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Discussion Starter · #1 ·
My son (4.5) has has one 10 day round of Flagyl and has just had another relapse. We have him on VSL#3 (just the 2nd day). Our ped really doesn't seem to know much about c. diff and I am wondering if the next stool culture comes out positive should I just go to a GI? My Aunt is a nurse and spoke with a GI at her hospital and now family is urging us to do more rounds of antibiotics.<br>
How long have people been on VSL#3 before seeing neg. results?<br>
His behaviour is crying out for something and I am getting at the end of my emotional tether.<br>
Thanks in advance,<br>
Brooke
 

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Definitely a GI doc.<br><br>
There's some interesting work out of Canada in which they re-establish normal colon bacterial flora by transferring a family members' stool into the patients colon. They use an enema technique. Sounds totally bizarre, but works extremelly well in cases in which nothing else worked.<br><br>
Refractory c diff is terrible to deal with and can be life threatening.
 

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Discussion Starter · #3 ·
Thanks, I am leaning that way.<br>
I have read about the 'broth' technique but I am not sure my husband and I would be good candidates...maybe his little brother. We are speculating that our son has had this for about 2.5 years so I can't believe we all don't.<br><br>
Thanks
 

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I guess when they studied it they found that c diff is 'created' in a person's gut by destroying their natural flora (with antibiotics), as opposed to the person having 'caught' it from someone.<br><br>
So in a hospital setting, when multiple people got c diff on the same ward, they were separate strains. So it wasn't that one c diff organism was infecting people. Rather each person was generating their own overgrowth.<br><br>
So I guess I'm saying that I'm not so sure that other family members would have c diff. And also, even if you did, you primarily have normal gut flora - which your son lacks right now - and that it what might help him in a transfer?<br><br>
I'm certainly no expert on this, but a GI doc would know more.
 

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I can't tell exactly what probiotic is in the VSL#3?<br><span style="text-decoration:underline;">If</span> it doesn't contain the strains in culturelle and florastor (s. bouldari) I'd add those in as well as they are specific to c. diff.<br>
Flagyl commonly fails in c. diff. I would try vancomycin along with large amounts of the probiotics...specifically those effective against c. diff. I'd dose a few hours after every antibiotic dose and then use in really large amounts for a long time afterward too. Klaire labs makes a probiotic that has both of those strains in it that is antibiotic specific...though you need a doctor who has an acct. with them or starts one to order. Both are available seperate. Again, maybe the VSL#3 has those anyway. I've not run across it before in researching c. diff with my son.
 

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Discussion Starter · #6 ·
Flagyl commonly fails in c. diff. I would try vancomycin along with large amounts of the probiotics...specifically those effective against c. diff.<br><br>
What I am wondering is if the vancomycin will also kill the spores?<br>
Have you ever done pulse dosing?<br><br><br><br><br><br>
Rats have to finish later..... my guys are just not having me on the computer right now!<br><br>
thanks<br>
brooke
 

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Discussion Starter · #7 ·
Alright...<br>
I have just found on the site the strains:<br><br>
VSL#3® is a high-potency medical food probiotic consisting of live freeze-dried lactic acid bacteria. Each dose contains 450 billion live lactic acid bacteria per packet in defined ratios of lyophilized Bifidobacterium breve, Bifidobacterium longum, Bifidobacterium infantis, Lactobacillus acidophilus, Lactobacillus plantarum, Lactobacillus paracasei, Lactobacillus bulgaricus, Streptococcus thermophilus.<br><br>
I guess I should also give him a Florastor a day? Seems like so much but....<br>
sbgrace: How long has your son been dealing with c. diff.? Any tips<br>
on laundry?????? It is a nightmare around here.<br><br>
Also thought I saw somewhere that the 2nd round has a good percentage rate for getting rid of it. I am just so sceptical of so much I am reading.<br><br>
THANK [email protected]!!!!!!!!!!!!
 

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Kelly Karpa is a pharmacist has battled C. diff in her son, described in book "Bacteria for Breakfast". I would see exactly what she did (I think it was just VSL3 but more than recommended dosage?) She has a consulting practice as well, Apple a Day Health Solutions, do web search.
 

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Discussion Starter · #9 ·
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<div>Originally Posted by <strong>JaneS</strong> <a href="/community/forum/post/9953296"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">Kelly Karpa is a pharmacist has battled C. diff in her son, described in book "Bacteria for Breakfast". I would see exactly what she did (I think it was just VSL3 but more than recommended dosage?) She has a consulting practice as well, Apple a Day Health Solutions, do web search.</div>
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Yep this is where I heard of VSL#3. In the book she had her son on one sachet (1/2 in morning and 1/2 evening) per day. We are working our son up to a full sachet a day last day being tomorrow and then on Monday work on one full sachet a day.<br>
Thanks!
 
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