Thyroid Drugs - Page 2 - Mothering Forums
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#31 of 107 Old 06-28-2006, 05:23 PM
 
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I went to the endo yesterday finally after all my worrying. All went well and I got all of my bloodwork done too. He did a few physical assessments and said he felt a small nodule in my thyroid. Right now we are kind of hanging out waiting to see what is causing the hyperthyroid, either graves, toxic nodule, or postpartum. I have to get a sonogram in 2 weeks to see if the nodule is big or small or whatever. I asked many questions and asked about PTU and he said its ok to take, we can work with the breastfeeding i wont have to stop. Then he said something about if its a big nodule we may have to do some radioactive stuff and id have to stop breastfeeding for a while and then go back to it....i dont want that. Do i absolutely need that? I cant stop breastfeeding, i just cant. We will have to see what my levels come back as. Then he said for 6 months ill get more bloods done to see if my levels are coming down or up whatever and see if it goes away on its own. But he said he could tell by the bloodwork done yesterday if i have graves or not. What do you all wise women think? Thanks!

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#32 of 107 Old 06-28-2006, 05:46 PM
 
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I just wanted to thank you ladies! This thread has come in perfect time to help out my cousin who is dealing with thyroid issues, and not wanting to wean her 5 months old. Thanks.
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#33 of 107 Old 06-28-2006, 06:20 PM
 
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The only thing about the nodule that could be a big concern is that it could be cancer (prolly isnt but had to mention it) Instead of having the radiation test he can do a needle biopsy instead to rule that out. If it is cancer then you will have to go from there. But if not then u wont have to worry to much about it.

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#34 of 107 Old 06-28-2006, 07:57 PM
 
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Oh yeah i already know that If its cancer i dont care because then they can just take the whole darn thing out and i dont have to worry. But we just have to go from here, and wait which is annoying. But, at least i know where i am Thanks so much so far!

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#35 of 107 Old 06-28-2006, 08:26 PM
 
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I had mine removed because of cancer in 96 after having the radioactive iodine scan then a u/s then the needle biopsy. The month after I had the surgery I had to take a large dose of radiation via pills to kill any cells that might be left. I am very lucky that it didnt spread as there is a very good possibility that I had the cancer from around 1990 when the nodules first showed up. The kind I had was very slow growing or I would prolly be dead. Due to the fact dr didnt want to mess with me cause i didnt have insurance at the time. Anyway that is my story.

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#36 of 107 Old 06-28-2006, 08:36 PM
 
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wow. everyone i talked to said its no big deal. isnt it sad that if you dont have insurance then no one will help? my husband works part time for 3 universities, so we arent eligible for insurance, but i have the medicaid through our state because when i was pregnant i asked him to leave and without his income i was eligible. Now he is back (since she was born) and they are giving me 6 more months of insurance and then thats it, so i dont know what im going to do if i need stuff done. i dont know how long ive had the nodule, but ive had hyperthyroid symptoms since 2002. and since we make too much money we cant get any insurance...unless we pay out the nose, which we cant do. We just have too much debt from years ago. Im nervous about radioactive stuff---i cant give up breastfeeding. i dont know what ill do. i just cant give it up yet. ive come too far to do that. im too emotional about it. shes only 7 months....i hope i dont need to do that, because i dont think i could take it.

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#37 of 107 Old 06-28-2006, 08:38 PM
 
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Originally Posted by doulajewla
One other question----when the TSH levels are below a 0.01, are you most definetly hyperthyroid? She said i am, but I just wanted to check because then why else am I going for more bloodwork? Thanks!
My mom has Graves Disease, absolutely hyperthyroid, and her thyroid was working so hard it wasn't producing anything. So it is possbile to have a low level and be hyperthyroid.
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#38 of 107 Old 06-28-2006, 08:40 PM
 
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That low level MEANS hyperthyroid. TSH is the Tyroid sending hormone. Your thyroid isn't sending any out it's just working and working and working. That's why the levels get so low in the blood stream.

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#39 of 107 Old 06-28-2006, 08:42 PM
 
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Originally Posted by doulajewla
ive been taking rescue remedy for 7 months now lol...and it does help a bit. although when im totally out of control sweating and crying and yelling at the kids, it does nothing. Im getting the zoloft now.....i know that will calm me down a bit.....ive taken it years ago for anxiety. The endos dont have any appts earlier than august.....my doc is going to call on monday and im going to see her monday again she wants to see me because of my tendencies to crash my car lol. I didnt do it, but i wanted to.....but then just picturing my babies i couldnt do it. I really couldnt. they need me so much right now.....and thats why i need, DESPERATELY need to get well asap. They have endured enough of a hyper everything mamma. they need a stable mamma who isnt going out of her gourd. Right now im very hyper, i was hungry so i ate and when i eat sometimes i get hyper a little. i guess thats part of it...i always thought it had to do with my blood sugar going up when i ate.....but my sugar has been tested so many times and come back within 85.....so i know its not that. im kind of shaky, but not as bad...the symptoms come and go...is that normal too? Its not all the time that my heart is increased....it is all the time with the hair loss, sweating and acne though. and all the time with the nutty mood swings.
Yes these are all symptoms, especially the tremors. My mom has them and I have them but I don't have graves yet. My mom, aunt and grandma all three have it. I am worried about your car crashing tendencies. Have you already gotten the zoloft? I wouldn't wait for that I would get it ASAP.
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#40 of 107 Old 06-28-2006, 11:55 PM
 
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I didnt post my experiance to freak you out just give you a idea what might happen if the nodule looks suspisious. Ironicly enough my thyroid was still working properly with that 3cm nodule there.

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#41 of 107 Old 06-29-2006, 12:20 AM
 
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Just wanted to share my journey. I was diagnosed with graves disease in december of 2005. My TSH levels came back undetectable (lower than 0.001). My heart was racing out of control (it would jump from 120 to 220 in a matter of seconds), I lost weight, my mood was horrible, I passed out, I had trouble swallowing, I would sweat, I had severe insomnia...

I was put on PTU right away (while nursing). The only side effect I immediately felt was the HORRIBLE taste it leave in your mouth! After 3 weeks my body grew an allergy to it. My choices where IR, or a thyroidectomy. I absolutely didn't want to stop nursing my then 19 month old. I actually refused. I also refused the iodine tests too. I opted for the sub-total thyroidectomy. It took me about a week to start moving around after the surgery and about 5 months to get my voice back (just last month) to normal. I don't do well with anethisia, but other than that it wasn't too bad.

I was put on synthroid, which is also completely safe during breastfeeding. I take one tiny pill everyday and have my blood drawn every 6 weeks. I am currently at 1.88 TSH and I feel great. It was like an instant cure having the surgery! I felt happy, my husband couldn't believe the difference. I didn't NEED to eat every hour, my heart STOPPED racing and I could finally sleep!

I am now almost 6 months post surgery and I still feel great!
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#42 of 107 Old 06-29-2006, 12:26 AM
 
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It also took me about 5 months to get my voice back. Part of it was the swelling due to the surgery and part of it was because the dr let my thyroid levels bottom out before doing the radiation and starting meds.

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#43 of 107 Old 06-29-2006, 12:48 AM
 
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im so glad you all posted your journeys, this is very helpful to me Actually wrote that wrong, my TSH level is LESS than 0.01, so there is hardly any detectable. but it can also be postpartum the endo said, so it could go away in 6 months. I think what we are doing is nothing for 6 months to see if it goes away, but if theres a problem with the nodule, then we do something. I dont know if i want surgery, im scared of that actually lol. ive never had surgery except 3 c/s and i was awake for that. ive never been put under before.

As for the car crashing thing....it was a one time only thing due to a surge in hormones. I am on zoloft already, the day that it happened i started it. i didnt want to---i wanted to prove to myself that i could control my body and heal myself. But i cant, ive been trying for months. I wanted to do with out meds....i wanted all herbal. I wanted to trust that my body knew what to do. I trusted it to give birth after 3 c/s....and i did well, i didnt want to ruin that. i didnt want to go back to my old living habits and be unhealthy. but i guess i have to give in and go on meds. I never wanted to do this again, why did it have to happen to me, right after i changed my living habits? I eat healthier, i had a baby vaginally, i heal myself with herbs and things of the earth....i dont understand how my body can be "broken" again. Im sorry im ranting.....im just sad that i have to give in. I dont have a choice, i have to give in or the depression was on the verge of getting worse. I told my doctor everything, btw, so dont anyone think that i wasnt smart enough to get help lol I would never harm myself or my children, just the thought was there and i was behind the wheel and wanted to. I was still in somewhat of a right mind since i thought of my lovely children and thought of all the good i have brought forth into this world...how could i do something so devastating, so ridiculous and so selfish? MY breastfed baby needs ME! My older children need a mamma to sleep on at night. i could never hurt them that way, never. Thats why i had to get control of the depression. i dont want anyone thinking for a second that this is something that i want to do.

I didnt know it took that long for your voice to come back. Oh well, my husband will be happy tee hee i talk alot, can you tell? we shall see what will happen when i get my sono i guess. has anyone had a small nodule that didnt have to be taken out? do they just do radioactive stuff for that? And if so, can i wait a long time (like when im done breastfeeding) to do that, or is it dangerous? Thanks so much ladies, i really appreciate all of your advice!!!

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#44 of 107 Old 06-29-2006, 12:54 AM
 
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[QUOTE=Emily12581]Just wanted to share my journey. I was diagnosed with graves disease in december of 2005. My TSH levels came back undetectable (lower than 0.001). My heart was racing out of control (it would jump from 120 to 220 in a matter of seconds), I lost weight, my mood was horrible, I passed out, I had trouble swallowing, I would sweat, I had severe insomnia...



Wow, that would be scary for me the heartrate jumping like that. I dont get that, i just get slight heart accelerations.....up to 120s to 130s. but its not everyday. I get some palpitations and it feels like constricting on my throat....but its not painful and goes away. my TSH is the same....my moods are insane. I was about to commit myself last week, i really needed to be put away i thought. I never passed out, but ive had trouble swallowing for at least 3 years....bread is very very hard to swallow and then when i finally do manage to swallow, i get the hiccups and sometimes it takes up to an hour for the food to pass through. i sweat constantly for the past 3 years...i mean constantly. even in the dead of winter, and i never wear a coat or jacket ever. i sleep ok, sometimes im wide awake though, but not alot. everyone is different i know...but its comforting to know that im not alone I just wonder, why does this happen? Why did my thyroid decide to go on strike lol?

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#45 of 107 Old 06-29-2006, 12:55 AM
 
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As long as the nadule is not cancer it can stay in there no problem. I am thinking that they will not remove it unless it is cancer. I have a cousin who has nodules but they are fine they keep an eye on it for her but other than that no worries. Pretty sure the only scan they have for the thyroid involves radioactive iodine but the nodule can be biopsied with a needle without that. It isnt fun by any stretch but it isnt painfull really just the thought of the needle in your neck and the way it feels in there almost made me pass out and I am not the passing out kind of person.

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#46 of 107 Old 06-29-2006, 01:24 AM
 
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I was able to stop taking the PTU after about 4 months. It was making me HYPO-thyridic then. And it really DOES leave the WORST taste in your mouth! GAG!

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#47 of 107 Old 06-29-2006, 03:09 PM
 
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Originally Posted by doulajewla
As for the car crashing thing....it was a one time only thing due to a surge in hormones. I am on zoloft already, the day that it happened i started it. i didnt want to---i wanted to prove to myself that i could control my body and heal myself. But i cant, ive been trying for months. I wanted to do with out meds....i wanted all herbal. I wanted to trust that my body knew what to do. I trusted it to give birth after 3 c/s....and i did well, i didnt want to ruin that. i didnt want to go back to my old living habits and be unhealthy. but i guess i have to give in and go on meds. I never wanted to do this again, why did it have to happen to me, right after i changed my living habits? I eat healthier, i had a baby vaginally, i heal myself with herbs and things of the earth....i dont understand how my body can be "broken" again.
I totally understand what you are going through with the depression. Depression runs on both sides of my family. My dad was on Prozac for 6 years and although it helped him he shared very personal experiences with me about how it effected him. When I was in college I did a research paper on St Johns Wort VS Prozac and I interviewed him. It was interesting learning as an adult how depression effected his relationship with us as children and I understood him way better than I ever had before. I wish I could have understood sooner but I don't think I was mature enough yet.

Anyway I was scared to take depression medicine. I did not want to screw with my bodies natural process; however I had the unique perspective of a child that grew up with a parent who had uncontrolled depression. So what does a person do? I made the decision that I thought was the best at the time and I took St Johns Wort to control the depression, with the consent of my psychiatrist, and it helped. However if I felt it hadn't helped I would have taken the Paxil the doctor had given me.

Depression isn't an easy thing to deal with but once you understand the problem and its triggers you can get to the point where you can control your reactions. That is the difference, you might never fix the chemical imbalance but you can at least learn how to deal with it in a healthy manner.

My dad has been drug free now for 10 years and he says it is a struggle sometimes but the depression no longer controls his life like it used to.
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#48 of 107 Old 06-30-2006, 12:52 AM
 
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One day ill be like your dad I cant take st johns wort it made my heart jump out of my chest. Ive tried everything too. Motherwort worked good for a while but then i was really getting out of control and it didnt work. I believe when i get control of my thyroid problems then it should work itself out and i wont have to be on zoloft. My doc is good, and she agrees that temporarily its ok and then i can go back on my herbal remedies

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#49 of 107 Old 06-30-2006, 10:51 AM
 
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The heart accels were why I needed the surgery right away. When your levels get that low you are at risk for heart failure (I went undiagnosed for 3+ years), my heart had been weakened by it. I am happy to say my latest heart scan showed dramamtic improvement! yay! Just keep an eye on it. I don't think they like letting people with such low levels go for too long because you can start losing calcium in your bones and your heart can weaken.
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#50 of 107 Old 06-30-2006, 06:04 PM
 
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everyone keeps saying my heart sounds fine. I had a holter monitor about 6 years ago and it said it was fine. I also had an echo and an ekg. when the endo listened to my heart the other day he said it sounds fine. i take my pulse often even when its racing so i can keep track of the beats and how it feels. i do have when i breathe in and out where my heart will skip a beat and speed up a bit upon inhalation, but my mw noticed that last year and wasnt concerned. its always done that for 10 years now. but yeah, thats one thing ill keep in mind

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#51 of 107 Old 07-14-2006, 11:21 PM
 
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went for my ultrasound of my thyroid today. hoping and praying the nodule isnt so big that i need a biopsy, i am terrified! will update more, didnt get bloods back yet

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#52 of 107 Old 07-22-2006, 02:06 AM
 
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I am completely and utterly insane. I cant take these moods, zoloft didnt work so i went off of it....i scream at least once a day. I freak once a day, and scare my kids. I am screwing them up royally. I am so scared ive screwed up my kids. we are all in counseling, i know enough to do that. but its not enough. My kids know im nuts, i tell them i have a chemical imbalance...and no one can help me right now. I havent seen my endo in 6 weeks, so i dont know anything about bloodwork i had done or the sono of the nodule. Im just so angry, the last time i saw my endo, he wanted to wait 6-9 months to see if the hyperthyroid went away on its own, maybe it was pregnancy induced. I dont think ill make it without cracking up completely. does anyone know any info about pregnancy induced hyperthyroid? I thought it would clear up by now, my baby is 8 months now. ive had symptoms since 4 years ago....and this endo says he believes me, but if i really had hyperthyroid for 4 yrs, i would have been in grave danger during my pregnancy and we would have definetly known. So he thinks its due to the pregnancy, but my gut is telling me otherwise. i need meds. i need something, i need surgery, i dont care what the hell it is (sorry) but i need something. Anyone have any thoughts? Im screwing up my kids, i scream all the time. I cant do this to them anymore, but i dont have control over the heated moods i get...i literally tried so hard to stop the screaming, but i couldnt. i just couldnt do it, i felt so shaky and hot and mad....is this normal? are my kids going to be traumatized? i do tell them what is going on, but then when they get older i fear that they will suffer with an abusive mate because the mate will apologize and say "sorry im nuts" and its ok because that is what my kids are learning. I am so scared.

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#53 of 107 Old 07-22-2006, 02:18 AM
 
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I'm sorry honey. Really the only things that are going to help are Rx prescriptions. A beta blocker like propanonol for the increased heart rate and blood pressure, and the PTU for the thyroid.

Both of those are really not dangerous drugs. I don't know WHY they won't just give them to you. I'd call, and call, and call until they helped you. Mine was pregnancy induced and it didn't get better until I took the PTU for about 3 months. Then my thyroid calmed down and I was able to stop taking the PTU.

My best advice is to get another GP or Internist or even Endo. SOMEONE who will help you. Check yourself into an emergency room and tell them what is going on, maybe they will help you. Past that I don't have any suggestions. Maybe you can order the drugs online. You seem to be able to get anything else there.

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#54 of 107 Old 07-22-2006, 04:41 PM
 
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I have pregnancy induced hypOthyroid... but my endo didn't hesitate to put me on meds for it. I agree with the previous poster - the meds are one of the few things that really will help.

I'd totally suggest seeing a different endocrynoligist - the one you have obviously isn't listening to you. The best endo won't just listen to the numbers and the symptoms - s/he'll also listen to the patient.
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#55 of 107 Old 07-22-2006, 11:32 PM
 
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thank you very much, i am going to do just that---call another endo. I am apprehensive about doing that only because every single damn endo in my area isnt accepting patients until september, october and november. I am already in with one, and that took alot of legwork and crying to get in. im going to my GP on monday, and will ask for a beta blocker. that is safe with nursing? I cant believe this endo wants to wait 6 months before giving me anything, he thinks it will just go away on its own. Im getting worse, not better. I am just really bad. I yell at my kids for NOTHING. They are doing nothing wrong sometimes and i snap. I cant go on like this. Thanks so much ladies!

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#56 of 107 Old 07-23-2006, 12:22 AM
 
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hugs mama...... i have gone hyperthyroid after both pgs..... graves disease.... less than 0.01 tsh.... i have been a terrible mom, i look like crap, feel like crap, feel crazy....
dh does not understand it.
i donnt for that matter. the pills taste so fricking gross.....
i hate it too mama...
i would find another doc too....
btw- i yelled at ds for pooping today. you are not alone.
when i am freaking bad i either try to go somewhewre in public or call a friend. i need to be accountable.
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#57 of 107 Old 07-23-2006, 12:05 PM
 
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to you too. I just feel completely nutso. every single day. I dont understand though----if i have pregnancy induced hyperthyroid(im not pregnant now but was last year) does it go away? i see you said you are on meds for it....does it ever go away, or sometimes does it stay? I dont understand if some people never get rid of it why he wouldnt want to make it better for me right now and give me something. Im planning on telling that endo if we dont do something now ill admit myself to the psych ward because i swear, someone is going to put me in there if i dont. i cant leave my kids, but i briefly thought if i wasnt here to badger them and yell and scream like a nutty woman they would be better off. I would never ever leave them, but i thought if i just let my husband raise them they would be better. But to leave them would be way worse. My grandmother left 4 kids of hers because she had a breakdown and couldnt afford to feed them or clothe them, so she let them live with their rich father because she thought it was best for them. When i thought of that, i said i could never do that to them. I had 4 uncles and aunts i never knew until i was 20. I dont want to be like that. But i often wonder how much damage i am doing....i lose it often, and i mean LOSE it. I dont hit them, never ever, but i can scream and curse, its getting really bad.

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#58 of 107 Old 07-23-2006, 12:36 PM
 
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It's NOT your fault it's the thyroid in overdrive. Did you that women used to be institutionalized because of it and most wasted away and died. It was often misdiagnosed as thisngs like bipolar disorder and schizopherenia. It's NOT your fault. If you got on the meds you need you would act and feel MUCH better. Hang in there.

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#59 of 107 Old 07-23-2006, 02:51 PM
 
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oh mama- you areo not alone. no you should be on medication!!!!!!!
It is safe to bf on both meds- PTU or the other one...
I have. If that is the reason he is not giving you the rx- get another doctor. mine did go into remission after 1.5 years- then back after i had dd.
the reason he says it is pg induced is because our homromnes change during pg then they do not regulate after we have our babies. thyroid troubles are common postpartum,.
please go on amazon and get some books on it- or to the library. there is a group on yahoo.com also for graves disease....
get someone to help with your kids. i would call a local church or something and explain what is going on. also- start taking some vitamin b complex....
hugs mama. i have been there. it sucks sooo bad.
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#60 of 107 Old 07-24-2006, 07:06 PM
 
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The dr said i could have ptu, but he thinks it will just disappear on its own in 6 months. I saw my GP today and we discussed how the beta blockers arent going to work because she isnt comfortable with giving them to me while nursing. SHe showed me her book where it said that most beta blockers will pass through the milk and the baby could experience slow heartrate and stuff like that while on it. I opted to not take it, and she was NOT comfortable giving them to me. I am certainly not comfortable taking them. Nothing else is working, not zoloft, and years ago i took buspar, and paxil, and then prozac, with bad side effects. so there really isnt anything else i can take, although she is researching it to see if maybe there is something. But she said the main problem is the thyroid, and she will be speaking to the endo herself to convince him not to wait 6 more months, due to the fact that there isnt anything i can take for the severe moods. I put in a call to the endo today but have not heard back. I am trying some chakra work to open up the throat area and im wearing a blue bead near my thyroid. Hopefully some energy work will help.

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