I know that there are expectations that I just can't have - so I'm not sure that it's a change in me
per se, that needs to happen. ('Course, I always need to be changing!) This understanding is really part and parcel of having a child with special needs (Grace's go WAY beyond just this, but are mostly more physical than cognitive.) The reason I believe that she truly needs to look at my mouth (which is really what I should have titled this post) is that her issues are mostly in articulation - she has NO consonants. When I have her study my mouth, and even better, when I can get her to touch my mouth/throat, she has more success mimicking the sounds.
Sometimes I can get her to look at me by saying "where's mommy's mouth." She'll point to my mouth then, and I might have a couple of seconds to work on the artic.
Having a child with SN just so often flies in the face of my GD ideals. I HAVE to mess with her in ways that she doesn't like, that, probably to her feel like a physical violation, just to, literally, keep her alive. These things have involved everything from changing her tracheostomy tube (which, thank god, she no longer has!!!
) to feeding her through her g-tube, both of which made her miserable and which she fought valiantly against. I had/have to restrain her to do what was/is necessary. Because of this, I really do let a lot of other stuff slide because I want to give her as much physical autonomy as possible.
Anyhow, I've spent lots of time in the SN forums, but wanted to get a purely-GD perspective because I figured this was an issue that even moms of "typical" kids have to deal with.. Thank y'all very much for the suggestions - I really do appreciate them!!