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Discussion Starter · #1 ·
I have symptoms of celiac disease, but I never questioned my doctor about it at the time (sleep deprived). Ever since I can remember I have recurring canker sores. Very painfull, very large and last about a week and a half. I am only canker sore free about 2 weeks out of a month...the rest of the time I have one, two, or three large painfull canker sores. I have always been a big sleeper. I don't have diarrhea....but almost clay type looking stools (sorry TMI). I get at least 2 headaches a day. Stomach cramps as well. I talked to the doctor about my symptoms the other day except for when she asked if I had diarrhea I said no, because I thought diarrhea only meant that you had wattery stools...not softer stools, so maybe that's why she is sending me to a dermatologist. Here is the tricky thing though. WHen I am pregnant (twice) I don't get any canker sores at all. Can celiac disease disappear during pregnnacy and then come back after?? Should I still go to my dermatolagist appointment (dr referred me for the canker sores) or should I reschedule with my regular doctor and ask her for testing?<br><br>
TIA<br>
ANgela
 

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when i told my dr i thought i had a problem with wheat, he acted like i was a nutcase. a test for celiac came back normal, but i cut out gluten anyways. i have been gluten free (for the most part) for over a year now and i have never felt better. interestingly enough, this past week i ate more wheat than i have in a very long time (family visiting with in-laws and i just went with the flow on the meals and all they eat is bread and pasta) and my mouth filled up with canker sores. i used to have them all the time too, but not at all since i changed my diet.<br><br>
i think the best way is to just cut it out. my research has shown that many many people are non-celiac gluten intolerant. cutting out wheat can be a very healthy thing to do. it just takes a lot of work at first while you get used to it <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/smile.gif" style="border:0px solid;" title="smile"><br><br>
good luck!!
 

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True celiac is when the gluten essentially kills the cilia in your intestines and prevents you from properly digesting your food or absorbing nutrients. Pregnancy won't change that. (My mom and aunt have it. I had the endoscopy test which was negative and I seem to be fine with wheat.)
 

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The pale stools are caused by malabsorption, I would insist he run the labs to check for it.
 

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Are you taking pain relievers at all for your headaches? I had an abcessed tooth a couple months back and took a lot of ibuprofen until I could get in to see my dentist, and I had a ton of canker sores then. I read up on it, and ibuprofen can and does cause the mucus lining in your mouth (and other parts I'd assume) to change, thus causes canker sores and sore throats. Are you drinking or eating anything with caffeine? Do you take probiotics?
 

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Discussion Starter · #6 ·
I don't do pain relievers unless absolutely necessary (maybe twice a year)<br>
No caffeine (baby can't tollerate it)<br>
No probiotics because I haven't found a non-dairy probiotic (nursing baby can't tollerate dairy, soy, eggs, citrus, caffeine, and oats)
 

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the fact that your nursing wee baby can't tolerate your eating so many items, with your pale stools, would seem to indicate a substantial digestive weakness on your part - something regular doctors don't really know what to do about. I've cut out wheat for a year now, tried it for a month and felt awful again, when I asked my doctor about this she said that if I felt better not eating it then I shouldn't (I do love her common sense advice!) but said the celiac tests are invasive and not always accurate & felt they were a last resort.<br><br>
have you checked out the "healing the gut tribe" threads? they are dauntingly long and I can't say I participate, but lurking is always informative! The specific carbohydrate diet is the first *healing* diet that I have had marked success with - when I follow it I feel more like myself, if that makes sense. It has diminished so many low grade immune issues, and I feel very nourished on it. The whole emphasis is on re-balancing your intestinal flora while not aggrevating your digestive system, this will definately help your little breastfeeding babe as they inherit their mom's digestive health. I swear, one of the important things that children teach us is that we also need to mother ourselves. best wishes, I hope you find a way to better health.
 

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Discussion Starter · #8 ·
WHen someone is sensitive to things can it cause....psychological problems as well (no drive to do anything, sleepy, etc)??
 

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<div style="font-style:italic;">WHen someone is sensitive to things can it cause....psychological problems as well (no drive to do anything, sleepy, etc)??</div>
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Abso-f'in-lutely! I had depression, anxiety, insomnia. There is a lot of research done on digestive disorders and brain connection. The gut manufactures the neurotransmitters, makes perfect sense.<br><br>
Canker sores are an indication of malabsorption of nutrients. They are causes by a simple herpes virus (no not that kind of herpes) but are effected by nutritional status, I think the b vitamins specifically. Could be a number of things besides celiac, including yeast/bacterial problems. Your digestive and immune system changes during pg, so it indeed could effect you.<br><br>
I will answer your post too in Gut Healing Tribe but gotta run now, DS is waking from nap...
 

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They can only test for dead cilia in your intestine through biopsy and even then there is no guarantee of accuracy.<br><br>
Two separate immunologist/allergists have told us that the best test of an allergy/intolerance (because many of these food problems are not full-blown antihistimine-provoking allergies and therefore won't show up in bloodwork) is to just remove it from your diet and look for a change. If there's a change--you had a problem. It doesn't get any simpler.<br><br>
Also... long term food intolerances like this are suspected to cause autoimmune disorders. So if you have any one of the tens of AI problems, I would seriously start looking into your diet.<br><br>
And gut permeability is an overwhelming subject. I actually just bought a book that is SUPPOSED to be mercifully concise and clear. I'll let you know!
 
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