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Forum: Frugality & Finances   03-18-2011, 06:56 PM
Replies: 96
Views: 3,083
Posted By RoadWorkAhead
Joining in, though not strictly a DR follower. ...

Joining in, though not strictly a DR follower.  We're in a weird spot right now, and I think we're basically not in a step? 
 
Right now, we have $$ in savings (~$3200) but $1500 is going to...
Forum: NICU & Preemie Parenting   12-19-2010, 05:23 PM
Replies: 11
Views: 2,327
Posted By RoadWorkAhead
DS2 was not in daycare and breastfed, born at...

DS2 was not in daycare and breastfed, born at home, non-vaccinated (at the time), and spent 5 days in-patient on o2 with RSV at 3 months old.  His 2 year old sister brought it home to him, and she...
Forum: Special Needs Parenting   08-12-2010, 03:04 PM
Replies: 10
Views: 1,300
Posted By RoadWorkAhead
DD has had developed full immunity to DTaP...

DD has had developed full immunity to DTaP (well, TD are the titres checked) within normal dose ranges. The titres will be followed to monitor any possible drops. She specifically didn't respond to...
Forum: Special Needs Parenting   08-12-2010, 11:01 AM
Replies: 10
Views: 1,300
Posted By RoadWorkAhead
The lack of vaccination titres may make it...

The lack of vaccination titres may make it impossible to diagnose his specific issues. Until we vax'd DD, we had no specific proof of an immune issue despite chronic infections that appeared to be...
Forum: Special Needs Parenting   12-10-2009, 02:41 PM
Replies: 4
Views: 318
Posted By RoadWorkAhead
Well, I would imagine anyone's stomach feels...

Well, I would imagine anyone's stomach feels weird on a new diet by a new method. HOw much is she getting and how often? What are her specific complants? Loose or too formed stools are common on any...
Forum: Special Needs Parenting   12-09-2009, 04:13 PM
Replies: 3
Views: 435
Posted By RoadWorkAhead
I have no idea. I know that DD has a higher...

I have no idea. I know that DD has a higher propensity for luekemia due to her chromo deletion, but I never thought about that part!!
Forum: Special Needs Parenting   12-09-2009, 04:11 PM
Replies: 4
Views: 318
Posted By RoadWorkAhead
Loose green stool (and the reverse) can both be...

Loose green stool (and the reverse) can both be normal. She could have the flu. Remember, her nasal passages are now irritated by the tube so she's probably a little more susceptible right now. That...
Forum: Frugality & Finances   11-30-2009, 04:27 PM
Replies: 115
Views: 4,061
Posted By RoadWorkAhead
I'm still stuck in BS#2. This weekend I landed...

I'm still stuck in BS#2. This weekend I landed in the ER after trying urgent care. I expect to pay through the nose for this since I've got the deductible plus my portion to cover. However, by the...
Forum: Special Needs Parenting   11-28-2009, 02:55 PM
Replies: 9
Views: 4,736
Posted By RoadWorkAhead
Quote: Originally Posted by Kristine233...

Quote:
Originally Posted by Kristine233 http://www.mothering.com/community/img/forum/go_quote.gif (http://www.mothering.com/community/forum/post/14729386)
Hmmm, my child would not be placed in an...
Forum: Special Needs Parenting   11-28-2009, 02:49 PM
Replies: 6
Views: 579
Posted By RoadWorkAhead
Considering they are all very well studied and...

Considering they are all very well studied and given to some very medically fragile children, you can rest assured they are quite high quality wise. It is not right to say they are made of "corn...
Forum: Special Needs Parenting   11-28-2009, 02:43 PM
Replies: 18
Views: 3,002
Posted By RoadWorkAhead
http://www.brightbeginnings.com/prod...ric-drink....

http://www.brightbeginnings.com/prod...ric-drink.aspx (http://www.brightbeginnings.com/product-soy-pediatric-drink.aspx)

Take them that. Per that, BB Soy is Federally Wic approved, and states are...
Forum: Special Needs Parenting   11-26-2009, 02:16 AM
Replies: 9
Views: 4,736
Posted By RoadWorkAhead
TEFRA was the act passed that allowed states to...

TEFRA was the act passed that allowed states to choose to have a Katie Beckett program. So yeah, same thing.
Forum: Special Needs Parenting   11-25-2009, 07:05 PM
Replies: 9
Views: 4,736
Posted By RoadWorkAhead
Its a medicaid program currently available in 20...

Its a medicaid program currently available in 20 states, including yours, that allows a child who would otherwise require an institution to receive medicaid based on their income and assets alone...
Forum: Special Needs Parenting   11-25-2009, 07:54 AM
Replies: 86
Views: 15,343
Posted By RoadWorkAhead
While this is bumped, I'll add us to the list....

While this is bumped, I'll add us to the list. DD was just diagnosed with a 16p11.2 microdeletion. She has some odd medical problems that aren't typical for her deletion so far as I've found. We're...
Forum: Special Needs Parenting   11-18-2009, 05:07 PM
Replies: 62
Views: 3,340
Posted By RoadWorkAhead
Quote: Originally Posted by Liba613...

Quote:
Originally Posted by Liba613 http://www.mothering.com/community/img/forum/go_quote.gif (http://www.mothering.com/community/forum/post/14687283)
Am I the only one who gave up co-sleeping...
Forum: Special Needs Parenting   11-18-2009, 04:56 PM
Replies: 7
Views: 458
Posted By RoadWorkAhead
Sambucol (elderberry syrup) is a go to here....

Sambucol (elderberry syrup) is a go to here. Also, what are they doing for the reflux? Have you considered surgery or other means to control it? Have you done scoping to rule out other causes of...
Forum: Frugality & Finances   11-18-2009, 03:19 PM
Replies: 142
Views: 3,956
Posted By RoadWorkAhead
Send us some good thoughts. DH is working for 2...

Send us some good thoughts. DH is working for 2 days this week, and we got official confirmation that its "pre-shutdown" work which means the shut down is around the corner. DH has worked at this...
Forum: Special Needs Parenting   11-16-2009, 11:21 AM
Replies: 13
Views: 1,203
Posted By RoadWorkAhead
HOnestly, at this point? I'd see if I could find...

HOnestly, at this point? I'd see if I could find a way to do 100% elecare, but first - have you gone completely top 8 free? Melatonin likely has ingredients in it that are not top 8 compatible. I'd...
Forum: Special Needs Parenting   11-15-2009, 06:24 PM
Replies: 62
Views: 3,340
Posted By RoadWorkAhead
Yeah, we've had ours 2 years this January. We've...

Yeah, we've had ours 2 years this January. We've not had such an easy road. SO far, we've had the emergency room visit when she yanked her own tube at only 4 weeks post surgery, countless accidental...
Forum: Special Needs Parenting   11-14-2009, 04:18 PM
Replies: 11
Views: 930
Posted By RoadWorkAhead
My experience was that elemental diet = feeding...

My experience was that elemental diet = feeding tube, but at your child's age, that feeding tube could be NG. I do know some children will take it orally but its not common that they drink enough...
Forum: Special Needs Parenting   11-13-2009, 02:41 PM
Replies: 62
Views: 3,340
Posted By RoadWorkAhead
I think you're confused on how helpful a tube...

I think you're confused on how helpful a tube will be. I might sleep in slightly longer chunks, but its a rare night I get more than 3 hours at a stretch with DD, and now when she wakes, its...
Forum: Special Needs Parenting   11-05-2009, 12:03 PM
Replies: 56
Views: 4,292
Posted By RoadWorkAhead
It doesn't matter if there's a name, what...

It doesn't matter if there's a name, what matters is its effect on normal life activities. B/c eating is a normal life activity that DD can not take part in effectively, she qualifies. We don't have...
Forum: Frugality & Finances   11-05-2009, 12:00 PM
Replies: 16
Views: 2,546
Posted By RoadWorkAhead
If you are only 5k above the poverty level, then...

If you are only 5k above the poverty level, then you qualify for F/S's. The FPL for a family of 6 is 29,530/yr. So you'd be at 116-117% of the FPL, and the food stamp cut off is 185%. Its worth...
Forum: Frugality & Finances   11-05-2009, 11:53 AM
Replies: 215
Views: 4,690
Posted By RoadWorkAhead
I'm in again. We only did 3 meals out last...

I'm in again. We only did 3 meals out last month, and 2 were planned for. Still have 6 unplanned meals, but I find leftovers and such tend to fill in a few extra days

1- sloppy joe rotini
2-...
Forum: Frugality & Finances   11-03-2009, 02:26 PM
Replies: 142
Views: 3,956
Posted By RoadWorkAhead
Well, we're surviving despite the job loss. I...

Well, we're surviving despite the job loss. I made DH sit down and come up with a very finite plan to get in some final training in his field so that when he achieves journeyman status in April,...
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