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Discussion Starter · #1 ·
We have been told by a pediatric surgeon that my son has a branchial cleft remnant or cyst on his neck. They have to stick a tube down this pin sized hole just under his neck on his collar bone and find the end of it. Once they find the end of it they have to remove the cyst and close it up.<br><br>
Has anyone heard of this type of cyst or know anyone that has had one? I am contemplating about whether to remove it or not. The surgeon said she would have it removed because it could get infected and cause problems. My son has had it since birth, but it has recently started leaking a cloudy fluid. I thought it was a dimple until it started leaking and took him to get it checked out. I just don't know what to do about it. Any suggestions or experience with this would be greatly appreciated!! Thanks in advance.
 

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A friend of mine had this... didn't know it though until it swelled up in her mid 20's. When she first noticed it, it was smaller than a marble. Within a day and a half, she looked like the elephant man (well, not quite). The pressure was high and it was extremely painful. She had more extensive than what is recommneded for your DS. I don't know how common it is, or how common infection is, but if the removal procedure is as simple as it sounds, I'd be inclined to be proactive.<br><br>
She takes perverse delight in calling it her "gill."<br><br>
Hope this helps.
 

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<img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/lurk.gif" style="border:0px solid;" title="lurk">:<br><br>
sorry I can't help, hopefully someone will see this
 

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Discussion Starter · #5 ·
<img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/biglaugh.gif" style="border:0px solid;" title="laugh">: Her gill!!<br><br>
Thank you for your reply. The doc said it was the cause of his gills not closing up properly. I guess I better get something done about it.
 

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I have one on my ear above the ear hole. It's small, sounds like your ds's is much bigger. I just squeeze the gunk out of it every so often. My cousin has one too. People always think I got my ear pierced there but that would be kinda impossible.<br><br>
I would go ahead and do it.<br><br>
Darshani
 

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Discussion Starter · #7 ·
Thanks for the reply. No his is very small. Like a pin mark. I have no idea how they would be able to get a tube down it. That is what made me so scared.
 

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my son was just diagnosed with this too. His is in his ear and partially blocks the outermost part of his ear canal. It is tender but only the size of half a pea or smaller. He is fourteen months and the thought of putting him under anesthesia is so scary. I think most traumatic for him will be not being able to nurse when he wakes up and until the surgery is over. His hasn't ever popped. We are hoping to wait until Oct. when our new insurance begins and to give him time to get older and for us to learn more. I would love to hear if Brandy's child had the surgery and how it went. Jesica
 

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My dd had a dermoid cyst on her right eyebrown which we had removed when she was 15 mos. Not quite the same as a branchial cleft cyst, but same general principal - a failure of embryologic cells to do what they were supposed to. I was terrified to have her go under, but there was really no choice - the darn thing was growing and it was right over her eyebrow and noticable - started off pea sized, and by the time she had surgery was about an inch. Who knows if it was bothering her or not. Anyway, the surgery was a breeze - with all my fears, I almost wish I had had it done sooner. (the cyst had grown and indented her brow bone a bit). She did great, and you can't even notice the scar now.<br><br>
The very hardest part was not being able to nurse her before surgery. We cheated a bit (they said no breastmilk for 4 hours, but we did more like 2), but then in the pre-op area, she was scared and couldn't nurse, and was inconsolable. I did everything to try to distract her, but then a compassionate anesthesiologist came and gave her a bit of versed (like valium) in a cup, and she quieted right down. We didn't have to wait long either, they took her right in, so really, her screaming was only for about 15 minutes. Still hard on me and her, but it was over fast.
 
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