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Forum: Special Needs Parenting   03-15-2011, 01:55 PM
Replies: 9
Views: 488
Posted By MotherWhimsey
He sounds very normal. Walking at 13.5 months is...

He sounds very normal. Walking at 13.5 months is nowhere near late. Anything before 18 months is totally normal.
 
My son wears braces for toe walking but for him it wasn't so much the toe walking...
Forum: Special Needs Parenting   03-14-2011, 07:43 AM
Replies: 2
Views: 424
Posted By MotherWhimsey
I don't know what you guys are willing to do or...

I don't know what you guys are willing to do or not, but my son has an appendicostomy that has been awesome for him. He has poor motility and would get backed up and start puking. He was enema...
Forum: Special Needs Parenting   03-04-2011, 05:10 PM
Replies: 14
Views: 787
Posted By MotherWhimsey
Is she going to be going to the hospital where I...

Is she going to be going to the hospital where I met you once? There IS a down syndrome support group in that area. My little sister has downs and they live in that city. I can ask what resources...
Forum: Special Needs Parenting   03-04-2011, 11:42 AM
Replies: 30
Views: 2,517
Posted By MotherWhimsey
Shoot man, I wish mine were healthy. I don't...

Shoot man, I wish mine were healthy. I don't think that's a bad sentiment at all. Who wouldn't want their baby to be healthy? Doesn't change how much you love them, it just means the child's road is...
Forum: Special Needs Parenting   02-16-2011, 04:41 PM
Replies: 13
Views: 1,740
Posted By MotherWhimsey
Linden got his new AFO's yesterday...   ...

Linden got his new AFO's yesterday...
 
http://www.mothering.com/content/type/61/id/22227/width/1000/height/500 (http://www.mothering.com/content/type/61/id/551046/width/1000/height/800/flags/)
 ...
Forum: Special Needs Parenting   02-08-2011, 06:07 PM
Replies: 0
Views: 161
Posted By MotherWhimsey
So a couple of weeks ago L was in the backseat...

So a couple of weeks ago L was in the backseat of the car and started crying and moaning because he had a really bad stomach ache. This isn't an unusual thing for him, so I told him I was sorry and...
Forum: Special Needs Parenting   01-27-2011, 06:47 PM
Replies: 16
Views: 1,259
Posted By MotherWhimsey
 Quote:Originally Posted by Earth...



Quote:Originally Posted by Earth Momma http://www.mothering.com/community/img/forum/go_quote.gif...
Forum: Special Needs Parenting   01-24-2011, 10:00 AM
Replies: 3
Views: 200
Posted By MotherWhimsey
My son is one of the weird ones that has funky...

My son is one of the weird ones that has funky labs in a not typical mito fashion. He usually has lactic alkalosis (much more common in mito to have lactic acidosis) although in looking over his old...
Forum: Special Needs Parenting   01-19-2011, 11:55 AM
Replies: 16
Views: 1,259
Posted By MotherWhimsey
http://www.youtube.com/watch?v=D2Z04X86mLw

http://www.youtube.com/watch?v=D2Z04X86mLw
Forum: Special Needs Parenting   01-19-2011, 11:53 AM
Replies: 16
Views: 1,259
Posted By MotherWhimsey
we blended food for a while. We got a vita mix...

we blended food for a while. We got a vita mix and had a log of how many calories, protein, fat, etc he needed. Then I found foods and put them in the vitamix until he met those requirements, added...
Forum: Special Needs Parenting   01-13-2011, 05:32 PM
Replies: 4
Views: 598
Posted By MotherWhimsey
it just takes a bit to adjust back to home life....

it just takes a bit to adjust back to home life. The hospital is traumatizing but they seem to get over it a lot faster than the parents do. My kid has been in the hospital a lot and he's done okay...
Forum: Special Needs Parenting   01-13-2011, 03:57 PM
Replies: 13
Views: 1,740
Posted By MotherWhimsey
oh cool! I didn't know you could get softies...

oh cool! I didn't know you could get softies with the hinged kind.
Forum: Special Needs Parenting   01-13-2011, 06:53 AM
Replies: 13
Views: 1,740
Posted By MotherWhimsey
 Quote:Originally Posted by...



Quote:Originally Posted by beenmum http://www.mothering.com/community/img/forum/go_quote.gif (http://www.mothering.com/community/forum/thread/1290836/hinged-or-non-hinged-afos#post_16182852)
...
Forum: Special Needs Parenting   01-11-2011, 04:24 PM
Replies: 13
Views: 1,740
Posted By MotherWhimsey
We've always used DAFOs but we've never done...

We've always used DAFOs but we've never done hinged. We may not get those, I don't know, but his PT was saying that was an option this time. I'm not sure if we'll do it or not, I just don't know...
Forum: Special Needs Parenting   01-11-2011, 10:36 AM
Replies: 13
Views: 1,740
Posted By MotherWhimsey
http://files.mothering.com/images/smilies/notes.g...

http://files.mothering.com/images/smilies/notes.gif
We're going to be moving from non hinged to hinged soon I think. We're going tomorrow to talk about it with the ped.
Forum: Special Needs Parenting   01-08-2011, 07:48 PM
Replies: 16
Views: 1,259
Posted By MotherWhimsey
I much prefer the G tube over the NG. Your...

I much prefer the G tube over the NG. Your friends that have to go to the ER to have them replaced need to give it a try themselves. It's really not hard at all. It's actually easier IMO than...
Forum: Special Needs Parenting   01-04-2011, 09:16 AM
Replies: 1
Views: 184
Posted By MotherWhimsey
Bill Allen is the freaking bomb! He is amazing....

Bill Allen is the freaking bomb! He is amazing. He's a psychiatrist (I think) who specializes in SN behavioral issues and he's just awesome.
Forum: Special Needs Parenting   12-31-2010, 07:46 AM
Replies: 9
Views: 599
Posted By MotherWhimsey
 Quote:Originally Posted by Wild...



Quote:Originally Posted by Wild Lupine http://www.mothering.com/community/img/forum/go_quote.gif...
Forum: Birth and Beyond   12-30-2010, 12:00 PM
Replies: 41
Views: 2,991
Posted By MotherWhimsey
I have a child with a metabolic disease that is...

I have a child with a metabolic disease that is not detected through the new born screen. But knowing personally how devastating they can be, I have done and will do any new born screening that is...
Forum: Special Needs Parenting   12-30-2010, 07:49 AM
Replies: 9
Views: 599
Posted By MotherWhimsey
My son aspirates and always has. He failed all...

My son aspirates and always has. He failed all consistencies so he's been tube fed since he was 3 months old and we found out. He is now 4 and gets J feeds. The aspiration has changed a bit over the...
Forum: Special Needs Parenting   12-30-2010, 07:30 AM
Replies: 16
Views: 637
Posted By MotherWhimsey
If it makes you guys feel any better, we have...

If it makes you guys feel any better, we have been rx'ed 3mg for my 38 lb 4 year old and my 42lb 6 yr old. Neither of them crash hard, it's still hard to get them down but not impossible. It's not...
Forum: Special Needs Parenting   12-29-2010, 07:20 PM
Replies: 16
Views: 637
Posted By MotherWhimsey
we use the adult version and ours doesn't have...

we use the adult version and ours doesn't have alcohol in it.
Forum: Special Needs Parenting   12-16-2010, 06:04 AM
Replies: 23
Views: 1,902
Posted By MotherWhimsey
Hey, my son has a G tube, J tube and o2. No...

Hey, my son has a G tube, J tube and o2. No trach though and no TEF. What kind of feeding pump do you have? You need a zevex if you don't have one, they're teeny tiny. You'll figure out your groove...
Forum: Special Needs Parenting   12-12-2010, 02:55 PM
Replies: 6
Views: 490
Posted By MotherWhimsey
Honestly, you just kinda hit rock bottom at some...

Honestly, you just kinda hit rock bottom at some point, become resigned, and get used to it. It's exhausting no matter what, but eventually you do get used to it and it just becomes your normal....
Forum: Special Needs Parenting   12-10-2010, 02:23 PM
Replies: 9
Views: 661
Posted By MotherWhimsey
my son's 4 and we use goodnights during the day...

my son's 4 and we use goodnights during the day and ATN's at night. That stands for All Through the Nights which is a juvenile diaper.
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