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Discussion Starter · #1 ·
For those of you with kiddos with bipolar disorder...does the heat bring on the rages? And do you purposefully keep your child out of the sun and heat?
 

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hydrate <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/wink1.gif" style="border:0px solid;" title="wink1"> ice packs, air conditioner, healthy low sugar snacks..<br>
I found any extreme weather, but heat especially it tends to magnify the feelings..<br><br>
also keep in mind summer disrupts routines, schools out, there's family picnics, vacations, long weekends...<br><br>
and I always believed a lot of bipolar is about frustration/expectations...some things in summer seem like all fun...like going to amusement park...you have to wait in lines, they aren't going to get every toy they want, or every piece of crap food...<br><br>
prepare in advance!<br>
discuss senarios before hand of what could happen...<br>
keep sedatives on hand (I believe in drugging bipolar children's parents <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/wink1.gif" style="border:0px solid;" title="wink1"> kidding but keep soothing escapist kind of things - a walkman for the child to tune out/drop out if they want to.
 

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Is your child on any medication? A lot of the medications cause sensitivity to the sun so that might be a part of it. I haven't seen any rages brought on by heat but he is sensitive to the sun and if he gets overheated he gets very grumpy and irritable. We trying and make sure he drinks a lot of fluids and just takes it easy.
 

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Discussion Starter · #4 ·
<div style="margin:20px;margin-top:5px;">
<div class="smallfont" style="margin-bottom:2px;">Quote:</div>
<table border="0" cellpadding="6" cellspacing="0" width="99%"><tr><td class="alt2" style="border:1px inset;">I believe in drugging bipolar children's parents</td>
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Absolutely, hand them over! <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/orngbiggrin.gif" style="border:0px solid;" title="orange big grin"><br><br>
I don't know how we are ever going to get through this summer!!! <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/greensad.gif" style="border:0px solid;" title="greensad"><br><br>
She's on three meds risperdal, guanfacine, and Concerta. They keep her stable from about 9am to 2pm. The rest is h*ll. She was doing so well in the fall and winter that I was beginning to doubt all dx and was weaning back the meds. Then, bam, spring and summer brought an avalanche of raging. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/greensad.gif" style="border:0px solid;" title="greensad">
 

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I don't see a mood stabilizer listed there and that might be part of the problem. Also it is very common for kids get more manic in spring and summer. Have they considered trying a mood stabilizer like depakote, lithium, tegretol, trileptal or lamictal?
 

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Discussion Starter · #6 ·
We had tried depakote and it worked for a time and then made her super manic. I've been asking about trileptal and tegretol...my doctor has not agreed yet. We have an appt. at the end of next week.
 

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<div style="margin:20px;margin-top:5px;">
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<table border="0" cellpadding="6" cellspacing="0" width="99%"><tr><td class="alt2" style="border:1px inset;">
<div>Originally Posted by <strong>fluttermama</strong> <a href="/community/forum/post/11607019"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">We had tried depakote and it worked for a time and then made her super manic. I've been asking about trileptal and tegretol...my doctor has not agreed yet. We have an appt. at the end of next week.</div>
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Well good luck at the appt. I know how difficult it is to find the right drug combination. We are lucky we hit the right one at the start for our son but for myself I tried many different things before finding what worked. Just keep fighting for your daughter. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/thumb.gif" style="border:0px solid;" title="thumbs up">
 

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subbing....just to see if i can get any information because i have a 14 year old dd who is prone to violent rages and outbursts. They put her on Lamictal. It hasn't seemed to work. She has always been difficult from the time she was born but up until a few months ago i was able to handle it and accept this as part of who she is.<br>
Since March, she has gotten downright uncontrollable and impossible. The insight that kids get more manic in springtime and summer was insightful. She also got her menses in May...and i wonder if that helped her spiral out of control.<br>
The psychiatrist changed her meds to Trileptal..we'll see if that does any good.<br>
I just wanted to tell you i am also going through this long journey of parenting a child who has bi-polar.
 

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Elijah is on lithium and risperdal. The risperdal wasn't really working that well on it's own so we might try and wean him off it and just stay on the lithium. The psychiatrist wants to wait until the lithium is at a full therapeutic level before tinkering with anything else. Lithium is considered the gold standard in bipolar care and I am very admittedly biased towards it. I don't understand why so many psychiatrists prefer to use the anti-convulsants without trying lithium. In my personal situation I tried many of the other drugs before requesting lithium because it was what my mom was on and worked great for her. Lithium works so well for me (and for my mom) and there is a genetic component to lithium responsiveness so when they asked me depakote or lithium I said lithium, hands down.
 

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My son was put on Lamictal first too. It didnt help but also gave him several tics.<br><br>
I dont post in this forum often, but my ds has ADHD/Bipolar. He's on Vyvanse 50mg for the ADHD (he was on Adderall for a long time but it stopped working) and Depakote at 250mg, the minimum dose. He just started the Depakote a few months back and the change has been dramatic. He def needs the ADHD meds too though, lol. He also has epilepsy, though its been in uh...remission I guess?....for 2 years. So the Depakote serves a dual purpose for him and is soooo much better than his old siezure med, which killed his appetite completely. He still has an abnormal EEG so he is staying on siezure meds for now.<br><br>
Just keep trying!! Getting the right meds can be so hard but getting them right can be so increadibly rewarding. My ds was moved to special ed last year and could only handle 2 hours of school a day. He improved so much that they have him full day this year and are starting to reintigrate him into the normal classroom. I'm so happy for him <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/smile.gif" style="border:0px solid;" title="smile">
 

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Oh and yeah, Lithium was what my sons psychiatrist usually tries first because it has the highest success rate. The only reason we opted for Depakote first was the siezure disorder as well-taking an extra med out was wonderful.
 

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They upped my dd's dose of Abilify to 10 mg(from 5mg) and took her off Lamictal. That is just as well since it was not working anyway. Has anyone had any luck with Abilfy?
 

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You should join <a href="http://www.bpkids.org" target="_blank">www.bpkids.org</a>. I think it is $40 a year to join but it was worth it because they have awesome support groups and also message boards. There are tons of different support groups for all different age groups and what not. There is even a homeschooling a bipolar child group (I'm not on that one anymore because we aren't homeschooling anymore). I am a member of one for parents of young bipolar kids and it is so helpful. I've learned so much about all the different meds and methods of handling issues. I know a few on my list have children on abilify but I don't have any personal experience with it.<br><br>
And can I just say that I find it so nice that there is a thread on the Special Needs board about bipolar? It seems to not be spoken of much here.
 

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Thanks Heavenly...i'll check it out<img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/innocent.gif" style="border:0px solid;" title="shy">
 

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<span><b>Devon is on Sabril (Vigabritrin) and since she's been on it she has been very sensitive to heat/sun. I asked the epi dr. and she said while its possible that it was unlikely. Well...I can't think what else it can be???!!!<br><br>
It is HORRIBLE. She gets blotchy and red and cries and cries.<br><br>
The Sabril is helping with the sz but man, do I feel defeat when she gets like this.<br></b></span><br><span><b>Mary</b></span><img alt="" class="inlineimg" src="/img/vbsmilies/smilies/eat.gif" style="border:0px solid;" title="Eat">:
 

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Discussion Starter · #17 ·
We got a prescription for lithium today...so we'll see how it goes...are you supposed to give lithium at a certain time of day? I forgot to ask the doctor that...
 

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What dose is she on? Elijah is currently on the starting dose which for his weight was 300mg a day. He is taking a 150mg capsule in the morning and one at bedtime. We are going to the psychiatrist on Wednesday and his dose will be increasing (because his blood levels aren't in the therapeutic range yet and his moods aren't controlled) and then he will take it morning, afternoon and bedtime. The key with lithium is to try and keep it as stable as possible in the blood. If you are doing 2 times a day then do it 12 hours apart, if 3 times a day then 8 hours apart. That's hard to do with kids because they sleep longer than 8 hours but you get the idea. Make sure that she drinks lots of water. Lithium dehydrates you and dehydration can make the levels rise to a toxic level. I assume the doctor is going to be monitoring blood levels closely? She should be getting a first blood draw 5-7 days after starting the lithium and then 5-7 days after every dose increase until the levels are stable and then usually once a month after that. Sorry if you already knew all this!<br><br>
Elijah has noticed he gets sluggish and gets a stomach ache if he doesn't drink enough water so that's one thing I really keep on him about.
 

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Discussion Starter · #19 ·
She's on the same as your son...she's 72 pounds. I feel sad that we are doing this...my doctor said she's the youngest patient he has had on lithium. She's only 7. I'm sad and in a way I wish I could have done something, anything, different rather than end up here. Sigh.
 

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Heavenly - Thanks for the heads up on bpkids. It's a great site and it's been very helpful for me. DS does not have the BP diagnosis - his psychiatrist does not use the dx until "years of treatment". But he is going to put DS on trileptal when he gets back from vacation. I believe he is using that as opposed to lithium because of the blood testing.<br><br>
I think ds is a little better than usual in the summer. He doesn't seem to feel the heat much - he hates cold. And we swim just about everyday which seems really good for him. (In winter, he often gets too cold to swim.)<br><br>
It is nice to see BP threads here. This board is the first place I first got some clues about what was going on with DS.
 
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