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Forum: Special Needs Parenting   09-06-2009, 11:38 PM
Replies: 10
Views: 486
Posted By maxymum
I am sorry about your son's seizures. The EEG...

I am sorry about your son's seizures. The EEG can show them lots of info, seizure or no seizure. They can show small seizures that aren't seen, where they are coming from, where they are going to,...
Forum: Special Needs Parenting   08-13-2009, 12:34 AM
Replies: 2
Views: 188
Posted By maxymum
I don't think Keppra has a temp issue??? It is...

I don't think Keppra has a temp issue??? It is kind of a pain, the whole mail-order thing but they always sent me a HUGE bottle compared to the tiny amount from our local pharm. The price was also...
Forum: Special Needs Parenting   08-12-2009, 11:31 AM
Replies: 8
Views: 503
Posted By maxymum
My daughter Charlotte (Dravet Syndrome)...

My daughter Charlotte (Dravet Syndrome) http://charlotteswebpaige.blogspot.com/ was on Keppra for years, starting at 6 months old. We saw some mild side effects at high doses ("Kepprage" and the...
Forum: Special Needs Parenting   08-09-2009, 11:29 AM
Replies: 11
Views: 411
Posted By maxymum
Charlotte takes many many medications. I've...

Charlotte takes many many medications. I've found the valproic acid (syrup) easier to administer, and anything else in a syringe for that matter! If it comes in a tablet or powder, I grind it up,...
Forum: Parenting Multiples   07-31-2009, 07:31 PM
Replies: 4
Views: 419
Posted By maxymum
I also find that planning out the day in advance...

I also find that planning out the day in advance helps. I let the kids choose most of the activities, giving them a couple options each day. Mine have at least one outing a day, meeting up with...
Forum: Parenting Multiples   07-29-2009, 11:30 AM
Replies: 13
Views: 569
Posted By maxymum
My son was 2 when my twins were born. Husband...

My son was 2 when my twins were born. Husband away, no family nearby... One word? Babywearing. I could not have survived without my trusty wraps (mei tais, buckle carriers, pouches, onbus...
Forum: Parenting Multiples   07-29-2009, 11:22 AM
Replies: 18
Views: 1,072
Posted By maxymum
Yes! SO worth it, can't say enough good things...

Yes! SO worth it, can't say enough good things http://www.mothering.com/discussions/images/smilies/thumb.gif Please find one, you won't regret it.
Forum: Parenting Multiples   07-23-2009, 11:20 PM
Replies: 15
Views: 780
Posted By maxymum
We are homeschoolers, too. My oldest is 5 and my...

We are homeschoolers, too. My oldest is 5 and my nursing twins are 2.5, you just have to plan a bit morehttp://www.mothering.com/discussions/images/smilies/thumb.gif
Forum: Parenting Multiples   06-12-2009, 10:53 AM
Replies: 12
Views: 418
Posted By maxymum
we did both. two little seats for each girl and...

we did both. two little seats for each girl and two that attach to the toilet. the small ones got old quick and it was such a chore to clean them out. we now only use the toilet attachment. i think...
Forum: Special Needs Parenting   06-06-2009, 11:50 AM
Replies: 17
Views: 2,003
Posted By maxymum
i'm sorry you are going through such a...

i'm sorry you are going through such a challenging time mama! i don't have any input on your son's possible diagnoses, sorry. i just wanted to say that i think things are less challenging, imo, when...
Forum: Parenting Multiples   06-06-2009, 12:06 AM
Replies: 6
Views: 338
Posted By maxymum
i think that was around the age when i...

i think that was around the age when i encouraged them to start sleeping/nursing with a favorite object; for one it is a stuffed animal (usually 10+) and the other has a special crocheted blanket....
Forum: Special Needs Parenting   06-05-2009, 11:59 PM
Replies: 13
Views: 530
Posted By maxymum
well we cosleep and i also use a baby monitor...

well we cosleep and i also use a baby monitor for those few times when i am not physically with dd. there is a monitor that detects seizures http://www.emfit.com/care/products_c...seizure-alarm/...
Forum: Parenting Multiples   06-02-2009, 12:21 AM
Replies: 15
Views: 969
Posted By maxymum
my baby b was also born first. they switched...

my baby b was also born first. they switched positions at around 39 weeks.
Forum: Special Needs Parenting   05-25-2009, 05:08 PM
Replies: 8
Views: 602
Posted By maxymum
i'm sorry, don't have any experience with nf2. ...

i'm sorry, don't have any experience with nf2.
i find that the seizure med side effects tend to level off after 3 days-two weeks. they sound pretty bad but remember, they probably also gave her a...
Forum: Special Needs Parenting   05-15-2009, 07:32 PM
Replies: 10
Views: 353
Posted By maxymum
ours issues are mostly medical and while we do...

ours issues are mostly medical and while we do take dd to a naturopath, she cannot function as a pcp because she cannot do referrals and prescriptions, which we needs lots of! we still see all of...
Forum: Co-sleeping and the Family Bed   05-15-2009, 10:30 AM
Replies: 5
Views: 322
Posted By maxymum
my 2.5 y/o also has epilepsy. she is up every...

my 2.5 y/o also has epilepsy. she is up every 15-30 minutes at night but for us it is neurological. i didn't think it was for the first 2 years as the drs just said the same about CIO and how it is...
Forum: Special Needs Parenting   05-09-2009, 12:14 AM
Replies: 4
Views: 287
Posted By maxymum
we've had many eegs, in fact, i am just back...

we've had many eegs, in fact, i am just back from an eeg today for my 2.5 y/o. is he breastfeeding? i usually nurse dd while they attach the electrodes. i would be skeptical of the places that...
Forum: Special Needs Parenting   05-04-2009, 07:44 PM
Replies: 12
Views: 513
Posted By maxymum
i know they say "two years" but some doctors...

i know they say "two years" but some doctors will try weaning earlier under perfect conditions. they have to play it safe, of course. hey, at least it is just monotherapy! and i have read that...
Forum: Parenting Multiples   04-16-2009, 06:49 PM
Replies: 23
Views: 1,266
Posted By maxymum
currently at month 30...

currently at month 30 http://www.mothering.com/discussions/images/smilies/redface.gif
Forum: Special Needs Parenting   03-30-2009, 07:27 PM
Replies: 139
Views: 6,205
Posted By maxymum
thinking of you all and so so sorry for your loss

thinking of you all and so so sorry for your loss
Forum: Parenting Multiples   03-27-2009, 01:43 PM
Replies: 13
Views: 429
Posted By maxymum
my twins have slept with me since birth. at...

my twins have slept with me since birth.
at first i side-carred a crib next to my king bed (they slept in it perpendicular to me) though they ended up sleeping on top of me anyways. got rid of the...
Forum: Special Needs Parenting   03-26-2009, 01:40 PM
Replies: 3
Views: 288
Posted By maxymum
my dd also has epilepsy... i would...

my dd also has epilepsy...

i would personally try some natural things first. i was just talking to my acupuncturist/TCM practitioner yesterday about a few children he had recently treated for...
Forum: Parenting Multiples   02-27-2009, 11:17 AM
Replies: 6
Views: 395
Posted By maxymum
congratulations!...

congratulations! http://www.mothering.com/img/vbsmilies/smilies/joy.gif:http://www.mothering.com/img/vbsmilies/smilies/joy.gif:

also...
Having Twins and More, Elizabeth Noble
Mothering...
Forum: Special Needs Parenting   02-25-2009, 12:50 PM
Replies: 15
Views: 385
Posted By maxymum
we also had great success with diet, naturopath...

we also had great success with diet, naturopath and chiropractor. she has not had a status episode or a hospital trip since the day that we eliminated potential allergens from her diet. prior to...
Forum: Parenting Multiples   02-25-2009, 11:59 AM
Replies: 13
Views: 555
Posted By maxymum
http://www.mothering.com/discussions...t=flying+t...

http://www.mothering.com/discussions...t=flying+twins (http://www.mothering.com/discussions/showthread.php?t=1001130&highlight=flying+twins)
here is an old thread about flying with twins...
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