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	news bulletins november 2006

• Autism World Loses a Giant: Bernard Rimland
• New Fluoride Warning for Infants
• Ongoing Coverage of Breastfeeding Mom Kicked Off Plane
• Why M.O.T.H.E.R.?
• The World Has A Breastfeeding Symbol
• Mothering Media Offers Sights and Sounds

Autism World Loses a Giant: Bernard Rimland

Autistic children and their parents said goodbye to their best friend and greatest champion on Tuesday, November 21st when Dr. Bernard Rimland, founder and director of the Autism Research Institute,  passed away at the age of 78.

Dr. Stephen M. Edelson, who is assuming the position of Director of ARI, says, “Dr. Rimland will go down in history as the person who ended the ‘dark ages’ of autism and spearheaded the fight to bring hope and help to autistic children. When he began his work in the field of autism in the 1960s, psychiatrists blamed parents for their children’s autism, institutionalized those children, and ‘treated’ them by drugging them into submission. Today, autistic children receive effective educational interventions and biomedical treatments that bring about dramatic improvement and often even recovery. At every step of this revolution, Dr. Rimland led the way—and at every step, he had to fight tooth-and-nail against an establishment determined to maintain the status quo.”

Dr. Rimland’s forty years of work on behalf of autistic children began with a single child: his own son, Mark Rimland, born in 1956. In the most recent version of the DAN! treatment manual, Dr. Rimland wrote, “Mark was a screaming, implacable infant who resisted being cuddled and struggled against being picked up. He also struggled against being put down. Our pediatrician, Dr. Black, who had been in practice for 35 years, had never seen nor heard of a child like Mark. Neither Dr. Black nor I, who at that time was three years beyond my Ph.D. in psychology, had ever seen or heard the word ‘autism.’”

It wasn’t until Mark turned two that Dr. Rimland’s wife, Gloria, remembered reading in college about children with symptoms like their child’s. Digging through a dusty box of Gloria’s textbooks in the garage, Dr. Rimland saw the word “autism” for the first time. That discovery was the first step in a quest that covered nearly half a century.

Dr. Rimland’s battle to help autistic children began in the early 1960s, when psychoanalysis reigned and professionals believed that autism stemmed from a “refrigerator mother’s” subconscious rejection of her child. Treatments, prescribed by leading authority Bruno Bettelheim and other psychoanalysts, included having children kick and spit on statues representing their mothers.

Knowing that Mark was a greatly loved child and that the “refrigerator mother” theory was both wrong and destructive, Dr. Rimland set out to discover all that was known about autism. He scoured libraries for articles on autism, including foreign articles he had translated, and found, as he noted later, “not a shred of evidence” to support the hypothesis that bad parenting caused autism.

What he discovered, instead, was powerful evidence that autism was a biological disorder—a fact that seems obvious now, but was revolutionary at the time. He outlined this evidence in his seminal book Infantile Autism: The Syndrome and Its Implications for a Neural Theory of Behavior, published in 1964. The book changed the autism world forever: it won the Century Award for distinguished contribution to psychology and, as one reporter put it, “blew Bettelheim’s theory all to hell.” For parents, the nightmare of being blamed for their children’s terrifying disorder was over.

Most people would be content to rest on their laurels at that point, but Dr. Rimland was barely getting warmed up. He’d revolutionized an entire field, but he still had no way to help his own son. So he formed the National Society for Autistic Children (NSAC), now known as the Autism Society of America. Through this group, parents of children with autism—a very rare disorder, at the time—could offer each other moral support and practical advice about which therapies worked and which didn’t.

Dr. Rimland started ASA in large part to promote “behavior modification” (now known as Applied Behavioral Analysis, or ABA), a treatment then being pioneered by a very controversial young psychologist named Ivar Lovaas. Authorities in the autism field scoffed at Lovaas’s claim that autistic children could be helped by something as simple and straightforward as behavior modification, but Dr. Rimland spread the word through NSAC and parents began fighting for this therapy for their children. Today, of course, ABA is the educational treatment of choice for autistic children, and many autistic children who receive early ABA improve dramatically.

Dr. Rimland knew, however, that educational treatments alone could not adequately address a devastating biological disorder such as autism. In 1967, he started the nonprofit Autism Research Institute in order to create a worldwide research center and clearinghouse for biomedical treatments (which barely existed at the time). In 1985, he retired from his career as a psychologist for the Navy to devote the remainder of his life to autism research.

The first treatment Dr. Rimland investigated, based on reports from parents of autistic children, was high-dose vitamin B6. Other authorities in the autism field considered the idea that a vitamin could correct a brain disorder to be preposterous, but time and research proved them wrong. To date, 22 studies (including 13 double-blind studies) show that vitamin B6, typically combined with magnesium, benefits a large percentage of autistic children.

“One of the most remarkable things about Dr. Rimland,” says Dr. Edelson, “is that he realized in the early days that parents held many of the keys to solving the mystery of autism. From day one, he listened to them and respected them—and he followed their lead. If five or six parents reported, ‘DMG makes my child much better,’ he didn’t ignore them; instead, he organized a study to see if other children responded the same way. For a professional psychologist, even one who was the parent of an autistic child, this was a revolutionary viewpoint—and it’s a key reason why ARI has always led the way in identifying new treatments and uncovering the roots of autism.”

One important clue contributed by parents of autistic children put ARI squarely in the middle of a huge controversy: the debate about the safety of vaccines. Early in his work, Dr. Rimland received many reports of children who had no disability before receiving DPT vaccinations. As time went on, the number of reports snowballed, and included other vaccines. At the same time, as the number of vaccines received by children grew, autism rates began climbing relentlessly. When Dr. Rimland learned that most childhood vaccines contained thimerosal—a preservative that is nearly 50% mercury, a powerful neurotoxin—he realized that the escalating numbers of vaccines given to children could be the culprit behind skyrocketing rates of autism. His suspicions grew when he discovered that the symptoms of autism bear many similarities to the symptoms of mercury poisoning.

The medical establishment, not surprisingly, expressed great antagonism toward this theory. They turned a blind eye as well to strong evidence implicating wheat and milk proteins, persistent measles infection in the gut from MMR vaccines, and other environmental factors in causing or exacerbating autism. And they continued to scorn biomedical treatments, even when hundreds and eventually thousands of parents reported that these treatments worked – often dramatically. So Dr. Rimland began yet another new project, this time aimed at quickly identifying causes of autism and promoting the safe and effective treatments that mainstream medicine refused to investigate.

To accomplish this mission he created the Defeat Autism Now! (DAN!) project, jump-starting the project in 199- by bringing together dozens of the world’s leading researchers in different fields to create a state-of-the-art treatment plan and prioritize research goals. This small first meeting grew into a worldwide DAN! movement that now includes huge standing-room-only conferences, major research projects, a treatment manual, and hundreds of DAN!-trained physicians. A happy offshoot of this massive effort is the “Recovered Autistic Children” project, in which parents whose children improve or even recover because of DAN!-oriented treatment are spreading the word that “autism is treatable.” Dr. Rimland and Dr. Edelson also collaborated on Recovering Autistic Children, a book of stories about children who improved or recovered as a result of DAN!-oriented treatment.

In addition to these projects, Dr. Rimland served as a technical advisor for Rainman, the Academy-Award-winning film that introduced millions of moviegoers to the world of the autistic savant. As editor of the Autism Research Review International, now in its twentieth year of publication, he also provided parents and professionals with crucial information about autism treatments and research—as well as with his trademark editorials, often scorching in their condemnation of established medicine’s failure to help autistic children.

Dr. Rimland achieved worldwide fame and a reputation as a giant in his field, and his friends ranged from Hollywood stars to national media figures. Yet unlike many professionals, he didn’t know the meaning of an “ivory tower.” In his few free moments each day, he responded to letters, phone calls, faxes, and emails from thousands of distraught parents around the world. His vast network of friends knew him as an extraordinarily generous soul and an irrepressible “yenta,” whose greatest joy lay in bringing strangers together for the benefit of all. He was also a soft touch, incapable of saying “no” to any worthwhile cause—no matter how large or small. (The San Diego branch of the Autism Society was probably the only chapter whose Christmas party once featured an internationally-renowned autism researcher playing Santa Claus.)

How did Dr. Rimland find time to juggle enough huge projects for ten lifetimes, and also help out every friend (or stranger) who needed a hand? He spent seven days a week in his office. Some nights, he slept on the office floor. And everyone who worked with him knew that if the phone rang at 10 p.m., it was Dr. Rimland with another idea – often an earth-shaking one. (Not all of his ideas and interests involved autism. He owned several patents for inventions, and was an inveterate “tinkerer.”)

Dr. Rimland’s remarkable wife, Gloria, gracefully handled his nearly-impossible schedule while keeping a home with three children running smoothly. The autism community owes a huge debt of gratitude to Gloria Rimland for the inspiration and moral support she provided Dr. Rimland throughout the years – as well as her willingness to share her husband with an entire world of “autism parents.” The autism world sends its deep condolences to Gloria and to their children, Mark, Paul, and Helen.

“Our community is greatly diminished by the loss of Dr. Rimland,” says Dr. Edelson. “His legacy, however, will live on in the work of ARI and the DAN! project – and in the joy of families whose children, dismissed as ‘hopeless’ and ‘incurable’ by the medical establishment, are now leading happy, healthy, productive lives. It’s exactly the legacy that Dr. Rimland would want.

In lieu of flowers, Dr. Rimland's family asks that donations be made to the
Autism Research Institute (4182 Adams Avenue, San Diego, CA 92116).
Donations can also be made online on ARI's website www.AutismResearchInstitute.com.

Source:
Unlocking Autism
The Schafer Autism Report

New Fluoride Warning for Infants

Does your drinking water contain added fluoride? If so, keep it away from infants under the age of one. This directive was issued recently by an unlikely source: the American Dental Association (ADA).

The ADA issued this advice because babies exposed to fluoridated water are at high risk for developing dental fluorosis—a defect of the teeth which can result in staining and even corrosion of the enamel. In addition, on October 14th, the Food and Drug Administration stated that fluoridated water marketed to infants cannot claim to reduce the risk of cavities.

Dental fluorosis is not the only risk stemming from a baby's exposure to fluoride. In the same week that ADA issued its advisory, an article in the British journal, The Lancet, reported that fluoride may damage a child's developing brain. The Lancet review described fluoride, along with the rocket fuel additive perchlorate, as an "emerging neurotoxic substance" due to evidence linking fluoride to lower IQs in children, and brain damage in animals.

"Newborn babies have undeveloped brains, and exposure to fluoride, a suspected neurotoxin, should be avoided," notes Hardy Limeback, a member of a 2006 National Research Council panel on fluoride toxicity, and former President of the Canadian Association of Dental Research.

Fluoride is linked with other health problems as well, including weakened bones, reduced thyroid activity, and possibly, bone cancer in boys, according to a recent report from a team of Harvard scientists, the US National Research Council and other recent studies.

While most of western Europe has abandoned the practice of adding fluoride to water, most US water supplies remain fluoridated. In addition, some brands of bottled water sold in the US, such as Nursery Water, specifically market fluoridated water for young babies.

A recent investigation by the Environmental Working Group (EWG) found that over-exposure to fluoride among infants is a widespread problem in most major American cities. EWG's study found that, on any given day, up to 60% of formula-fed babies in US cities were exceeding the Institute of Medicine's "upper tolerable" limit for fluoride.

"Water is supposed to be safe for everyone. Why add a chemical that makes it knowingly unfit for young children? The US should follow Europe's lead and end fluoridation," says Michael Connett, Project Director of the Fluoride Action Network.

For additional information, see: http://www.fluoridealert.org and http://www.ewg.org

Source:
Fluoride Action Network (FAN) & Environmental Working Group (EWG)

Ongoing Coverage of Breastfeeding Mom Kicked off Plane

Click here for the scoop on the incident, and to stay abreast of developments in Emily Gillette's experience.

Why M.O.T.H.E.R.?

In May of 2006, we told you about momsrising.org. Since then, the core issues at the base of their grassroots movement have been expounded upon in the book, The Motherhood Manifesto, and a documentary DVD of the same name. These issues include:

M - Maternity/Paternity Leave: Paid family leave for all parents after a new child comes into the family.

O - Open Flexible Work: Give parents the ability to structure their work hours and careers in a way that allows them to meet both business and family needs. This includes flexible work hours and locations, part-time work options, as well as the ability to move in and out of the labor force to raise young children without penalties.

T - TV We Choose and Other After-School Programs: Give families safe, educational opportunities for children after the school doors close for the day, including: Create a clear and independent universal television rating system for parents with technology that allows them to choose what is showing in their own homes; support quality educational programming for kids; increase access to, and funding, for after school programs.

H - Healthcare for All Kids: Provide quality, universal healthcare to all children.

E - Excellent Childcare: Quality, affordable childcare should be available to all parents who need it. Childcare providers should be paid at least a living wage and healthcare benefits.

R - Realistic and Fair Wages: Two full-time working parents should be able to earn enough to adequately care for their family. In addition, working mothers must receive equal pay for equal work.

To learn more, visit www.momsrising.org/. Read a chapter of the Motherhood Mainfesto book, and watch M.O.T.H.E.R.-related animation and a trailer for the DVD.

The World Has A Breastfeeding Symbol

Mothering Media Offers Sights and Sounds

Putamayo World Music brought the lively and highly entertaining children's performer Asheba to our stage, to share his upbeat, island-style music with the crowd. Listen as he sings a spontaneous ode to Mothering, "Happy Anniversary".

Explore the depth and breadth of the parenting experience through spoken word, in audio offerings from the anniversary's poetry reading. Professional poets and dabblers alike, these motherpoets and a fatherpoet gift the listener with their personal expressions.

Stay tuned to Mothering Media for more diverse video and audio in the future!