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Discussion Starter · #1 ·
Mommas, I actually have an appointment for a AFP Test on Thursday but I thought about cancelling it tomorrow. I have read up on it earlier today and found that it is not mandatory but should be offered to every pregnant women. Also, I'm not high risk and wouldn't wanna live with a 'false positive' for the rest of this pregnancy.<br><br>
Has anyone here - I'm almost sure about that - ever declined an AFP TEst? What did your doctors/midwifes say? Did you have to sign a waiver for it?<br><br>
Thanks in advance.
 

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I had it with DD #1, and it came back fine, but this time I chose to skip it. My midwife basically told me to, as well. It is highly inaccurate and I am such a worrier that I couldn't deal with a false positive. I felt comfortable with the fetal anatomy scan at 20 weeks- if there was something majorly wrong that would have been more telling I think. Didn't have to sign a waiver.
 

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I declined it. We know there is nothing that would cause us to terminate. We did the 20 week anatomy scan and everything looks perfect. I did have to sign a waiver, but it basically just said I was declining.
 

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I got it with DD1, and didn't come back with anything wrong, but declined it with this pregnancy. I just don't see the need, as even if something is wrong I wouldn't terminate my pregnancy. Sure, I guess it's nice to be "prepared", but what happens when it's a false positive and you spent all that time worrying over something that wasn't correct in the first place?<br><br>
Lots of undue stress on mom and baby if you ask me.<br><br>
The OB that I saw for that particular appointment asked me 3 times over if I was sure I didn't want it, but after that she let it drop and didn't give me any crap about it.
 

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I did it the first time around, came back negative at age 33. I declined it this time around, as well as amnio at 35. My midwife also said the results are often unreliable. You just have to be comfortable with declining, which it sounds like you are!
 

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i didnt get it with this baby, my first, because it didnt seem worth the stress to me... my OB (at the time) didnt even press the issue, she said the rate of false positives was so high, and i wasnt at risk, so it didnt matter..<br><br>
dh and i discussed it, and since we wouldnt be terminating the pregnancy in the event of a deviation, it seemed silly for US to have it done.
 

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Actually, my doc with my first said that if it wouldn't make a difference in terms of outcome (ie, I wouldn't abort based on results), then it really wasn't necessary, and there was a chance of false positives.<br><br>
During that pg, I did refuse a routine u/s that my doc recommended. It's actually a really good thing to refuse a routine test during pg and then see how your doc reacts. Do they treat you with respect or try to browbeat and patronize you? It's a good indication of how they will react if you thwart some routine at your birth. My doc politely explained the reasons she recommends a routine u/s, and politely disagreed with some of my reasoning for not wanting one... but she never got upset or tried to scare me or patronize me or anything. She just said "it's your choice," and at later appts only asked me whether I still wanted to forgo the u/s. I said yes, and that was it. No pressure. I don't remember whether I had to sign a waiver or not... but it wasn't a big deal if I did.<br><br>
And, she was GREAT at my birth, remembered details of my birth plan, etc.
 

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We skipped all tests with this pregnancy. We actually had a false negative AFP with DS -- he has Down syndrome; I was 32 at his birth. We're so so glad we didn't know! When we got his diagnosis, we had our *son* with us, who we already loved. I think, if you're a need-to-know for sure person, go straight for amnio, but otherwise there's no use in the uncertainty with the AFP.
 

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Just wanted to interject that it's a <i>screening</i>, not a test. There are not false positives. It's not looking for something definitive to say yes or no. It's looking for a risk ratio. If it comes back with a higher ratio and your baby is fine, you just had a higher risk of having a child with a genetic defect and happened to still have a healthy child.<br><br><br>
Also, not being in any specific risk category doesn't mean you're not at risk.<br><br>
What you will do with the information is a good deciding factor though.
 

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<div>Originally Posted by <strong>OpenHanded</strong> <a href="/community/forum/post/10745476"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">I think, if you're a need-to-know for sure person, go straight for amnio, but otherwise there's no use in the uncertainty with the AFP.</div>
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I agree with this. A friend recently screened high risk for Downs on the AFP screen, then had a detailed ultrasound that looked perfectly normal...but the doc couldn't definitively say all was well based on the ultrasound (they did bump her risk from like 1 in 68 to 1 in two hundred something), he told them they miss lots of cases of Downs in ultrasound and the only way to know for sure was amnio. Even though she had no intention of terminating, she felt she had to know rather than worry away the second half of pregnancy, so now she is in a 3 week wait to find out the amnio results. Stress!! She is adamant she won't be doing AFP testing at all next time.<br><br>
Good luck with this decision. I struggle with it every time. Right now I feel certain I won't get it again, but then that's what I said last time, too! I have no idea why I'm so wishy washy about it....
 

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<span>I just declined this test a few weeks ago. My mw said the two things to ask yourself about whether to get the test or not is, How would you react/what would you do if the test results came back positive? And what would your stress level be during this time for yourself and baby? That quickly made us choose to pass on the test.</span>
 

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Here's a link to a site with some info on this test. We chose not to do any testing.<br><br><a href="http://www.unhinderedliving.com/afp.html" target="_blank">http://www.unhinderedliving.com/afp.html</a>
 

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I've never gotten the AFP and this is my third pregnancy.
 

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Please help! Is AFP the same as a quad-screen test to check for neural-tube defects such as spina bifida? If so, I had one yesterday. My doctor was totally cool about it. I didn't know if I was going to refuse or not. My SIL had a horrible experience. She came back with a false positive and her doc made her wait 2 weeks before he could see her again for amnio. It was pure hell for her, and I was worried she'd miscarry due to stress. Of course, her doc didn't tell her the high rate of inaccuracy. My doctor was very open and reassuring.<br><br>
I decided to do it not because I think I would ever terminate. If something were wrong, I'd like to educate myself as much as possible before my baby is born.
 

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I always skip the AFP. With my first I did the ultra-screen but I have not done it again. I do the anatomical sonogram at 20 weeks and I am comfortable with that. My SIL and another friend got false positives with the AFP so to me it is not worth it to be scared out of my mind for the rest of the pregnancy. I figure if something is really wrong chances are I will find out at the 20 week sono.
 

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I declined for my last 4 pregnancies. I didn't decline for my first, I didn't know that I had that option. I declined for subsequent pregnancies because in my first pregnancy I tested positive to potentially have a baby with Down Syndrome. DH and I did genetic counseling. The GC even asked if we did do the amnio and it came back positive for DS, what would we do. When we said we would keep the baby, she was soooo shocked. She said, "You would keep the baby?". She made sure to be very clear that we only had a certain window of opportunity for the amnio.<br><br>
We decided against the amnio because of the risk of miscarriage. I was happy to be pregnant, but a little stressed not knowing if my baby would have DS. Well, she doesn't have DS, but she suffers from ADHD and ODD, but that's a whole different trial for us.<br><br>
So, since that incident I respectfully decline the AFP.
 

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<div>Originally Posted by <strong>diamond lil</strong> <a href="/community/forum/post/10746490"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">Please help! Is AFP the same as a quad-screen test to check for neural-tube defects such as spina bifida? .</div>
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Yes...there are a few different methods of looking at the results (triple screen, quad screen, combining results with nuchal translucency results, etc) but they all involve looking at the levels of AFP (alpha feto protein, or something like that...) in the mom's blood.
 

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with my first my doc explained it as an option and I declined. He did ask me at every subsequent visit for a few months, but I kept declining. Its to stressful. I avoid stress whenever I can! He asked, but also assumed I would decline this time as well. He was right <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/smile.gif" style="border:0px solid;" title="smile">
 

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Discussion Starter · #19 ·
I declined today. I called in and told them I didn't want it. I got the "but they'll only draw blood from your arm" speech but told her - politely - that I didn't want it because you can see spina bifida on an us and even if...the result is not going to change anything about this pregnancy so why do it. She said ok, and told me to come in tomorrow anyway to sign a waiver and just go on with regular prenatal care. THey were very cool about it, didn't ask a thousand questions etc. I'm glad it was so easy. Maybe I'll get a longer speech tomorrow though. We'll see.
 

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<div>Originally Posted by <strong>MissE</strong> <a href="/community/forum/post/10743171"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">Mommas, I actually have an appointment for a AFP Test on Thursday but I thought about cancelling it tomorrow. I have read up on it earlier today and found that it is not mandatory but should be offered to every pregnant women. Also, I'm not high risk and wouldn't wanna live with a 'false positive' for the rest of this pregnancy.<br><br>
Has anyone here - I'm almost sure about that - ever declined an AFP TEst? What did your doctors/midwifes say? Did you have to sign a waiver for it?<br><br>
Thanks in advance.</div>
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We declined ours. I had to sign a waiver that the midwife provided. I read a lot about the high false positives these tests have, and although I'd want to know if this baby had any chromosomal defects, the worry factor was much too high for me to deal with. I'm a worry-wart and this would just put me through the roof. I'm not high risk, there are no genetic history issues, and it doesn't tell you the severity of the defects...
 
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