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hello - my 7 month old DD recently started chemotherapy for a cancerous brain tumor. chemo causes white blood cell counts to go low, making it harder for her to fight off infections. docs are especially worried about bloodstream infections, so when she spikes a fever of 101F or greater, they routinely start a course of IV antibiotics for several days. we just completed the first of at least six cycles of chemo and she just spiked her first fever so we are back at the hospital on antibiotics. beyond the chemo and antibiotics, she is also on several anti-nausea meds and an anti-seizure med. she was dabbling in solid foods before chemo started, but her appetite has been down and she's exclusively breastfeeding at this point.<br><br>
we are at an awesome children's hospital and i trust their wisdom and hard-earned experience re: best ways to keep kiddos safe and alive while on chemo. that said, i can predict that the future will hold many more courses of antibiotics for her as her chemo journey continues. all of this medicating flies in the face of what i would normally do for my child, but then again, nothing is normal about having cancer and the treatments one must endure to try to get rid of it.<br><br>
my question to all of you official and unofficial gut/nutrition experts out there is: what is the best diet I can eat so that my breast milk has the best goodies in it for my baby's immunosuppressed, chemo/poison-riddled body?<br><br>
many thanks, ~isis
 

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I am so sorry to hear about this situation <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/greensad.gif" style="border:0px solid;" title="greensad"> However, it sounds as if BM is the best and only food that is appropriate for your baby right now. I would say that through such a plight, you and your baby need to have a very nutritious, high fat diet. Your milk can help baby sooooo much. Here is what I would say.<br><br>
1) Only Wheat Free grains like Quinoa--wheat is hard on the digestive system, even of BF babies....don't make baby work hard to digest food<br>
in this line of thinking you could go grain free.<br><br>
2)Tons of fats, eat avocado, raw nuts, flax oil, cod liver or fish oil, olive oil<br><br>
3) No milk or dairy, lactose can be hard to digest for baby also--do low lactose yogurt, maybe made at home and fermented for 24 hrs, only hard cheeses like colby, cheddar, monterey jack<br><br>
4)lots of fruits obviously and berries<br><br>
5) tons of veggies, esp raw, green leafy ones<br><br>
6) you need a huge source of probiotics to pass through BM, this is good for intestines and thus for the immune system<br><br>
Here are the things Dr. Oz suggests that are particularly important:<br>
vitamin D from CLO or the sun<br>
Folic acid<br>
Tomato prodcuts- 10+ TBSP week<br>
Selenium<br>
Cruciferous Veggies like broccoli, brussel sprouts, cabbage and cauliflower<br><br>
Basically I would clean up your own health as much as possible to avoid passing anything onto your baby that isn't great. That to me means, stop using all chemicals in your home and on your body, definitely no chemical deodorants underarms, do not eat chemicals, preservatives or foods you know to be unhealthy, eat ALOT of healthy fats....you get it. I know this would be overwhelming to you,esp in such a stressful time. However, I have known many people with cancer, including my own mother, and the ones who fared the best are the ones who did all of the 'wierd' stuff like this. If you need specific help with diet see the grain free tribe in Traditional foods or the like. Best Wishes.
 

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No advice. Just a <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/hug.gif" style="border:0px solid;" title="hug">
 

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<div style="margin:20px;margin-top:5px;">
<div class="smallfont" style="margin-bottom:2px;">Quote:</div>
<table border="0" cellpadding="6" cellspacing="0" width="99%"><tr><td class="alt2" style="border:1px inset;">
<div>Originally Posted by <strong>jhow32000</strong> <a href="/community/forum/post/10279862"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">I am so sorry to hear about this situation <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/greensad.gif" style="border:0px solid;" title="greensad"> However, it sounds as if BM is the best and only food that is appropriate for your baby right now. I would say that through such a plight, you and your baby need to have a very nutritious, high fat diet. Your milk can help baby sooooo much. Here is what I would say.<br><br>
1) Only Wheat Free grains like Quinoa--wheat is hard on the digestive system, even of BF babies....don't make baby work hard to digest food<br>
in this line of thinking you could go grain free.<br><br>
2)Tons of fats, eat avocado, raw nuts, flax oil, cod liver or fish oil, olive oil<br><br>
3) No milk or dairy, lactose can be hard to digest for baby also--do low lactose yogurt, maybe made at home and fermented for 24 hrs, only hard cheeses like colby, cheddar, monterey jack<br><br>
4)lots of fruits obviously and berries<br><br>
5) tons of veggies, esp raw, green leafy ones<br><br>
6) you need a huge source of probiotics to pass through BM, this is good for intestines and thus for the immune system<br><br>
Here are the things Dr. Oz suggests that are particularly important:<br>
vitamin D from CLO or the sun<br>
Folic acid<br>
Tomato prodcuts- 10+ TBSP week<br>
Selenium<br>
Cruciferous Veggies like broccoli, brussel sprouts, cabbage and cauliflower<br><br>
Basically I would clean up your own health as much as possible to avoid passing anything onto your baby that isn't great. That to me means, stop using all chemicals in your home and on your body, definitely no chemical deodorants underarms, do not eat chemicals, preservatives or foods you know to be unhealthy, eat ALOT of healthy fats....you get it. I know this would be overwhelming to you,esp in such a stressful time. However, I have known many people with cancer, including my own mother, and the ones who fared the best are the ones who did all of the 'wierd' stuff like this. If you need specific help with diet see the grain free tribe in Traditional foods or the like. Best Wishes.</div>
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<img alt="" class="inlineimg" src="/img/vbsmilies/smilies/yeahthat.gif" style="border:0px solid;" title="yeah that">:<br>
Great advice there, and another <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/hug.gif" style="border:0px solid;" title="hug"> from me.
 

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Discussion Starter #5
thanks for the ideas. yes, it will be difficult to pull that food supply together as i am relying on free hospital cafeteria food right now, which is chock full of diary and wheat ingredients (and high fructose corn syrup!! can't stand that stuff!). i'll see what i can figure out.<br><br>
more ideas/suggestions would be much appreciated. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/smile.gif" style="border:0px solid;" title="smile">
 

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<div style="margin:20px;margin-top:5px;">
<div class="smallfont" style="margin-bottom:2px;">Quote:</div>
<table border="0" cellpadding="6" cellspacing="0" width="99%"><tr><td class="alt2" style="border:1px inset;">
<div>Originally Posted by <strong>isisreturning</strong> <a href="/community/forum/post/10283533"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">thanks for the ideas. yes, it will be difficult to pull that food supply together as i am relying on free hospital cafeteria food right now, which is chock full of diary and wheat ingredients (and high fructose corn syrup!! can't stand that stuff!). i'll see what i can figure out.<br><br>
more ideas/suggestions would be much appreciated. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/smile.gif" style="border:0px solid;" title="smile"></div>
</td>
</tr></table></div>
when you can do your shopping buy portable stuff that is quick to take back and forth to the doctor/hospital with you. Larabars are great, I buy 18 for $19 at Costco, superfood green drink will be beneficial, fruits are easily portable, always have veggies cut up and ready to eat raw incase you get in a hurry and keep cheese or cheese sticks on hand. Absolutely do walnuts and raisins. As much organic as possible. You may have to have someone else go shop for you and possibly wash and prep, husband, family member, good friend---but you not eating hospital food is crucial. Someone will have to prep containers of food for you to take with you if you plan to really do this for your child.<br><br>
a decent shopping list would be:<br>
cheese<br>
cottage cheese<br>
yogurt with probiotics added if using store bought<br>
eggs...hard boiled are easy to take with you<br>
nuts<br>
organic raisins<br>
fruits<br>
veggies....celery, broccoli,carrots, snap peas<br>
whole chickens for boiling/crockpotting with other veggies<br>
GF beef jerky is really good<br>
GF pasta for pasta salad<br>
olives<br>
avocadoes<br>
etc, etc.
 
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