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Discussion Starter #1
Where is an OMG smiley when you need one?<br><br>
So, DS has his eval with the O2 meter hooked up to him while he eats. I was told about this yesterday at 5pm while it was snowing outside (yes, snow in GA<img alt="" class="inlineimg" src="/img/vbsmilies/smilies/cold.gif" style="border:0px solid;" title="Cold">: I was all WTF too).<br><br>
So, the woman was very nice. She said based on her conversation with the GI's NP that it was very likely he will be sent directly to the hospital's ER to be admited after the test. <a href="http://kodamama.livejournal.com/7885.html#cutid1" target="_blank">She wanted to see the video and the pictures of DS's fingers and lips that I took</a>.<br><br>
She also said that this is usually the test they do in order to get insurance to pay for things like a tube with kids with actual feeding problems when there is a back up for the OPMS or for kids who pass the OPMS but the doctor thinks they need a tube.<br><br>
So um............WTF.<br><br>
I am now getting ready for a possible hospital admission. YIKES.
 

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wow....looks like you and I might be having the same type of weekend tubewise. Amazing how quick they move when they move. I hope for your sake and your DS that they do it (I'm not wrong in thinking this was what you wanted and he needed to happen right?!). <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/hug.gif" style="border:0px solid;" title="hug">
 

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<img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/hug.gif" style="border:0px solid;" title="hug">: I hope everything goes well and you get some answers either way.
 

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Discussion Starter #5
We saw the dietician. With her help, until tomorrow, DS is on an elemental diet.<br><br>
If the test comes back normal, bananas and rice noodles will be allowed to be taken by mouth.<br><br><br>
Everything else is smoothied neocate jr.<img alt="" class="inlineimg" src="/img/vbsmilies/smilies/eat.gif" style="border:0px solid;" title="Eat">:
 

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<img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/hug.gif" style="border:0px solid;" title="hug"> i hope you get some answers!
 

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Hehehe, I notice you changed the caption to that last picture. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/smile.gif" style="border:0px solid;" title="smile">
 

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Discussion Starter #8
He drops his sats to 85 each time he eats. Each and every time food hit s his mouth.<br><br>
With neocate, he goes to 90.<br><br>
There was a resp tech and an OT who saw this. He recovers after about 10 minutes. But the drops are there.<br><br>
GI refuses to do anything or change anything unless he loses weight or aspirates.<br><br><br>
We are off to Cincinnati. I am very close to firing the GI.
 

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Unbelievable. I'm so sorry you're dealing with a GI that is just ignoring that. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/hug.gif" style="border:0px solid;" title="hug">:
 

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Discussion Starter #10
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<div>Originally Posted by <strong>Kathryn</strong> <a href="/community/forum/post/10322679"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">Unbelievable. I'm so sorry you're dealing with a GI that is just ignoring that. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/hug.gif" style="border:0px solid;" title="hug">:</div>
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He does not know much about EE. Most GIs really do not know how to deal with it or what to do. We just have to get him to the right place.<br><br><img alt="" class="inlineimg" src="/img/vbsmilies/smilies/eyesroll.gif" style="border:0px solid;" title="roll"><br><br>
Today just confirmed that to me 100%
 

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How far is it to Cincinnati for you? I hope you guys can get there soon for him. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/greensad.gif" style="border:0px solid;" title="greensad"><br><br><br>
I will admit I know next to nothing about EE as well. If he gets put on 100% elemental formula (which neocate is, right?), do you think it would fix the desats or what do you think they'll need to do for that?
 

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He drops that low and they're ignoring it?? WTF? When Connor was aspirating (different issue, I know) he wasn't even dropping sats and they STILL pushed a tube! It's been a long hard battle to fight off the tube, and he's never had a de-sat issue. Weight gain issues, yes...repeated respiratory illnesses, yes...but not de-sat.<br><br>
Anyway...I wanted to pass on to you also that I live in Dayton, a little more than an hour north of Cinci. If you are going to be there for a while and want somewhere to stay, you're more than welcome here!! We have a guest room, and plenty of toys to share! (plus a dog and a cat, if that's a problem <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/smile.gif" style="border:0px solid;" title="smile"> ) Seriously though...PM me if you don't want to have to stay at Ronald McDonald house (or worse, a hotel)
 
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