Mothering Forum banner

1 - 7 of 7 Posts

·
Registered
Joined
·
217 Posts
Discussion Starter · #1 ·
I'm hoping this is the right place to post this...<br><br>
I have been largely symptom-free for about 5 years, but for the past 9 days I've been suffering. 5 years ago when I was pg with my first ds I hemorrhaged quite badly, so for me I have to say I'm not sure what the 'usual' symptoms are of Crohn's (I was diagnosed 5 years ago too) and wonder if this is it.<br><br>
Just wondering if anyone can sympathize, or tell me what a 'usual' flare up would be like?
 

·
Registered
Joined
·
2,555 Posts
I am curious to know as I came here for my DH. He looked it up on <a href="http://www.webmd.com/ibd-crohns-disease/crohns-disease/what-is-crohns-disease" target="_blank">WebMD</a> and thinks he may have it. For him the symptoms are strange poops (can't describe in detail as I haven't really looked) and horrible attacks of pain in the area between the tailbone and anus. He had thought it was hemmorhoids for a long time, but then I guess on WebMD it said that hemmorhoids aren't supposed to hurt that bad (just burning, itching, swelling). I think the suppositories would provide a little bit of relief because they would reduce the inflammation somewhat. Apparently an inflamed bowel tract is the hallmark of CD. But he would be in excrutiating pain for about an hour and then it would slowly subside over the next few hours.<br><br>
Anyway, what I've found so far on this board is that people have had success with <a href="http://www.breakingtheviciouscycle.info" target="_blank">The Specific Carbohydrate Diet</a>. I hope we can figure this out and I hope you find relief too!
 

·
Registered
Joined
·
361 Posts
nak<br><br>
I have ulcerative colitis. I've had this nasty thing for over 10 years.<br><br>
For me, the big sign of a flair is the bleeding and pain.<br><br>
Have you been on any drugs for it in the last 5 years? If you think you are starting to have symptoms now, I want to strongly encourage you to get to the GI dr. now. (Esp since there are long waiting lists for GI drs.) IBD is a nasty disease when left unchecked. I went into remission right after my initial diagnosis and when it started to flair again, I didn't worry/think anything about it. A month later, I had to be hospitalized for two weeks and almost lost my colon.<br><br>
I've tried SCD, but no success. What helps me the most are VSL3 probiotics. I have to take 2-4 to keep the UC in check. I also get Remicade every 6 weeks and do enemas (not fun!).<br><br>
My iron levels are chronically low b/c of the bleeding. I've been on and off prednisone for the last 10 years. I was finally able to stop the steriods when i got pregnant b/c I finally went into remission. After my babe was born, everything started up again and that is when I found the probiotic.<br><br>
I hope your disease never turns severe and you have long periods of remission.<br><br>
Also, fish oil would help with my symptoms. It would always help for a few days and then stop working.<br><br>
I know other mama here have either Crohns or Colitis. Maybe they'll chime in.
 

·
Registered
Joined
·
2,555 Posts
If my DH is not bleeding does that mean it's not too serious (yet)?
 

·
Registered
Joined
·
2,555 Posts
So now he tells me he's had bleeding for some time and just thought it was a hemorrhoid/anal fissure type thing. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/greensad.gif" style="border:0px solid;" title="greensad">
 

·
Registered
Joined
·
361 Posts
<div style="margin:20px;margin-top:5px;">
<div class="smallfont" style="margin-bottom:2px;">Quote:</div>
<table border="0" cellpadding="6" cellspacing="0" width="99%"><tr><td class="alt2" style="border:1px inset;">
<div>Originally Posted by <strong>leila1213</strong> <a href="/community/forum/post/10232832"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">If my DH is not bleeding does that mean it's not too serious (yet)?</div>
</td>
</tr></table></div>
Diarrhea is a sign of a flair/inflammation. There can also be blood in the stool that he's not seeing. I really don't know a whole lot about Crohns symptoms, and everyone is going to be different.<br><br>
If their is ANY blood, he really needs to get to a dr. ASAP b/c while it can be something like hemorrhoids, it could also be a sign of cancer. If it's IBD, then he needs to start treatment and get it under control. So, it sounds like he's gonna need to get scoped.<br><br>
If it does turn out to be IBD, then I am more than happy to share my experience and my resources with you and your dh.<br><br>
Good luck!
 

·
Premium Member
Joined
·
9,388 Posts
I also have IBD (ulcerative colitis.) I was diagnosed when the twins were two months old, so that's going on nine months ago. I had the initial symptoms, then one big and one small flare-up since then. For me, it starts with a few days or weeks of uncomfortable gas and looser bowel movements. Then the diarrhea starts, usually six or seven episodes in the early am and about as many in the evening after dinner, with the odd one during the day sometimes. After a week or two of that, I start bleeding and the pain starts. My inflammation is in my transverse colon, so I hurt high on my belly above my belly button. Sometimes during a diarrhea episode I have pain bad enough that I can't walk or talk, and sometimes nausea almost enough to vomit.<br><br>
I haven't been able to control it without medication; I take a very low maintenance dose of mesalamine three times a day, with a higher dose during a flare-up.<br><br>
I'm slowly identifying the dietary triggers that start flareups for me-- so far I know:<br>
no pesto (that was UGLY)<br>
no popcorn<br>
only small amounts of sweet corn<br>
no ibuprofen or naproxen (sp???)<br>
no beer, although wine is fine<br>
minimal dairy, only yogurt, kefir, and hard cheese, but no milk or soft cheese<br><br>
I considered the specific carbohydrate diet, and even tried it for a month, but logistically I just can't do it. If my symptoms ever got bad enough, I would, but they haven't. I can't afford the food, I can't afford the time to cook separate foods from the rest of the family, and I can't afford the weight loss. I'm nursing two babies and living on a tight budget and very dependent on my own garden, and what I can put up during the summer and fall. That diet needs too much meat.
 
1 - 7 of 7 Posts
Top