Hives, swelling, juvenile rheumatoid arthritis, and food allergies Tell me your thoughts. X posted in special needs and allergies - Mothering Forums
 
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#1 of 9 Old 04-02-2010, 12:42 AM - Thread Starter
 
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DS is almost 28 months old.

The other day my son woke up for the day covered in hives. I got him into the bath and noticed his joints (knee, elbow) were swelling. He also has some difficulty moving. We went to the ped, and after some examination he sent us for blood work, concerned that DS possibly has JRA. He had us start dosing on ibuprophen, but as the day went on, the swelling got worse.

By last night, he could not move to drink or feed himself. If he wanted to move, we had to place his body somewhere else. The swelling was occuring at ankles, knees, hands, elbows. The dr. called in a steroid. This morning, the swelling was WAY down, and the hives have become bruised looking spots on his body.

DS has NOT been dianosed with JRA, but the ped is very concerned and is referring us to the specialist. His blood work showed platlets being high and iron being low (for the first time ever). DS was born a month early, and has always been very small.

DS has had some food issues food issues. He is allergic to eggs. As an infant he had horrible eczema from dairy in breastmilk, and was dairy free until February 24 of this year. Could the consumption of dairy over the past little over a month have led us to this selling/hives?

Does this sound like JRA? Does anyone have any really good links for JRA that could help me?
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#2 of 9 Old 04-02-2010, 10:17 PM
 
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Given his allergy history, I would get all kinds of allergens tested - both IgE and IgG.

And yes, the dairy can still be an issue. I'd stop all dairy, even trace amounts and anything manufactured on equipment shared with dairy. I'd also see about getting an EpiPen.

Kim
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#3 of 9 Old 04-02-2010, 10:30 PM
 
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Did his blood work come up clear for dairy before you reintroduced it? Dairy allergies definitely cause hives and swelling in our house. I second the recommendation of an Epi-pen (really several sets, they come in sets of 2) if you don't have one.

I'm glad the steroid seems to be helping - I'm sorry you're all dealing with a scary situation! Good luck!!!

SAHM to my and and due in summer 2010, married to my best friend.
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#4 of 9 Old 04-03-2010, 10:59 AM
 
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Just wanted to mention that some of my IgG food sensitivities cause me joint pain that is arthritis-like. It's pretty mild compared to what your DS is going through. But I just wanted to throw it out there that food sensitivities (and not even IgE allergies) can cause joint inflammation and pain.

Also wanted to mention the possibility of a new allergy. The problem could be dairy, or it could be something else his body has decided to react to. (Or it could be both dairy and something new.) Is there a new food he's been exposed to recently?

Kim
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#5 of 9 Old 04-05-2010, 12:29 AM
 
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Look into delayed presssure urticaria with angiodema

ALso vasculitus (especially if hives leaves bruising)

H plori
and Hashimotos

Sorry - super busy

I have chronic hives and joint swelling -they go hand in hand for me and as a result I am dependent on IVIG in order to actually have a life .

If the hives get worse - carry an epi pen ALWAYS

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#6 of 9 Old 04-05-2010, 12:35 AM
 
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I read your title and was going to ask if you were posting about my son! We have had a very similar situation with our youngest.... since he turned 10 months old we have had rashes and hives. The doctors took until he was 3 to diagnose these as hives (due to food allergies, none of which are considered IgE) we ended up taking him to Boston Childrens and he was diagnosed with JRA. He had nodules on his arm, heel, hand and foot at the time. We still do not have a complete answer about what is going on with him but we are on a better path now. He has some intensive allergies... corn, soy, all legumes, nuts and some berries. He has an epi to carry at all times, though we have never used it, we have been able to control his reactions with antihistamines so far.

I am so sorry that you are dealing with this, it is not an easy thing to watch your child go through, it takes incredible strength and emotion to deal with all of this. I would be more than happy to email with you if you would like more background with what we have been through.... just pm me!

Hugs.... ~laura

laura, dh Brian, ds Rory 14, dd Ellie 13, ds Caelan 11, ds Seamus 9, ds Finn 7 and Penelope 2 !!!!

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#7 of 9 Old 04-05-2010, 02:01 AM - Thread Starter
 
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I have been out of town, so please dont think I have been ignoring these posts. I was just in a place where I have no internet. I will be back tomorrow to post!
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#8 of 9 Old 03-07-2011, 11:22 AM
 
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Matey, Just wondering if they ever figured out what was going on with your son.  My son is having similar issues - hives and swelling in his knees and ankles.  It seems to go away with prednisone.  The docs say it's an allergic reaction, but the swelling makes me nervous and wonder if we're headed down the JRA route.

 

Any thoughts would be helpful!

 

Thanks!

Jen

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#9 of 9 Old 03-07-2011, 07:13 PM
 
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My ds2 breaks out in hives and weird swelling whenever he gets a virus!! It's so odd, but the family doc figured it out. One time he broke out in hives and then one of his hands swelled into double the size it was normally!! it scared the heck out of me!! He also had gluten, dairy, and egg sensitivity. So we are so careful about those things, especially when he under the weather.


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