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Search: Keyword(s): ; Posts Made By: jondee0
Forum: Special Needs Parenting   04-19-2013, 04:01 PM
Replies: 10
Views: 426
Posted By jondee0
As much as I know that my kids came to me with...

As much as I know that my kids came to me with their own particular hardwiring, and as much as I know that dh and I are, overall, pretty good parents, I still do have those moments of wondering,...
Forum: Special Needs Parenting   07-14-2012, 12:39 PM
Replies: 20
Views: 3,155
Posted By jondee0
Congratulations on your...

Congratulations on your baby http://files.mothering.com/images/smilies/smile.gif!  I can only imagine what you're feeling right now. My son has Down syndrome, but his was a postpartum diagnosis, so...
Forum: Special Needs Parenting   07-07-2012, 09:59 PM
Replies: 9
Views: 2,307
Posted By jondee0
Aw, he's so cute!!!!   I have a son with...

Aw, he's so cute!!!!
 
I have a son with Down syndrome, and have seen lots and lots of babies with Down syn., or pictures of babies with Down, over the past 13 years. If you hadn't posted your...
Forum: Special Needs Parenting   05-02-2012, 04:54 PM
Replies: 6
Views: 987
Posted By jondee0
If a wheelchair will help your son participate...

If a wheelchair will help your son participate more fully and safely in group activities, and if he's willing to try it, I'd say go with the wheelchair. I can understand not wanting to go backwards...
Forum: Special Needs Parenting   04-29-2012, 12:32 PM
Replies: 2
Views: 319
Posted By jondee0
The Tourette Syndrome Association website might...

The Tourette Syndrome Association website might be helpful for you:
 
http://www.tsa-usa.org  
 
My son does have Tourette syndrome (he was diagnosed about a month ago, but I'd strongly...
Forum: Special Needs Parenting   04-18-2012, 02:46 PM
Replies: 28
Views: 1,419
Posted By jondee0
I've been in that position several times now....

I've been in that position several times now. When we finally received a diagnosis for our almost-2-yr old daughter (now 15), it was a huge relief, because it meant that some very serious, very...
Forum: Special Needs Parenting   03-26-2012, 06:03 PM
Replies: 15
Views: 453
Posted By jondee0
One of my younger sister's greatest stresses...

One of my younger sister's greatest stresses when she was a child, she's told me, is that no one addressed with her the fact that she had Tourette syndrome until she was a teen. Just knowing why she...
Forum: Special Needs Parenting   03-23-2012, 06:15 PM
Replies: 2
Views: 309
Posted By jondee0
My 7 1/2-yr old was diagnosed yesterday. It was...

My 7 1/2-yr old was diagnosed yesterday. It was really no surprise, because I grew up with a younger sister who has Tourette, and Micah has many, many of the same motor and vocal tics that I've seen...
Forum: Special Needs Parenting   05-30-2011, 05:57 PM
Replies: 35
Views: 12,277
Posted By jondee0
My 12-yr old started taking Risperdal...

My 12-yr old started taking Risperdal (risperidone) back when he was 8 or 9---a little older than your child, I know. We started it after a long visit with a pedi psychiatrist when we were...
Forum: Special Needs Parenting   12-31-2010, 01:49 PM
Replies: 9
Views: 806
Posted By jondee0
I don't post here too often these days, but I...

I don't post here too often these days, but I have a son with Down syndrome. He's 11 yrs old and is quite the cool kid http://files.mothering.com/images/smilies/smile.gif. I was devastated when he...
Forum: Special Needs Parenting   03-08-2010, 03:39 PM
Replies: 115
Views: 11,593
Posted By jondee0
Two of our nine kids are extra-unique. Our 13-yr...

Two of our nine kids are extra-unique. Our 13-yr old daughter has congenital hydromyelia (essentially, an abnormal enlargement of the central canal of the spinal cord, which caused under-development...
Forum: Special Needs Parenting   03-08-2010, 03:26 PM
Replies: 18
Views: 878
Posted By jondee0
Michaela's had quite a few, and they've all gone...

Michaela's had quite a few, and they've all gone pretty well. All of hers except her most recent, when she was 12 and able to handle it awake, have been with conscious sedation via IV. We had issues...
Forum: Special Needs Parenting   02-25-2010, 02:43 PM
Replies: 12
Views: 738
Posted By jondee0
I agree with celebrating the arrival of a new...

I agree with celebrating the arrival of a new baby; issues or not, diagnosis or not, this is a new life, worthy of celebrating!

I would add, though, that I really needed people to acknowledge...
Forum: Special Needs Parenting   02-19-2010, 08:15 PM
Replies: 3
Views: 1,277
Posted By jondee0
Amazing. Beautiful, honest, so full of love....

Amazing. Beautiful, honest, so full of love. Just amazing.

Joni and kids, incl. Michaela http://www.mothering.com/img/vbsmilies/smilies/wheelchair.gif, 13, funky spinal cord, and Gabe...
Forum: Special Needs Parenting   01-16-2010, 10:46 PM
Replies: 15
Views: 1,436
Posted By jondee0
The variations in MRI protocol are interesting....

The variations in MRI protocol are interesting. My daughter's had numerous MRIs of her spine, the first being when she was 17 months old, the most recent when she was 12. For all except the most...
Forum: Special Needs Parenting   01-16-2010, 10:25 PM
Replies: 23
Views: 1,153
Posted By jondee0
I'm sorry; I know how scary this can be. My son...

I'm sorry; I know how scary this can be. My son had IS, and I hated what it did to him, hated having to give him powerful meds, hated not knowing what his outcome would be. He does have a happy...
Forum: Special Needs Parenting   12-17-2009, 11:37 PM
Replies: 6
Views: 628
Posted By jondee0
My son also has Ds and autism, but he's a little...

My son also has Ds and autism, but he's a little younger than your nephew (he's 10). He loves all kinds of sensory toys, from squishy balls to shaker sticks (what are they called? Rainsticks?). He...
Forum: Special Needs Parenting   12-03-2009, 02:01 AM
Replies: 12
Views: 607
Posted By jondee0
It really is tough to find yourself considering...

It really is tough to find yourself considering serious medications, especially if you normally choose a "natural" and healthy lifestyle. But we did have to look into meds for our son, and the main...
Forum: Special Needs Parenting   11-23-2009, 07:18 PM
Replies: 24
Views: 2,237
Posted By jondee0
I'm in northern CA, top of the state. We've...

I'm in northern CA, top of the state. We've gotten what I think are excellent services for our son, especially from our local regional center. The school district has been OK; we've had to really...
Forum: Special Needs Parenting   11-08-2009, 02:33 AM
Replies: 23
Views: 2,799
Posted By jondee0
We learned at 31 weeks that our unborn baby had...

We learned at 31 weeks that our unborn baby had a 1-in-3 chance of having Down syndrome, and we were offered amnio or PUBS (umbilical cord sampling) at that time. We had the same question about...
Forum: Special Needs Parenting   07-09-2009, 09:41 PM
Replies: 7
Views: 406
Posted By jondee0
MRIs can be useful, but I understand your...

MRIs can be useful, but I understand your concern about the sedation used for little ones. My daughter's had many MRIs (spine or spine and brain), and having her get "knocked out" (they've always...
Forum: VBAC   07-07-2009, 03:08 AM
Replies: 25
Views: 1,666
Posted By jondee0
My last baby was an unmed vbac at our local...

My last baby was an unmed vbac at our local community hospital. It was an odd labor, but a nice birth...two nights before my due date, right around midnight, I had a contraction, a real contraction...
Forum: Special Needs Parenting   06-03-2009, 10:15 PM
Replies: 10
Views: 448
Posted By jondee0
What great pictures; Linden looks like he's...

What great pictures; Linden looks like he's feeling so good! I'm so glad this has gone so well, and I hope and pray the rest of the infusions do, too!

Joni and kids, incl. Gabe and Michaela
Forum: Special Needs Parenting   05-18-2009, 04:12 PM
Replies: 1
Views: 512
Posted By jondee0
http://www.mothering.com/discussions/images/smili...

http://www.mothering.com/discussions/images/smilies/thumb.gifhttp://www.mothering.com/discussions/images/smilies/thumb.gifhttp://www.mothering.com/discussions/images/smilies/thumb.gifhttp://www.mothe...
Forum: Special Needs Parenting   05-02-2009, 07:08 PM
Replies: 16
Views: 485
Posted By jondee0
Hooray!!!!!!!! I hope Max heals super quickly...

Hooray!!!!!!!! I hope Max heals super quickly and you all are home soon. I'm glad you posted; I'd been thinking about Max!

http://www.mothering.com/img/vbsmilies/smilies/joy.gif:

Joni and...
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