The Thyroid Thread (Part II) - Page 2 - Mothering Forums

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#31 of 863 Old 08-27-2008, 06:49 PM
 
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I went to see my care provider and got my labs. I was surprised to see that my testosterone has tanked! This is sorta funny to me because I do still have a fairly decent sex drive...just to exhausted to do much of anything about it!

Labs:
Thyroglobulin Auto Antibody: <20 (range:0.0-40.00)
Thyroid Peroxidase Auto Ab: <10 (range:0.0-35.0)
TSH Reflex: 1.79 (range:.040-5.00) **This was 0.9 in Jan 08**
B12: 549 (range: 247-911)
Folate: >24 (range:5.4-24.0)
Free Testosterone:0.8 (range:5.0-40.0) Egads eh??!?
Rheumatoid Factor: 24 (range <20)
Free T4: 1.1 (range: .07-1.5)
Cyclic Citrullinated Peptd AB:3 (range: <20)

Is the thyroglobulin the one that would indicate Hashimotos?
I think we missed the free t3?
Is there anything missing from my list (re: thyroid eval) that I still should get?

Sadly I came away from my appt. feeling a bit like a dork. Not really my care providers fault, just how I felt I guess. I did put together my list and I nearly chickened out and kept it in my pocket because it felt like a goofy list of complaints! Is that totally lame of me or what? In the end I'm still not on anything for my thyroid because....drum roll please....my labs don't indicate a need for it! ::: She said that we would just keep watching my labs and when my TSH starts to move then we could get started on a low dose and wait for my numbers to really shoot up to adjust it.

By far my biggest complaint is fatigue - well that and a giant thyroid with a nice fat and happy growth - and the more we discussed my fatigue we are in agreement that I'm not sleeping well. Which I'm not. So I got a prescription for something and really hesitate to take it! I want sleep. I need sleep. I don't want to take a pill to help me sleep! I truly believe if my body was functioning as it should sleep would come much easier.

A final question. Should I ask for a referral to an endo? When my RA factor came back indicating RA she quickly and without hesitation referred me to a rheumatologist. If she thinks I'm having a thyroid disease why not send me to a person that has this as a specialty too?

Time to grow a spine and ask for something for my thyroid and a referral - right?

~L.
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#32 of 863 Old 08-27-2008, 07:08 PM
 
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It seems to me like it's possible that you're experiencing adrenal fatigue rather than a thyroid problem. Not sleeping well is a sign of problems with melatonin (produced by the adrenals, I believe), the secondary producer of testosterone is the adrenals as well. However, adrenals aren't my forte and I could be completely wrong- maybe it's a pituatary problem?
Just thought I'd throw that out there. Hopefully others will have better advice.

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#33 of 863 Old 08-27-2008, 08:49 PM
 
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Problems sleeping can also be a thyroid issue.

Your TSH doubled in eight months? I'd see an endo. Between that and the growth there is an issue.

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#34 of 863 Old 08-28-2008, 03:16 AM
 
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Originally Posted by AfricanQueen99 View Post
Problems sleeping can also be a thyroid issue.

Your TSH doubled in eight months? I'd see an endo. Between that and the growth there is an issue.
Not sure where my brain is today, I totally missed both of those points.
ITA, an endo's a must with those two points in consideration.

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#35 of 863 Old 08-28-2008, 03:00 PM
 
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Alrighty then...gonna make a phone call to ask for a referral to an endo. Thanks so much for your insight thus far!

As a strange side note here. I noticed this morning that my lab papers all have my gender listed as a male! Could that possibly make a difference when they list reference ranges? I mean a normal testosterone level for a man is bound to be different than for a woman..right? Could the same be said for TSH and all the others?

Weird and annoying stuff keeps making this all feeling as though I'm chasing a piece of fluff in a wind storm.
~L.
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#36 of 863 Old 08-28-2008, 04:44 PM
 
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I had horrible sleep problems when I first started having my thyroid and adrenal symptoms. And coincidentally (or not) I also saw a modest increase in TSH and said hey, not the same as it used to be when I felt fine, but was dismissed.

I take melatonin to sleep. You'll need an open-minded endo who will feel that an increase in TSH from 0.9 to 1.79 is significant, even with symptoms (though a growth is much more concrete, and maybe that will make a difference).

And yes, I'd see if I could get the normals for a female--I _think_ the thyroid levels are pretty much the same for men and women (not 100% sure though) but the other stuff, you should double-check.
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#37 of 863 Old 08-29-2008, 01:19 AM
 
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Your labs look a lot like mine. My antibodies are not as high (in the hundreds, not thousands), but otherwise our labs are pretty darn similar. I wish I had more information to give. I have not even been diagnosed yet...I had the thyroid panel done as part of an infertility workup and my RE told me the antibodies were no big deal since the rest of my labs were not far off the normal range. He gave me 25 mcg of synthroid "to prevent miscarriage" and off I went. NO diagnosis. He recommended a followup TSH in 6 weeks. NO followup antibodies or other labs. So I am just waiting to be able to see a doctor who knows something.

Anyway, the sites I have found most useful thus far are www.stopthethyroidmadness.com and about.thyroid.com. Unfortunately neither of them addressed the vast majority of my concerns.

I hope this helps.


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Originally Posted by JacquelineR View Post
Ok, so we got back my thyroid panel today and it's looking like Hashimoto's is the dx. Here's the results:

TSH: 3.26 (range: 0.4-2.5)
FT4: 1.4 (range: 0.8-1.9)
FT3: 2.25 (range: 1.8-4.2)
RT3: 22.2 (range: 9.0-35.0)
Anti-TG: >3000 (range: <=40)
Anti-TPO: >1000 (range: <=34)

This is while on 100 mcg levothyroxine (though that dosage had only been for 2 weeks).
So, we've agreed to start on 1 grain Naturethroid (go off the synthetic) and we started with Selenium (along with the zinc I'm already taking).
Any thoughts or advice from anyone? Best place to look up info on what a dx of Hashi's really means (besides the obvious- that it's auto-immune)?
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#38 of 863 Old 08-29-2008, 01:38 AM
 
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you might try realthyroidhelp.com also

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#39 of 863 Old 08-29-2008, 01:50 AM
 
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subbing

I'm struggling to balance my adrenal fatigue and thyroid hormones. I've been on Armour for 19mo and my TSH is now at 0.936, but my thyroid antibodies are all over the place, my cholesterol is very low (129, target 170-200), and my iron stores are low. I'm gearing up for another rearrangement of hormone levels over here :

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#40 of 863 Old 08-30-2008, 02:48 PM
 
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I'll check that out, bigeyes, thanks. I've been nosing around ithyroid.com lately too (again). I've never seen the realthyroidhelp.com site before. I like Stop the Thyroid Madness. There was another one I stumbled onto that I can't find now. When I find it, I'll post.
My question of the day is:
Is anyone on NatureThroid? Does anyone know if it's supposed to be taken sublingually like Armour?

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#41 of 863 Old 08-30-2008, 04:09 PM
 
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you can, it doesn't dissolve as well, though.

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#42 of 863 Old 08-31-2008, 02:21 AM
 
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Originally Posted by bigeyes View Post
you can, it doesn't dissolve as well, though.
Thanks for the answer.

After poking around in the supplements list on ithyroid.com, I added sulfur (MSM) into my supplements the other day and holy cow. I had been in so much pain (just general joint and muscle achiness, popping of joints when bending them, joints seizing up, so on and so forth) and after adding 1000mg for just a couple of days, my pain has decreased by half if not more.
When I saw sulfur on the list of vitamins/minerals which needed supplementing in people with thyroid conditions, a little light went on in my head. I know it's gross, but I used to eat match heads as a child. I'd dig through my parents' ashtrays and eat all the heads off their matches. I craved them. This along with eating handfuls of salt actually prompted my gran to tell my mom that if I was craving it badly enough to do that, she should let me because obviously my body needed something in it- she even suggested maybe it was the sulfur.
Has anyone else added sulfur into their supplements? If so, what were the results for you? Anything as extraordinary as mine?
I have a couple more supplements to add into my regime after looking at the list from ithyroid.com, most are covered by a multi-vitamin my ND has me on, but there are some which aren't quite to the levels suggested by that site.
Just had to share.

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#43 of 863 Old 08-31-2008, 02:49 AM
 
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Originally Posted by JacquelineR View Post
Thanks for the answer.

After poking around in the supplements list on ithyroid.com, I added sulfur (MSM) into my supplements the other day and holy cow. I had been in so much pain (just general joint and muscle achiness, popping of joints when bending them, joints seizing up, so on and so forth) and after adding 1000mg for just a couple of days, my pain has decreased by half if not more.
When I saw sulfur on the list of vitamins/minerals which needed supplementing in people with thyroid conditions, a little light went on in my head. I know it's gross, but I used to eat match heads as a child. I'd dig through my parents' ashtrays and eat all the heads off their matches. I craved them. This along with eating handfuls of salt actually prompted my gran to tell my mom that if I was craving it badly enough to do that, she should let me because obviously my body needed something in it- she even suggested maybe it was the sulfur.
Has anyone else added sulfur into their supplements? If so, what were the results for you? Anything as extraordinary as mine?
I have a couple more supplements to add into my regime after looking at the list from ithyroid.com, most are covered by a multi-vitamin my ND has me on, but there are some which aren't quite to the levels suggested by that site.
Just had to share.
Yeah, sometimes it's amazing when something just clicks as you read on one of the sites.

Unfortunately, I can't do sulphur. We moved to Hawaii and I found out every time the volcano acts up I get migraines from the sulphur. I bet if I took a supplement with sulphur it would kill me.

Sea salt helps me, though, and I added selenium.

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#44 of 863 Old 08-31-2008, 08:27 AM
 
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Hi all,

I'm new here. I've been looking around the threads, Parts I and II. Lots of info! It's going to take me a while to process it all.

Here's my deal. I just went to the doc for crazy fast heart rate. High pulse and high BP. I had a physical in early August and they said all was fine. Turns out the thyroid info came in late and never got looked at. My TSH was .01. I think. I also have a pretty big thyroid nodule. The doc thinks the heart stuff is related to an out-of-whack thyroid. I have also steadily been losing weight. I had chalked that up to nursing a 7 month old who doesn't like solids, but it could easily be something else.

Other info on me: I had a baby girl in January. Before that I had 3 miscarriages and was diagnosed with a possible blood clotting disorder. Supposedly the thyroid can potentially have something to do with that, but I don't know what. Anyway, my thyroid was monitored throughout the pregnancy and I think it was fine. We have lots of info anyway. LOL.

My main worry is that they'll want to give me something that isn't compatible with breastfeeding. Or that they'll diagnose me with something chronic when this is actually my body still getting itself in order postpartum. I am calling the endocrinologist on Tuesday.

I know the endo because I also have a thyroid nodule and I had him check it out a few years ago.
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#45 of 863 Old 08-31-2008, 09:19 AM
 
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Jacqueline, holy moley! I did a lot of the stuff on ithyroid.com (back before I had a healthcare provider) and although it dramatically improved my thyroid function, I never had any other significant changes, positive or negative (but my adrenal and thyroid symptoms were my most pressing, so at least it addressed one of them quite well). But wow!
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#46 of 863 Old 08-31-2008, 11:02 AM
 
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Girlprof - how do you learn about your large nodule (u/s or FNA)? How long have you had it?

The synthetic hormones (Synthroid et al) are all compatible with nursing.

Angela
Chatty Girl - 3/2006, Lovey Boy - 1/2010, Delicious Baby Girl - 1/2012
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#47 of 863 Old 08-31-2008, 12:39 PM
 
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Jacqueline, your reaction to MSM made me wonder about something I'd read about, so I went poking around. I _think_ MSM is the same type of sulfur found in "high-sulfur" foods (high in free thiols), like eggs, dairy, and a lot of leafy green things.

http://www.livingnetwork.co.za/heali...hur_foods.html

This is the list that I was thinking of, with high and low sulfur foods. I think you've got dietary restrictions, right? I was just wondering if you happen to be avoiding a lot of high sulfur foods.
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#48 of 863 Old 08-31-2008, 02:28 PM
 
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Jacqueline, your reaction to MSM made me wonder about something I'd read about, so I went poking around. I _think_ MSM is the same type of sulfur found in "high-sulfur" foods (high in free thiols), like eggs, dairy, and a lot of leafy green things.

http://www.livingnetwork.co.za/heali...hur_foods.html

This is the list that I was thinking of, with high and low sulfur foods. I think you've got dietary restrictions, right? I was just wondering if you happen to be avoiding a lot of high sulfur foods.

I either avoid nearly everything on that list or I'm bad for not eating it (excepting onions and a few other things). We avoid dairy, eggs and wheat and limit soy and goitragenic foods (cabbage, broccoli etc). We use a lot of onions and garlic, starting to use bok choy and bean sprouts more often now that I have a wok.
I guess this explains why I'm craving dairy, eggs and chocolate so badly.

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#49 of 863 Old 08-31-2008, 11:01 PM
 
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Originally Posted by AfricanQueen99 View Post
Girlprof - how do you learn about your large nodule (u/s or FNA)? How long have you had it?

The synthetic hormones (Synthroid et al) are all compatible with nursing.
Hmm.. Are NatureThroid and Armour incompatible with nursing?

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#50 of 863 Old 08-31-2008, 11:19 PM
 
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no

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#51 of 863 Old 09-02-2008, 03:15 PM
 
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Hi all. I went to the doctor a month ago to ask about Adrenal Fatigue (I should get those results next week) and had blood drawn. Blood work shows that TPOs are a little high (478) but everything else is fine with the exception of a few vitamin deficiencies. They sent me for a scan which I should also get the results back next week. I've had the symptoms for sure since I concieved my second child (over three years ago). so I'm guessing that I either have Hashimotos or cancer?
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#52 of 863 Old 09-04-2008, 11:18 AM
 
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Originally Posted by AfricanQueen99 View Post
Girlprof - how do you learn about your large nodule (u/s or FNA)? How long have you had it?

The synthetic hormones (Synthroid et al) are all compatible with nursing.
My primary care doc spotted the nodule from across the room (!) several years ago. It's grown a lot since then. I've had an u/s and also a biopsy, but quite awhile ago.
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#53 of 863 Old 09-04-2008, 11:23 AM
 
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Here's a quick update. I like the doc I saw yesterday, but let's see what you all think.

He said my TSH was low, but that wasn't the important thing. We are doing a blood test for free T4 (or free T3? I don't remember). He said all the crazy symptoms I'm having are probably thyroid related. Well, almost all. My plantar fasciitis isn't, too bad, I'd love to get rid of that.

He talked about two things: a scan and an uptake test. Both of those involved radiation, or radioactive iodine. When I told him I was breastfeeding, he called the lab and talked it over. They said no uptake test for sure. We all said, well, not necessary since we won't be doing any radioactive treatment on me while I'm nursing.

I asked what we would learn from the scan. He said it would tell us whether the extra thyroid stuff was coming from the nodule or the whole thyroid. But it seemed like treatment would be the same either way so now we are not doing the scan either. Yeah!

So he gave me two meds. I don't have the info here. One is a beta blocker. Medizol or something like that. The other is an anti-thryoid thing. I think the abbreviation is PTU, but I can check. He said both of these were compatible with nursing.

Thoughts?
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#54 of 863 Old 09-04-2008, 03:01 PM
 
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My plantar fasciitis isn't, too bad, I'd love to get rid of that.
People in my thyroid group have mentioned that as a symptom of undertreated hypo

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#55 of 863 Old 09-04-2008, 05:13 PM
 
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Do you (or your doc) have any desire to remove the nodule via surgery? Then they can determine if it's cancerous. (A chick on another board did this, it was benign, no problems since.)

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#56 of 863 Old 09-04-2008, 10:50 PM
 
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Do you (or your doc) have any desire to remove the nodule via surgery? Then they can determine if it's cancerous. (A chick on another board did this, it was benign, no problems since.)
I sure don't want to do the surgery right now. I might consider it later. Once I'm done breastfeeding (and get through the next year at work), we'll have to re-evaluate.

So you guys didn't think anything he did sounded too crazy?
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#57 of 863 Old 09-04-2008, 10:55 PM
 
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That is REALLY interesting about the plantar fasciitis. However, I'm pretty sure I got it from swinging our baby to sleep on a hard floor while barefoot. That was not a good idea. Maybe the thyroid is making me more susceptible.
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#58 of 863 Old 09-05-2008, 01:54 AM
 
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I sure don't want to do the surgery right now. I might consider it later. Once I'm done breastfeeding (and get through the next year at work), we'll have to re-evaluate.

So you guys didn't think anything he did sounded too crazy?
Surgery can be done while nursing, but I understand if you're not interested.

Basically, you're asking if the meds sound right since you're vetoing the scan/radiation? I can't answer that since I'm not on those meds or know anything about them.

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#59 of 863 Old 09-05-2008, 11:22 AM
 
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I think I'd just feel too stressed out adding surgery to my to-do list in the next few months. Maybe that's a mistake. Thanks everyone for your help!
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#60 of 863 Old 09-05-2008, 12:04 PM
 
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Originally Posted by bigeyes View Post
People in my thyroid group have mentioned that as a symptom of undertreated hypo
WOW...That is interesting! I have had plantar fasciitis for years and years. I keep it under control with orthotics in my shoes and good morning/after walking stretching. I'd love it if it mysteriously disappeared after getting my thyroid under control!

That's it!

From now on I'm going to pay close attention to each and every symptom I notice even if it seems too far fetched to be related. Even if my foot problems wind up not being related to my thyroid this is a good reminder that seemingly not related stuff just might be and the treatment I may be receiving could not be the right treatment for me.


~L.
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