[PassionateWriter]

we just received a letter from teh state re: newborn testing. on one form, there is info. to provide the state that you had the test done, where, etc. etc. etc. another is a "refusal".

im not comfortable with either and im wondering if anyone in NH has UC'd and ignored this letter. and what the conseq's were.

i dont feel good filling out the first form b/c we are technically UC and our MW didnt really attend nor did she technically arrange for our nb screening to be done privately (we dont want the dna banking that has been rumored to be going around w/ states). i dont feel good about filling out the 2nd form b/c well, we arent refusing to do nb testing....just refusing to do it through the state channels.

anyone btdt w/ this issue???

im concerned but the reg. requires dr/mw's etc. to do the nb testing. says nothing about those of us who UC or who do not rush our nbs to a dr. after birth (baby has yet to see a dr. and prob. wont until at least the new year..he's 7 weeks now).

tia

 

[mwherbs]

the states have been in the business of revising their newborn screening programs recently because of technology changes- I think that legal concerns (their liability) as well as cost of care for children/people who have undetected problems has caused them to change how they receive refusals- they want the same info here in AZ- they want a copy of parent's informed consent- probably so it will protect the state from being sued for not providing essential testing if a person could have benefited from the testing and did not receive it.- they most likely will contact you again and then document their efforts as proof if need be-

 

[PassionateWriter]

well im asking if anyone has responded to the letter in NH, after having the testing done but not providing the state w the info

 

[augustacherri]

I got a similar letter here in Missouri, but I just threw it away. I haven't heard any more about it.