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Forum: Breastfeeding   08-02-2013, 11:42 AM
Replies: 31
Views: 2,529
Posted By devon
I'm taking part in Mothering's "Blog about...

I'm taking part in Mothering's "Blog about Breastfeeding" (http://www.mothering.com/community/a/blog-about-breastfeeding-and-win) by writing about "Mama's Milk"
 
Nursing a toddler – it is...
Forum: Special Needs Parenting   01-30-2013, 01:14 PM
Replies: 20
Views: 2,774
Posted By devon
Check out the Facebook group - Noonan Syndrome...

Check out the Facebook group - Noonan Syndrome Family - https://www.facebook.com/groups/noonanfamily/  It is definitely the most helpful group I have been a part of.
Forum: Family Safety   01-16-2013, 06:55 AM
Replies: 2
Views: 207
Posted By devon
Our garage door broke this morning with our cars...

Our garage door broke this morning with our cars inside.  We have a rental car for today until it can be fixed and our cars rescued and the lovely one they gave us is a 4 seater, fancy looking Fiat....
Forum: Special Needs Parenting   11-28-2012, 05:34 PM
Replies: 5
Views: 278
Posted By devon
Hi Julie, Yes, I'm on both those FB groups -...

Hi Julie,
Yes, I'm on both those FB groups - unfortunately, it seems like this is more related to the CP than the NS as no one else has experienced it.  
 
purplepaisleymama - thanks for your...
Forum: Special Needs Parenting   11-27-2012, 02:36 PM
Replies: 5
Views: 278
Posted By devon
Also - anyone know of a good CP forum for...

Also - anyone know of a good CP forum for parents with kids?  His needs are extremely mild in this regard but I haven't found great resources out there.
Forum: Special Needs Parenting   11-27-2012, 02:35 PM
Replies: 5
Views: 278
Posted By devon
Anyone out there dealing with hip...

Anyone out there dealing with hip subluxation/hip displasia? DS is 3.5 years old.  He has Noonan Syndrome which makes him hypotonic, and mild hemiplagic (right side) cerebral palsy (hypertonic).  ...
Forum: Family Safety   10-24-2012, 11:27 AM
Replies: 5
Views: 294
Posted By devon
Quote:The harmony definitely looks narrow. We...

Quote:The harmony definitely looks narrow. We would prefer a high back booster so DS can fall asleep more easily in it (on long trips, which we take 4-5 per year, plus he'll take short naps on...
Forum: Family Safety   10-23-2012, 05:24 PM
Replies: 5
Views: 294
Posted By devon
We have an '04 corolla and we are able to get a...

We have an '04 corolla and we are able to get a FF Radian, RF Radian, and a Harmony LiteRider booster.  Actually, now we have two FF Radians and the Harmony.  We had a turbobooster and it was a...
Forum: Special Needs Parenting   08-12-2012, 05:25 PM
Replies: 11
Views: 1,172
Posted By devon
Quote:Originally Posted by...

Quote:Originally Posted by Jenga http://www.mothering.com/community/img/forum/go_quote.gif...
Forum: Special Needs Parenting   07-20-2012, 10:28 AM
Replies: 3
Views: 409
Posted By devon
We don't have this exact situation but are...

We don't have this exact situation but are dealing with hi/low tone.  My youngest DS is 3 also - he has global hypotonia (all over) but also has hemiplagic cerebral palsy, so he has increase tone...
Forum: Family Safety   06-22-2012, 04:47 AM
Replies: 6
Views: 285
Posted By devon
I think I do want an infant seat - the baby will...

I think I do want an infant seat - the baby will be born in the winter (cold) and with 3 big siblings and lots of school functions, it will be nice for the early months to just pick up the carrier...
Forum: Family Safety   06-21-2012, 06:39 PM
Replies: 6
Views: 285
Posted By devon
We're pregnant with #4 (yay!) and this is the...

We're pregnant with #4 (yay!) and this is the biggest age gap we'll ever have - almost 4 years.  Our first three kiddos all used the same infant seat, that we got with DS #1, who is almost 8.  There...
Forum: Special Needs Parenting   05-11-2012, 11:38 AM
Replies: 3
Views: 234
Posted By devon
In all the states I've lived in (OH, WI, IN), EI...

In all the states I've lived in (OH, WI, IN), EI ends the day they turn 3, and the school district picks up.  There is not allowed to be any delay in service.  If you kiddo turns 3 with 2 days left...
Forum: Allergies   03-14-2012, 04:18 PM
Replies: 6
Views: 515
Posted By devon
My son has Eosinophilic Esophagitis, an EGID...

My son has Eosinophilic Esophagitis, an EGID (eosinophilic gastrointestinal disorder).  We travel 3 hours to go to Cincinnati Children's Hospital, which has one of the top eosinophilic clinics in...
Forum: I'm Pregnant   02-28-2012, 10:31 AM
Replies: 5
Views: 528
Posted By devon
A friend of mine had to have part of a tube (I...

A friend of mine had to have part of a tube (I think..) removed due to gangrene when she was 6.  After her third pregnancy, she got a tubal done.  However, afterwards the doctor told her that they...
Forum: Special Needs Parenting   02-22-2012, 03:07 PM
Replies: 12
Views: 717
Posted By devon
We have used balance bikes with our two oldest...

We have used balance bikes with our two oldest boys.  We started them on the balance bike around 2.5-3, and by 4 they were riding their bike without training wheels.  They probably could have...
Forum: Special Needs Parenting   02-12-2012, 11:10 AM
Replies: 78
Views: 2,868
Posted By devon
I would also lean in trying the Prilosec -...

I would also lean in trying the Prilosec - because it is a PPI.  But, like you said, you have a history of problems with medications, so it's something to consider.  Did you talk to the doctor about...
Forum: Special Needs Parenting   01-25-2012, 09:26 AM
Replies: 7
Views: 911
Posted By devon
I'd do PediaSmart before I do PediaSure.    ...

I'd do PediaSmart before I do PediaSure. 
 
http://www.naturesone.com/pediasmart-dairy/
 
It's organic, non GMO, and other good things.  If I had to pick something, I would try that.  It's not...
Forum: Special Needs Parenting   01-20-2012, 12:42 PM
Replies: 78
Views: 2,868
Posted By devon
Yes - definitely get a different GI.  We saw two...

Yes - definitely get a different GI.  We saw two before we found one that I felt like actually listened to us, and gave us the right information (and that was WITH having an EE diagnosis). 
 
If...
Forum: Special Needs Parenting   01-18-2012, 01:18 PM
Replies: 78
Views: 2,868
Posted By devon
I have a kiddo with EE, and I definitely think...

I have a kiddo with EE, and I definitely think that going to a GI is the way to go.  They WILL likely suggest an PPI (like prevacid) and then an endoscope.  An elemental diet may be warranted (it...
Forum: Special Needs Parenting   12-10-2011, 06:14 PM
Replies: 5
Views: 657
Posted By devon
Kelly - I recognize you from the Noonan group -...

Kelly - I recognize you from the Noonan group - I think we might have met at the conference?
 
Thanks for all the replies.  We ended up going and kept working with him and overall, it's going...
Forum: Family Safety   12-02-2011, 04:09 PM
Replies: 6
Views: 759
Posted By devon
We have a 2004 Toyota Corolla as our 'second'...

We have a 2004 Toyota Corolla as our 'second' car - our primary kid vehicle is a Honda Odyssey.  We currently have a FF Sunshine Radian 65 behind the driver, a RF Radian in the middle, and a...
Forum: Special Needs Parenting   11-20-2011, 06:41 PM
Replies: 5
Views: 657
Posted By devon
My little guy is 32 months old.  He's my 3rd DS,...

My little guy is 32 months old.  He's my 3rd DS, so I've potty trained 2 other boys successfully.
 
This little guy has a mild case of cerebral palsy, as well as a genetic condition called Noonan...
Forum: Family Safety   10-29-2011, 11:38 AM
Replies: 9
Views: 308
Posted By devon
We have a corolla (so small) and we ran into...

We have a corolla (so small) and we ran into more issues of where we could have the RF seat and still have someone sit in the front seat :)  For awhile, we had 2 radians FF and then a Britax...
Forum: Special Needs Parenting   10-28-2011, 12:48 PM
Replies: 78
Views: 2,868
Posted By devon
BonnieNova, I'm sorry for all the sadness and...

BonnieNova, I'm sorry for all the sadness and pain you are all going through.  I hope that the c.s. works.
 
As far as checking for e.e. -  the only way to do that is to have an endoscope done. ...
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