My 14 YO daughter, Julia, whom I adopted at 6 months old, was born with a left congenital diaphragmatic hernia. She is doing extremely well now, with a minimum of sequalae from having been born with a severe, potentially fatal, birth defect. There were some real tough times in the early months and years of her life, though. I have always been very thankful that she was my fourth child, and not my first, second or even third. My previous experience, raising three babies, the third of which also had special needs, (although not as severe as Julia's), and with breastfeeding adopted babies, was extremely valuable in raising Julia. Without that, I would have been more dependant on the professionals whose opinions tended to be quite a distance from the nurturing kind of parenting that was my natural desire and inclination to do.
I am writing this in case there might be someone else out there who is raising a child who was born with CDH, who would like some support, or just to be friends, with someone who has "been there". Julia is also interested in making contact with other kids who have been born with a CDH. The closest she has come to meeting anyone else, in person, was with her pre-school teacher, who'd had a baby sister with it. Unfortunately, her sister had not survived more than a short time after birth. She felt a special connection with Julia, because of it.