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Discussion Starter #1
We got the results of the biopsy on Friday and now we have to wait until Boston gets back to us to find out what they really mean. The surgeon was not sure exactly what all of it could signify but he was sure that there is something wrong with Finn and now we have a real piece of paper that says so!!!! I know that the results say that it is most likely not cancer, but beyond that I am not sure what the other possibilities are. Before the biopsy all of the doctors except the surgeon said that they were sure that the lump was not attached to anything under the skin and that because it would 'come and go' that it was not serious. When the surgeon looked at the nodule he was convinced that it was deeper than previously thought and then when he finally got into the hand it was growing out of the tendon in his palm. The report says that the preliminary dx was possible ganglion cyst, though that was not what the surgeon told us.<br><br>
The results on the pathology report say: fibroconnective tissue with chronic and histiocystic infiltration.<br><br>
The comments section says: The hystiocytes are positive for CD68 and negative for muscle markers (actin, desmin), and CD1a. Stains for acid-fast and bacilli and fungi are negative. These findings are nonspecific differential include resolving inflammation, ruptured cyst etc. History of multiple subcutaneous nodules is noted. Clinical correlation is recommended.<br><br>
The only other thing that looks important is that the stain is negative for mast cells.<br><br>
I have no idea what we are looking at other than the surgeon mentioned that CD68 is a marker for autoimmune issues and that we might be looking at referral to oncology as that is sometimes necessary for treatment of really serious autoimmune diseases. I am trying to think about all of this with a fresh mind, but we are not doing the best here as my dh was REALLY sick the past two weeks, he was finally diagnosed with diverticulitis, though now it seems that diverticulitis and Behcet's disease (one of the possibilities for Finn) are nearly identical on cat scan and we might be looking at something connected with Finn.<br><br>
I am a bit overwhelmed, I wanted an answer, and now that we have a piece of paper, I would like to know what it is! I am a bit tired after taking care of dh and everything for the family for the past week and it really brought home just how much I need dh to get through all of this. I am the kind of person who is great with stress while it is happening and then I lose it after, but I have to wait to schedule the time to lose it now. We are straight out until next week and I have to call Boston today and find out when they want to see us, we have an appointment for the beginning of December, but the surgeon seemed to think that with these results they would want to see us sooner.
 

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Waiting is so hard..having that paper and not understanding it must be worse than just waiting without it. Did they tell you how long to expect to wait?
 

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Discussion Starter #3
I called this morning and I guess that they are not too concerned as they haven't called back yet. I was so sure that they would call the only 20 minutes that I was without service on my phone, but no. I am going to have to start calling tomorrow morning as the last few times that I have had to get in touch with them I have had to call more than 4 times and keep pestering to get a call-back.<br>
I am just frustrated trying to get all of it straight and since dh is back to work as of this morning we are trying to figure out what will be our schedule so he can hopefully get some overtime as we are nearly flat broke and the mortgage is due ... so hopefully we are getting the loan from the 401k that we put in for today. I guess it is really hitting home just how hard this is getting now that we are really looking at an answer and treatment. I just hope that when we finally find out the answer and have to figure out where to put hte other four kids while I take Finn for appointments. For some reason they aren't willing to let us take all of the kids to appointments, something about the rooms being too small.<br><br><br>
Question:<br>
How long would you wait for a response from the Doctors? I am not sure if I should start being a real pest and calling every few hours or if I should wait until tomorrow, they are apparently closed today for the holiday. I could call and ask for the Rheum on call but I am not sure where that would get us as they are usually mystified by Finn's case.
 
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