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<p>Today when I took my almost 6 mo. in because he has the stomach flu the dr. heard a heart murmur. She said it was a loud one and wanted it checked out becuz of that and also the last time I had a baby that had a heart murmur was with my twin dd who was diagnosed with aortic and pulmonic stenosis of the heart and died at almost one month old.<br><br>
This dr. who saw my baby for the first time today said the last murmur she heard on a patient it ended up being pulmonic stenosis and the boy had surgery a week after they found it. <img alt="" class="inlineimg" src="http://www.momys.com/forums/images/smilies/icon_sad.gif" style="border:0px solid;" title="Sad"><br><br>
Please tell me that heart murmurs are not always serious and can be normal and things children live with. My only experience with heart murmurs has me thinking nothing but bad thoughts. I am literally shaking as I type this here.<br><br>
He has no signs of any heart condition either. he is a chubby baby. he weighs 16 lbs 9oz at just about 6 mo. He doesn't have blue spells or turn blue. He is developing normally, etc..<br><br>
I am so scared. I am waiting to hear back from the dr. but they are trying to get me in sometime tomorrow.</p>
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<p>(Heard back from the dr. after she called the ped. cardiologist and he said to wait until Friday at 10:30am as he has no other signs of a heart problem or defect so sweety baby's appt. is at 10:30am on Friday)</p>
 

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<p>aw geez, mama, i'm sorry you are so upset. it is torture, too, that you have to wait so long to be re-seen.</p>
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<p>my heart murmur was discovered when i was almost a year old.  it was due to paten ductus arteriosus, which is when there's a hole that normally closes at birth doesn't.  it must have been pretty loud, since it was detected by a small-town GP with just a stethoscope, nothing fancy.  the docs kept an eye on me and when i was 6 and starting to have low energy due to regurgitation, they decided to close it surgically.  due to a couple illnesses, this actually waiting until i was 7. </p>
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<p>i'm now 41, have a baby of my own, and have never ever had any problems.  i am physically fit and in good health. </p>
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<p>i hope that your situation is as manageable as mine was. </p>
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<p>hug.</p>
 

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<p>Hi mama... I have a toddler, but I saw your thread on the main page and couldn't help but come give you some support.</p>
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<p>I switched peds when DS was 17 months and he heard a murmur and sent us for an echocardiogram.  He chose to send us for an echo because DS's weight gain had plateaued and between 5 months and 17 months, he had only gained 4 pound.  He was in the .67th percentile on the growth charts.  What our ped told us was that innocent murmurs are REALLY common.  He said that most murmurs are completey benign.  And that in cases where they do actually find a problem, it's rare for it to be a serious enough problem that it would actually need treatment of some sort.</p>
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<p>Now, in DS's case, he did have to have surgery for an atrial septal defect.  And it was one of the scariest things we've ever gone through.  But I will also tell you that DS healed marvelously.  Within 24 hours of surgery, they had removed all tubes except for 1 IV port that wasn't even hooked up.  He was only in the hospital for 4 days (after open heart surgery), and seemed back to his normal self within about a week.</p>
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<p>But to answer your original question, it's really uncommon for a heart murmur to need treatment.  I know that doesn't mean much to parents like us who have had kiddos with murmurs that were caused by serious problems.  One of the questions I asked after DS's surgery was about the likelihood of any future children having heart defects.  And they told me that having one child with a CHD doesn't really increase the chance of having another child with a CHD.</p>
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<p>I know how scary it is facing this possibility.  And I'm sure it must be even scarier for you because of the loss of your child due to a CHD.  All I can suggest is try to breathe, pray, and get support from your friends and family to help reduce your stress.  Do you have a local chapter of Mended Little Hearts?  They might have someone you can talk to.  Also, you could call the cardio office and ask if they can work you in sooner.  It might help if you explained to them about how worried you are and about your previous child.  And if they can't move you guys up sooner, then maybe you could just ask to talk to a nurse about your situation.  Talk to him/her about the loss of your child and ask about the likelihood of having another child with the same problem.</p>
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<p>One thing that I would take heart in is that there aren't any signs or symptoms other than the murmur.  That tells me that, even if there is something amiss, that you guys would be catching before any damage is done.  By them time we caught DS's asd his heart was already enlarged to 3 times it's normal size and he was showing signs of pulmonary hypertension and he was in need of immediate repair.  My fear is that if we had continued with his previous doctor that we wouldn't have caught it until permenant damage was done.  But your daughter isn't showing any signs right now that, even if she didn't have something wrong, that it is affecting her overall health.  I take that as a good sign.</p>
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<p>And the last thing that I will say is that if they do need to do something to fix any problems, that very young children heal so much faster than older children and adults.  Remember I told you how quickly DS recovered?  Well a friend of mine's 12 year old daughter had open heart surgery just 3 weeks before DS (with the same doctors) and it took her almost two months to get back to normal.</p>
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<p>Oh, and where are you located?  I don't know how far you are from Oklahoma, but at our children's hospital in Tulsa, we have a world renowned pediatric heart surgeon who was wonderful.  He even came in and prayed with us before the surgery.  And his cardio's office is equally wonderful, one of the cardio's who has been on his treatment team is the go-to doctor in the region for heart cath's.  So if it comes down to it and you need a recommendation for a REALLY good cardio team, and you're willing to travel, let me know.</p>
 

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<p>I'm sorry you are going through this. I have a heart murmur that was found when I was a toddler. I have lived a perfectly normal healthy life with no complications. I recently had another ecg done to see if I would need to take antibiotics before I go to the dentist and was told heart murmurs are fairly common. I hope it is that simple for you. </p>
 

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<h3>My older dd has 2 murmurs actually, but they are innocent murmurs. She had a few cardiologist appts, and he say they may or may not go away when she's older. It was scary at the time, but I have a friend with a murmur, and it doesn't affect her everyday life at all. My chiro's son had an innocent murmur as well, and they had it checked out and it was no big deal. So it does happen. I hope it's true for your little guy!</h3>
 

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<p>All three of my boys were born with heart murmers.  All three were "free and clear" by 1 year  (the oldest's murmer cleared up within the first few months).  I thought the numerous ultrasounds were kind of overkill, frankly.  They were *obviously* thriving and not suffering from any actual symptoms of heart disease. </p>
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<p>Heart murmurs like this are apparently pretty common.  Don't "borrow" worry, just be aware, keep going to appts, etc. .  Now they know it's there, they'll be watching for signs of trouble and fix anything that they find that's wrong.  Your baby is going to be OK.  <img alt="hug.gif" class="bbcode_smiley" src="http://files.mothering.com//images/smilies/hug.gif"></p>
 

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<p>My son has two murmers and both are innocent. My friend's son also has an innocent murmer. I have been told they are very common.</p>
 

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<p>DD2 was dxed with a heart murmur at 6 months, when she was 1 it went away. </p>
 

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<p>My son does has a VERY loud heart murmur due to the specific type of murmur he has.</p>
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<p>There are wide ranges of severity in heart conditions. Many heart murmurs are harmless and children will grow out of them.</p>
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<p>I cannot believe they scared you like that! That is ridiculous they were telling you horror stories!</p>
 

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Discussion Starter #10
<p>Thank you all for your replies. They have brought me alot of encouragement. I am clinging to my Saviour's hand..</p>
 

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Discussion Starter #11
<p>KianAdley has been diagnosed with Pulmonic Stenosis<br><br>
Pulmonary stenosis is a congenital (present at birth) defect that occurs due to abnormal development of the fetal heart during the first 8 weeks of pregnancy.<br><br>
The pulmonary valve is found between the right ventricle and the pulmonary artery.... It has three leaflets that function like a one-way door, allowing blood to flow forward into the pulmonary artery, but not backward into the right ventricle.<br><br>
With pulmonary stenosis, problems with the pulmonary valve make it harder for the leaflets to open and permit blood to flow forward from the right ventricle to the lungs.<br><br>
His pulmonic stenosis is mild. Mild pulmonary stenosis often does not require treatment. They can live healthy full lives with this and sometimes it disappears as they grow. And the mild form doesn't progress.</p>
 

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<p> I had open heart surgury as a Child for an Atrial septial defect and I still have a heart murmer than does have to be monitered. Its cased "some" issues over my life time but I've gne on to have a long successful and overall happy life including the safe birth of 2 beautiful Children</p>
 

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<p>Oh Mama, I'm so sorry that there is any diagnosis at all - but it sounds like it's well within the manageable range and that it shouldn't have any serious impact, and definitely no surgery right?  I just wanted to give you a virtual hug because I know that this must all be incredibly hard to deal with.  I am thinking of you.</p>
 

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<p>Sorry to hear.  I had a heart murmur as an infant but grew out of it at a young age.  It caused me no problems at all.  </p>
 
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