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Search: Keyword(s): ; Posts Made By: nyveronica
Forum: Special Needs Parenting   06-15-2011, 03:09 PM
Replies: 16
Views: 5,347
Posted By nyveronica
At a Fragile X conference I attended last week,...

At a Fragile X conference I attended last week, there was a whole session on apps for the iPad. It's staggering and amazing what's out there. And to reiterate what another poster said: Instant cool...
Forum: Birth Professionals   10-07-2010, 04:42 PM
Replies: 10
Views: 822
Posted By nyveronica
I teach "birth mapping" in my childbirth...

I teach "birth mapping" in my childbirth classes. One destination, many possible paths. We need to be open to everything, see clearly and sometimes change course.

In my job as an L&D nurse, I...
Forum: Special Needs Parenting   10-07-2010, 03:27 PM
Replies: 22
Views: 1,038
Posted By nyveronica
We use a melatonin spray by Source Naturals that...

We use a melatonin spray by Source Naturals that is sustained release. It's been very, very helpful with our sleepless Fragile X boy
Forum: Special Needs Parenting   09-22-2010, 09:52 AM
Replies: 21
Views: 1,250
Posted By nyveronica
Not at all what I'm saying. Genetics is a lot...

Not at all what I'm saying. Genetics is a lot like math. The information is absolute when it can be pinned to a gene.

Girls with X chromosome disorders can get them from their mother or father....
Forum: Special Needs Parenting   09-22-2010, 08:00 AM
Replies: 21
Views: 1,250
Posted By nyveronica
That's the thing with genetics (and specifically...

That's the thing with genetics (and specifically genetic disorders). Only one gene needs to be affected for there to be a presentation of symptoms.

Moms aren't to "blame" for passing along X...
Forum: Special Needs Parenting   09-18-2010, 10:08 PM
Replies: 21
Views: 1,250
Posted By nyveronica
Being the mother of a Fragile X boy, I found...

Being the mother of a Fragile X boy, I found this article fascinating and I'd love to read the whole abstract of the study.

A side note on genetics: We (mothers) pass and X along to our daughters...
Forum: Special Needs Parenting   09-03-2010, 08:40 PM
Replies: 6
Views: 418
Posted By nyveronica
Are you sure they're properly fit? Our first...

Are you sure they're properly fit? Our first pair wasn't great, they got tweaked and now my 21 month old actually tries to put them on himself.

A few times over the summer we took them off for...
Forum: Special Needs Parenting   09-01-2010, 11:42 PM
Replies: 5
Views: 749
Posted By nyveronica
The physical characteristics are more of a...

The physical characteristics are more of a long-face & large-eared look. Go to www.fragilex.org (http://www.fragilex.org) and look over the Fragile X Foundation's site. It has really good, really...
Forum: Special Needs Parenting   08-31-2010, 10:42 PM
Replies: 5
Views: 749
Posted By nyveronica
My 21 month old son was just diagnosed with...

My 21 month old son was just diagnosed with Fragile X early this summer. First off: Big hugs to you! This is a hard, hard time; all the waiting and wondering. Take it easy on yourself.

Your...
Forum: New York, New Jersey, Pennsylvania   08-22-2010, 06:59 AM
Replies: 21
Views: 2,242
Posted By nyveronica
Quote: Originally Posted by faeriecurls...

Quote:
Originally Posted by faeriecurls http://www.mothering.com/community/img/forum/go_quote.gif (http://www.mothering.com/community/forum/post/15760483)
Where do you work (you can PM me if you...
Forum: New York, New Jersey, Pennsylvania   08-21-2010, 06:13 PM
Replies: 21
Views: 2,242
Posted By nyveronica
It is facility specific. I'm an L&D RN and up...

It is facility specific. I'm an L&D RN and up until a few months ago, the hospital I work in stood staunchly behind the mandate. We now offer parents the right to refuse (just like with hepB newborn...
Forum: Special Needs Parenting   08-21-2010, 06:07 PM
Replies: 115
Views: 11,380
Posted By nyveronica
My youngest child was dx'd with Fragile X...

My youngest child was dx'd with Fragile X Syndrome a few months ago (his cgg repeat is 600). He's 21 months old now and has been getting ST & PT for 7 months. We're phasing out PT now and adding...
Forum: Special Needs Parenting   05-22-2010, 12:38 PM
Replies: 14
Views: 946
Posted By nyveronica
http://www.mothering.com/img/vbsmilies/smilies/jo...

http://www.mothering.com/img/vbsmilies/smilies/joy.gif Fantastic pictures!
Forum: Talk Amongst Ourselves   05-19-2010, 07:59 PM
Replies: 29
Views: 344
Posted By nyveronica
We have three framed charcoal drawings of a nude...

We have three framed charcoal drawings of a nude that hang in our bedroom (I'm the nude, btw). And we also have a large 48"x48" oil painting that depicts two nude women dancing hanging in our dining...
Forum: Allergies   04-07-2009, 04:35 PM
Replies: 15
Views: 647
Posted By nyveronica
My AA has returned as well. I'm 5 months PP...

My AA has returned as well. I'm 5 months PP (didn't happen with my dd's but it's back for the first time in 15 years with my ds).

I'm swirling a bit because I haven't researched this in a while...
Forum: Talk Amongst Ourselves   12-03-2008, 05:34 PM
Replies: 18
Views: 293
Posted By nyveronica
I would absolutely look for a suit that you...

I would absolutely look for a suit that you could wear with a snazzy little shirt or tank-- Do you have a yummy shawl or wrap? I really like that look over a suit jacket at nicer events
Forum: Homebirth   11-14-2008, 10:33 AM
Replies: 25
Views: 850
Posted By nyveronica
L&D nurse here planning homebirth #3. ...

L&D nurse here planning homebirth #3.

Dealing with the questions at work was annoying at times; but I always take them as opportunities to teach-- even the MD's.

At the end, the questions got...
Forum: New York, New Jersey, Pennsylvania   11-13-2008, 05:10 PM
Replies: 7
Views: 354
Posted By nyveronica
Another vote for New Paltz! The then mayor,...

Another vote for New Paltz! The then mayor, Jason West, was the second in the country to faciliate same-sex marriages (right after San Fran)
Forum: New York, New Jersey, Pennsylvania   11-13-2008, 05:08 PM
Replies: 8
Views: 581
Posted By nyveronica
Kingston is actually a rather cool, small city....

Kingston is actually a rather cool, small city. There is a certain suburban aspect to one end, lots of malls and chains, a quaint uptown section (was the former captial of NY and lots of historic...
Forum: News and Current Events Archives   11-11-2008, 11:30 AM
Replies: 4
Views: 164
Posted By nyveronica
Bummer. I hope they stay in business around here...

Bummer. I hope they stay in business around here (where they co-exist quite nicely with 3 other homegrown coffee joints within 3 blocks of each other)
Forum: New York, New Jersey, Pennsylvania   10-11-2008, 01:03 PM
Replies: 4
Views: 359
Posted By nyveronica
Apple & pumpkin picking! There are dozens of...

Apple & pumpkin picking! There are dozens of orchards up here (signs pointing you in the right directions right off of the Thruway/87)
Forum: New York, New Jersey, Pennsylvania   10-09-2008, 09:32 PM
Replies: 10
Views: 2,504
Posted By nyveronica
Couple of things: Vassar absolutely allows...

Couple of things:
Vassar absolutely allows vbacs
Vassar absolutely takes medicaid

They are far more medically minded than Northern D., that's for sure! But it's true: they're both hospitals
Forum: Talk Amongst Ourselves   09-17-2008, 03:22 PM
Replies: 31
Views: 354
Posted By nyveronica
Part & parcel of my own personal crazy. I...

Part & parcel of my own personal crazy.

I do this all the time. Usually: USELESS for me
Forum: November 2008   09-16-2008, 10:41 PM
Replies: 7
Views: 345
Posted By nyveronica
My pregnant self is the only body I am truly,...

My pregnant self is the only body I am truly, truly happy in. I look HAWT
Forum: November 2008   09-16-2008, 10:37 PM
Replies: 23
Views: 486
Posted By nyveronica
I was just saying at work the other night that I...

I was just saying at work the other night that I want to start a website called: Icantstandpickingthingsup.com

I'm still awake right now because I ate less than 3 hours ago and really, really...
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