 
i know you said pt is $400 an hour.  that is seriously a lot of money.  we've paid less per...
Forum: Special Needs Parenting   12-03-2010, 06:20 PM
Replies: 20
Views: 831
Posted By carrotsprout
stop licking the wall!

stop licking the wall!
Forum: Special Needs Parenting   12-03-2010, 06:18 PM
Replies: 7
Views: 585
Posted By carrotsprout
Try checking his temperature before you go...

Try checking his temperature before you go outside and then go back inside and check his temperature again.  It's hard to get a good reading outside. 
 
Yes, we have issues with this.  I just...
Forum: Special Needs Parenting   11-25-2010, 10:55 PM
Replies: 11
Views: 722
Posted By carrotsprout
thanks!  the skin prep stuff isn't rx.  i...

thanks!  the skin prep stuff isn't rx.  i ordered a box of 50 today.  i ordered some of the adhesive removal too. 
 
on the end of your tubing, after the needleless cap, do you use a red cap if...
Forum: Special Needs Parenting   11-25-2010, 05:50 PM
Replies: 11
Views: 601
Posted By carrotsprout
lego mom--in my experience the repeat procedures...

lego mom--in my experience the repeat procedures are often more than just a repeat.  just because the dr didn't "find anything" doesn't mean the same doctor won't find something this time.
 
are...
Forum: Special Needs Parenting   11-24-2010, 11:01 PM
Replies: 21
Views: 712
Posted By carrotsprout
i wish i would have read this earlier :(.  my dd...

i wish i would have read this earlier :(.  my dd has a walker she is not using anymore.  she had a very difficult surgery recovery that made it necessary for a while.  pm me if you want our walker. ...
Forum: Special Needs Parenting   11-24-2010, 10:53 PM
Replies: 11
Views: 601
Posted By carrotsprout
i really should clarify--we waited for four...

i really should clarify--we waited for four years into the search to do the muscle bx.  i just kept thinking it was a fluke.  and another fluke.  and another fluke...
 
i knew the bx was something...
Forum: Special Needs Parenting   11-24-2010, 10:42 PM
Replies: 5
Views: 330
Posted By carrotsprout
WOW! your pump is so tiny!  her pump weighs 14...

WOW! your pump is so tiny!  her pump weighs 14 lbs.  it's a regular hospital type pump.
Forum: Special Needs Parenting   11-24-2010, 10:40 PM
Replies: 17
Views: 729
Posted By carrotsprout
 this is such a good point!  if you are...


this is such a good point!  if you are feeling unsure, go ahead and make that appt.  you will have plenty of time to change your mind!
Quote:Originally Posted by littlest...
Forum: Special Needs Parenting   11-24-2010, 10:35 PM
Replies: 4
Views: 256
Posted By carrotsprout
 Quote:Originally Posted by...



Quote:Originally Posted by sbgrace http://www.mothering.com/community/img/forum/go_quote.gif...
Forum: Special Needs Parenting   11-24-2010, 08:59 PM
Replies: 11
Views: 722
Posted By carrotsprout
oh my goodness.  thank you for all the wonderful...

oh my goodness.  thank you for all the wonderful ideas!  i do think it is one brand that is worse than the other.  unfortunately, i can't remember  for sure which one was used this last...
Forum: Special Needs Parenting   11-24-2010, 01:11 PM
Replies: 4
Views: 256
Posted By carrotsprout
thanks.  i have actually never heard of that. ...

thanks.  i have actually never heard of that.
 
i ended up calling the metabolics/genetics team after that post.  i know that sounds a little crazy, but they do a fantastic job.  they don't get as...
Forum: Special Needs Parenting   11-24-2010, 06:09 AM
Replies: 11
Views: 601
Posted By carrotsprout
i'm glad it was easy for you guys!  honestly,...

i'm glad it was easy for you guys!  honestly, that seems to be the norm.  we expected it to be not so big of a deal.
 
my daughter just did not do well with it at all.  her weakness was so extreme...
Forum: Special Needs Parenting   11-24-2010, 05:52 AM
Replies: 11
Views: 722
Posted By carrotsprout
my poor dd's skin looks so raw from tegaderm...

my poor dd's skin looks so raw from tegaderm patches.   the arms were fine with it, but now that she has a port, the patches really seem to irritate her :(.
 
does anything help this? 
 
i've...
Forum: Special Needs Parenting   11-24-2010, 05:42 AM
Replies: 5
Views: 330
Posted By carrotsprout
oh my!  that must have been a terrible...

oh my!  that must have been a terrible experience!  i'm so glad your son beat the odds!
 
it's a baxter flo-gard 6201. 
 
thanks for the advice.  it appears to have the air sensor sensitive to...
Forum: Special Needs Parenting   11-23-2010, 01:20 AM
Replies: 11
Views: 601
Posted By carrotsprout
 our routine was similar.  only the muscle...


our routine was similar.  only the muscle biopsy brought more questions instead of answers.  mitochondria were normal, sarcoplasmic lysosomes not.  i have mixed feelings about the muscle bx.  the...
Forum: Special Needs Parenting   11-22-2010, 11:54 PM
Replies: 5
Views: 330
Posted By carrotsprout
okay, nevermind.  i figured it out finally. ...

okay, nevermind.  i figured it out finally.  wrong slideclamp.  another part, lol!
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