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Discussion Starter · #1 ·
Background on my son:<br>
Cohen is 18 months. He was one of those babies who just screeeaaamed, wanted to nurse ALL the time, horrible reflux, excema, recurrent ear infections to the point of getting tubes, constant sinus and mucous issues.<br><br>
Now:<br>
The reflux has gone away for the most part (off of prevacid now) but he has never slept through the night. He is aggressive, sensory seeking, literally can't control his body - he will attack me biting, kicking, hitting, but it's literally over the smallest things. He's never had a solid poop EVER, I'm not sure if it's because he's still nursing, though. He has excema again since it's fall time, and he is literally drowning in mucous from his chest and nose. He will gag on it. He's had 13 rounds of antibiotics that don't seem to fix the problem.<br><br>
My Dad has a severe milk protein intolerance - he gets all mucousy from it. The Dr. just now tells me that perhaps Cohen has allergies. He'd had some type of allergy testing (took blood) when he was 4 months and ended up in the hospital with a crazy vomiting streak. It came back negative so I thought everything was just due to a bad immune system.<br><br>
Anyways, sorry this is long....we are going to an allergist tomorrow. What type of tests do you think they will do and what should I ask about? I think that no matter what the results are, we are going to cut out dairy and see what happens. There seem to be too many things pointing in that direction.<br><br>
I just want him to be happy and healthy. I'm devastated at the damage this has done to him, and the whole family. I'm wishing SO MUCH that it will say he has allergies and we can eliminate him and he will be *better*.<br><br>
Thanks for listening, I'm at the end of my rope.
 

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I wouldn't count on the allergist having any/all answers. You may be lucky and some of the problems might actually be allergies. But it sounds like he may have a combination of food allergies, food intolerances, and environmental allergies (eczema can be from any of those). So you may get some answers. IF it is negative to everything, or taking him off the things he tests positive for doesn't "cure" everything, you may have to do an elimination diet and food journal to catch the rest.<br><br>
You're right, it does sound like there's a dairy issue with the mucous, ear infections, etc. and it's the top culprit, so cutting it out would be a great idea. The other top ones are gluten, soy, and corn. Eggs are also a possible eczema culprit.<br><br>
Whatever you decide to do, a food journal is a fantastic idea, especially for the behavior issues. Behavior problems can be due to a salicylate overload (and those are in a bunch of different foods, and is a barrel effect so a little might be okay, a whole quart of blueberries might not be!). But generally, at least for us, we see behavior issues soon after the culprit food (within hours) so a food journal might be very beneficial for you.<br><br>
Some allergists do skin prick testing, intradermal testing, RAST (blood) testing, or patch testing. Many of them do not believe in food intolerances.<br><br>
Good luck. And if you need help in eliminating anything, just let us know! We have substitutions and recipe ideas!
 

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Discussion Starter · #3 ·
There are allergists who don't believe in food allergies?! Oh great.....<br>
My Dad did tell me last night that when he went for allergy testing recently it came back as not being allergic to dairy. But he has an immediate reaction with sneezing, mucous, etc. I guess the allergist who did his test said that there is still SO much that they just don't know or understand about allergies and how they affect the system.<br><br>
I really hope the appt. is fruitful. It's hard to live like this. I'm scared to start the elimination stuff - it sounds so daunting. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/greensad.gif" style="border:0px solid;" title="greensad"> I think I'm just down from having a child who has had constant physical and behavioral problems since he was born...<br><br>
Thanks for your reply. I'm anxious to see what testing is going to be recommended. I plan to go in armed with info so I'm not just blown off.<br><br>
I think I will start a food journal. It will be hard to keep abreast of what he eats at preschool, but it's going to have to happen. I haven't noticed an immediate reaction (except to a tootsie roll at halloween) behaviorally but more of cycles - like he will spriral down for about a week and then be better for about a week. The snot just seems constant, but we do have a dairy-rich diet.
 

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Allergists believe in IgE allergies. They just don't always believe in food intolerances, which are not IgE mediated. Behavioral CAN be from an allergy, but is more often from an intolerance. But again, you could have a combination.
 

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Discussion Starter · #5 ·
Unfortunately, you were right. The allergy (skin prick test) came back as negative to everything. He thinks that Cohen may have enlarged adenoids so now we are headed back to the ENT who put the tubes in. I'm going to continue with the no milk deal, it's helping the snot problems so I don't see why I wouldn't. The allergist didn't seem to think it helped to eliminate it but it didn't hurt to...<br><br>
Who could I go to for help with the food sensitivity problems? I could really use some guidance.
 

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My DS also had enlarged adenoids. He and DD2 were huge snorers. I didn't even use baby monitors with them because I could hear them from my room down the hall. Both of them stopped snoring when we got all their food intolerances out.<br><br>
We had the ALCAT test done (blood test). It's not an IgG test. It tests an inflammatory response against the food. It was pretty accurate for my kids (2 false negatives out of 150 foods tested for DS and 1 false negative out of 200 foods tested for DD2). It was not covered by insurance for us, but can be. There are other tests. I figured out some of ours (the worst ones anyway) through elimination and food journaling.
 

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Some GI doctors are good. Some aren't. Some naturopaths are helpful. Some aren't.<br>
The top 4 intolerances are dairy, gluten, soy, and corn (in that order). If you take those all out, they're in 80% of the foods that most people eat every day, then you can see better what the smaller ones may be, because you can rotate foods easier. We're off all four plus more, and we still have plenty of foods to rotate around, so we don't get sick of anything and so we don't develop new intolerances.<br><br>
Sorry the doctor didn't help you.
 

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I have for years thought I was allergic to meats. If I ate it I got hives, my tongue & eyes woould swell,, and I would vomit. I was fortunate to have a South African doctor who looked at all my symptoms and said, yes it is an allergy, I do not know why you are testing negative. It was not until I took antibiotics in my teens (and had an anaphylactic rxn) that the doc realized I was allergic to the abx they feed the animals, and my allergy was so severe that I was reacting. I have problems with other foods due to prep as well.
 

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Discussion Starter · #9 ·
What are the differences between the LCAT and the IgE? Man, I'm totally a freshman at this. You are SO helpful.<br><br>
On a good note, Cohen slept through the night for the first time I can remember. He's been off dairy, although I think he's gotten some in the trace ingredients, since Saturday. I was THRILLED he slept...although my boobs weren't. Lol!
 

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IgE are the regular allergies that allergists test for. A histamine response to things. That's the skin prick test, the RAST blood test, or an intradermal test (needles under the skin containing the trigger food).<br><br>
IgG is what most doctors think that intolerances are. It's a different mechanism than IgE allergies. There are different labs that do that one.<br><br>
ALCAT tests for intolerances, but it's not an IgG test. It tests for an inflammatory response to the food, in the blood. <a href="http://www.alcat.com" target="_blank">www.alcat.com</a> is the website. They probably explain it better than I do. My DS was tested for 150 foods. My DD2 was tested for 200 foods. It was not covered by insurance for us.<br><br>
You may be lucky and it might just be dairy. Keep off all of it, even trace, for both of you, and see how you do. I'm glad to hear he slept. That's awesome!! I remember my DS going from 10-12 times a night waking to sleeping through the night OVERNIGHT. It was amazing. I kept getting up to check on him.
 
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