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Forum: The Childhood Years   03-03-2012, 10:11 PM
Replies: 51
Views: 3,826
Posted By SiobhanAoife
I do not think that it is rude to post photos of...

I do not think that it is rude to post photos of your child's birthday party on Facebook. I would hope that the people who have bothered to friend me would be glad that my daughter had a nice party....
Forum: Special Needs Parenting   02-29-2012, 01:00 PM
Replies: 16
Views: 1,099
Posted By SiobhanAoife
Cornelia,   Thank you for your words. My...

Cornelia,
 
Thank you for your words. My heart is with you and your family.
Forum: Special Needs Parenting   02-23-2012, 09:54 PM
Replies: 12
Views: 718
Posted By SiobhanAoife
Thank you, all of you.   I get embarrassed...

Thank you, all of you.
 
I get embarrassed after posting something so emotional, so it takes me a while to acknowledge people's responses, but I read them as you write them and they mean a lot to...
Forum: Special Needs Parenting   02-18-2012, 10:18 PM
Replies: 12
Views: 718
Posted By SiobhanAoife
I am irritated by my daughter's situation. She...

I am irritated by my daughter's situation. She has cystic fibrosis, and has just gotten her first bad chest x-ray and been put on a bunch of twice-daily, lengthy, unpleasant medical treatments - you...
Forum: Special Needs Parenting   12-16-2011, 09:42 PM
Replies: 16
Views: 1,099
Posted By SiobhanAoife
Mothers of children with terminal or...

Mothers of children with terminal or life-shortening diagnoses, please, speak to me.
 
My daughter has a cough and I am grieving. This is wrong, this is unreal, this is not what nature intended....
Forum: Special Needs Parenting   08-27-2011, 08:56 PM
Replies: 2
Views: 434
Posted By SiobhanAoife
I know this community has a lot of collective...

I know this community has a lot of collective experience with 504 plans, so I thought I might get some insight here.
 
My kid has cystic fibrosis, a disease that is progressive, eventually...
Forum: Family Safety   08-12-2011, 09:06 AM
Replies: 5
Views: 764
Posted By SiobhanAoife
I have a True Fit Premier 670 car seat in my...

I have a True Fit Premier 670 car seat in my husband's car, which was our only car until quite recently. It's been a great seat, and I did a bunch of research about it at the time.
 
But now I...
Forum: Special Needs Parenting   12-25-2010, 11:55 PM
Replies: 18
Views: 1,032
Posted By SiobhanAoife
 Quote: Originally Posted by...


Quote:
Originally Posted by Peony http://www.mothering.com/community/img/forum/go_quote.gif...
Forum: Life with a Toddler   11-26-2010, 11:11 PM
Replies: 69
Views: 2,605
Posted By SiobhanAoife
So far my 25-month-old watches no television,...

So far my 25-month-old watches no television, with the sole exception of having seen Word World once when we were stuck in the emergency room for several hours of observation.
 
But she has been...
Forum: Special Needs Parenting   11-06-2010, 05:06 PM
Replies: 34
Views: 1,315
Posted By SiobhanAoife
I am really grateful that this forum is here. I...

I am really grateful that this forum is here. I know that there's someplace I can let out the dark parts without scaring away all the nice moms with healthy kids who are afraid to look (not that I...
Forum: Special Needs Parenting   11-06-2010, 04:11 AM
Replies: 34
Views: 1,315
Posted By SiobhanAoife
My daughter was diagnosed with something awful 2...

My daughter was diagnosed with something awful 2 years ago, when she was 5 weeks old (cystic fibrosis).

Everything since then, everything, has been outrageously positive -- her genetic tests...
Forum: Special Needs Parenting   11-06-2010, 04:00 AM
Replies: 8
Views: 1,587
Posted By SiobhanAoife
Don't know about how to enrich real foods for...

Don't know about how to enrich real foods for her, but wanted to mention that PediaSmart is an organic competitor to Pediasure, and you might want to check that out.
Forum: Life with a Toddler   10-17-2010, 03:39 AM
Replies: 25
Views: 2,984
Posted By SiobhanAoife
If you try all the whole foods sorts of things...

If you try all the whole foods sorts of things and they don't work for you and you decide to do Pediasure, you might want to first consider PediaSmart, which is a competing product that is organic...
Forum: Special Needs Parenting   10-17-2010, 02:38 AM
Replies: 17
Views: 1,421
Posted By SiobhanAoife
Hi. My child has a very different...

Hi.

My child has a very different diagnosis, but hearing it when she was 5 weeks old sent me into a very painful place for... I'm not sure how long, it kind of blurs. You are not the only one to...
Forum: Special Needs Parenting   10-09-2010, 12:55 PM
Replies: 12
Views: 1,215
Posted By SiobhanAoife
If your child's CFTR function (which is...

If your child's CFTR function (which is partially impaired in CF carriers, though in theory not enough to cause symptoms the vast majority of the time) is causing pancreatic insufficiency (which can...
Forum: Life with a Toddler   10-09-2010, 03:16 AM
Replies: 30
Views: 1,473
Posted By SiobhanAoife
My daughter calls me "Mommy Mama"...

My daughter calls me "Mommy Mama" http://www.mothering.com/discussions/images/smilies/smile.gif
Forum: Family Safety   09-16-2010, 02:10 AM
Replies: 32
Views: 1,206
Posted By SiobhanAoife
I had to fight with a United FA recently to...

I had to fight with a United FA recently to install my daughter's seat rear-facing. She tried to tell me that it was not allowed because it was MUCH less safe and "just think of what would happen in...
Forum: Breastfeeding Beyond Infancy   07-29-2010, 02:33 AM
Replies: 5
Views: 559
Posted By SiobhanAoife
I work very very very part time, and have some...

I work very very very part time, and have some regular childcare so that I can do that and other things like exercise, clean, etc. Think 3-4 hours max at a stretch. That's when she gets the pumped...
Forum: Breastfeeding Beyond Infancy   07-29-2010, 02:00 AM
Replies: 5
Views: 559
Posted By SiobhanAoife
My 22 month old is very attached to her "happy...

My 22 month old is very attached to her "happy milkies" as she calls them, and nurses 4ish times per day (early morning, nap, bedtime, and on demand if not in a preposterous circumstance, which...
Forum: Special Needs Parenting   07-12-2010, 03:16 AM
Replies: 30
Views: 1,998
Posted By SiobhanAoife
I know that people are just trying to make me...

I know that people are just trying to make me feel better, but I wish that people wouldn't respond to anything about my daughter's health with "well, but there's hope! medical advances are coming so...
Forum: Special Needs Parenting   07-12-2010, 03:05 AM
Replies: 8
Views: 759
Posted By SiobhanAoife
Even Alfie Kohn, either in UP or in Punished By...

Even Alfie Kohn, either in UP or in Punished By Rewards (both excellent books), said that using behaviorist methods for potty training was fine because even if it did reduce the child's intrinsic...
Forum: The Childhood Years   07-12-2010, 02:59 AM
Replies: 255
Views: 7,026
Posted By SiobhanAoife
I don't ask my (very young, very verbal)...

I don't ask my (very young, very verbal) daughter to say that she's sorry because she's a toddler - I'd be requiring her to lie! She has, however, picked up several "manners" sorts of phrases simply...
Forum: Family Safety   04-25-2010, 01:09 AM
Replies: 16
Views: 883
Posted By SiobhanAoife
My 34" 23lb 18mo daughter and I are flying...

My 34" 23lb 18mo daughter and I are flying coast-to-coast next week. She has her own seat and I'll be flying with the Scenera carseat because it's so much easier to lug about than her TrueFit.
...
Forum: Special Needs Parenting   04-18-2010, 01:37 AM
Replies: 15
Views: 671
Posted By SiobhanAoife
My daughter doesn't have autism, she has a...

My daughter doesn't have autism, she has a completely different situation, a genetic disease, but what I have to tell you is this: don't internalize any of the doom and gloom you get in handouts...
Forum: Family Safety   04-12-2010, 12:54 PM
Replies: 1
Views: 220
Posted By SiobhanAoife
Hi, I'm having trouble figuring this out, please...

Hi, I'm having trouble figuring this out, please forgive if I'm asking something stupidly obvious as my toddler has my tearing my hair out right now:

We are going to fly coast-to-coast in a...
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