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Discussion Starter · #1 ·
We have yet to have our IEP and I am already having issues with the school district.<br><br>
We met with a pre-school specialist, and our EI coordinator in June, and it did not go well. They said they would not be able to do her IEP until mid October. DD turns three in two weeks, and EI said they would pay until the end of September. Then EI sent me a letter stating that they would do an IPP, but I never heard anything from them or the SD.<br><br>
I called EI and our coordinator was rude and said "You can't expect us to pay for EVERYTHING". I asked then WHY did they send me a letter stating they were doing an IPP, and that I don't want DD having this huge gap in services". She said the IPP was just so to cover until the SD does the IEP.<br><br>
I then get a call from the SD for a speech evaluation (DD is non-verbal). We went today, and it wasn't great. I am constantly surprised at the attitude of people who work with SN kids. She kept talking to DD like she was a baby, talking in a high pitched voice, saying "Do you want to draw, do you want to draw on the paper". DD doesn't draw. She has severe hypotonia and isn't even feeding herself with a spoon yet. Then she wanted DD to get off the chair and get a piece of paper she dropped. I had to explain to her that DD doesn't walk. Do these people read the files of the children they see?<br><br>
DD was pretty funny (to me <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/redface.gif" style="border:0px solid;" title="Embarrassment"> ) she kept inching closer to the woman and grabbing her paper and pen, the woman seemed a little irritated, then DD wanted her to pick her up and DD acted like she was going to give her a hug, but she grabbed her by the back of her hair and pulled super hard. Ugh. It took us awhile to get her hands out of her hair, but inside I was <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/lol.gif" style="border:0px solid;" title="lol"> . DD might have been thinking "don't talk to me like that lady".<br><br>
Soooo, after explaining to her WHY I don't want DD in pre-school, and my concerns of the quality of therapy (and I didn't add how unimpressed I have been so far with anyone from the SD) she would recieve, she said that if I didn't put her pre-school the SD might only give me a half hour a month of ST! She gets two hours a week now. I felt like I was being threatened. "If you don't do what we want then you don't get any services" type of attitude and that is the attitude the "pre-school specialist" had as well. Then she told me that our district is year round, so there would be several weeks on and then several weeks off, and DD would not get therapy during those weeks.<br><br>
She isn't walking or talking, and has some other issues, but being without therapy for several weeks is o.k.? NONE of it makes any sense.<br><br>
I am not sure how many more of these evaluations I can go through. I am so close to just trying to get our insurance to cover OT, PT and ST and just pay the co-pays. It wouldn't be too bad, maybe around $200 - $300 a month. Does anyone else just NOT deal with the SD and do it all on their own? I am beyond frustrated and it has just started!
 

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How frustrating!<br><br>
We've never gone without school district services. DS started in dev. pre-k when he was 3. He started with ST and then 1/2 way through the year began OT, too. We also did private ST and OT. The following year he was in a private pre-K, but we kept school services for ST and OT. OT was on a consult basis only. He had private ST for the first half of the year. Last year in K, he only had school services for ST. I'm pretty certain that he is going to be matriculated out of speech services farily quickly.<br><br>
But, I will tell you this; I've had very mixed experiences dealing with the school district for services, while the private therapy was primarily enjoyable! When I looked at the cost for your out of pocket expenses if you were to do this on your own, I thought it looked pricey. But then I think about all the headaches and sleepless nights I had dealing with the whole IEP stuff, and then I thought $200 - $300 sounds like a pretty good deal <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/lol.gif" style="border:0px solid;" title="lol">
 

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Discussion Starter · #3 ·
Yeah, I too think $200-$300 would be sooo worth it. I am going to talk to DH tonight, I could swing it if I did a home equity loan and paid off the credit cards and then we would have that extra money to put towards co-pays. DH gets a raise in April so that will help too. The only thing that I was hoping for was that they would continue to pay for Music, she LOVES it, and for some kids the SD has paid. I couldn't swing that and the co-payments though.
 

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We just ended our ECI services with our 18mos old after not seeing enough progress in my opinion. We've now switched to PT through our hospital and OT and SLP through a different private therapy gym in town. She gets 5hrs of therapy a week and with insurance it hasn't been too terrible. We were told by our insurance case manager that often times going through the hospital is the best thing to do because they bill therapy as a hospital service and often times that won't go towards your yearly limit. I don't know if that's just our insurance or common with all insurances.<br><br>
My son will be 3yrs old in February and we already told his Service Coordinator that this fall we're ending services and switching to private, we refuse to deal with the SD.<br><br>
I have to say that I thought the services we were getting with my son throughout his 2yrs of therapy, were good. Little did I know about what private therapy would provide. I have been amazed at the difference between private therapy and ECI home-based therapy. They are not even comparable in my opinion and seeing as how ECI then transfers to the SD I'm not willing to go the SD route.
 

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It really is a personal choice and I think it really depends on what your child needs. IMO - I don't think the school district therapies are enough to make true progress with children with more severe physical disabilities. I just don't see how a home based therapy session can have all the things of a therapy center.<br><br>
However, I'm going through something similar - if I don't place my son in a hearing impaired class (if he is classified as HI) or in a special ed class (if he is classified multiple disabled) and place him at a private school they will refuse him all services. According to them - I would not be doing what is recommended by the specialists. However - after talking to a friend from our SD she said half of these people have no clue what they are doing. In the case of HI kids - the people don't even know how to read an audiogram.<br><br>
I'm fighting.<br><br>
They can not just simply give you one way and say that is it - you have rights to review, you have rights to second evaluations etc. What they are doing to you now may even be against the law - in our district they have 10 days from the day they receive his paper work (he is going from 03 to the 3 and up program too) to contact me and schedule an appointment. Then they have 60 days to perform the evaluation and a certain amount of days to get the report out. They need to have their eval by 2 years 8 months.<br><br>
My daughter is also in the child search program (HI also). I went along with what they said because I didn't want to fight. They labeled her as speech delayed which I was OK with because if she was labeled as HI she wouldn't have gotten services. But now that they are going to do it to my son (even though he has additional issues) I realize just how much she is missing out on.<br><br>
If I'm not mistaken - once you refuse their services you can't go back so just make sure this is what you want. Someone correct me on that if I am wrong please!
 

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<div>Originally Posted by <strong>4imprints</strong> <a href="/community/forum/post/8982623"><img alt="View Post" class="inlineimg" src="/community/img/forum/go_quote.gif" style="border:0px solid;"></a></div>
<div style="font-style:italic;">If I'm not mistaken - once you refuse their services you can't go back so just make sure this is what you want. Someone correct me on that if I am wrong please!</div>
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I'm not sure about this. I think you can opt back in again, but would have to go through the whole qualifying and evaluation process and a new IEP meeting, which of course, could take <i>forever!</i><br><br>
An option might be to do what we did with OT, keep the services on a "consult only" basis. For us, this meant that the OT made quarterly phone calls to us to check in with how ds was doing and the OT was avail. to the teacher to answer any questions as well. We could have scheduled a home visit if necessary, but we didn't. We opted for this just in case we determined that ds needed full fledged OT again so that we wouldn't have to go through the eval. process again. Kind of kept our doors open, so to speak!
 

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sorry no time to write much, but they are doing a lot wrong here and if you want to get educated about your rights, write letters, even get a lawyer or advocate, you can make them do better!<br><br>
right off the top of my head it seems that;<br><br><br>
you should dispute that ineffective/clueless ST's report and get an independent (better!) one done at the district's expense. All you have to say is that the testing was inappropriate and therefore the findings are inaccurate, therefore you are giving notice that you are arranging independent evaluation at their expense. easy. <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/smile.gif" style="border:0px solid;" title="smile"> (set up the appt now but have it held AFTER the bad report is in, don't give them this letter until AFTER the bad ST's report is done) do NOT discuss your complaints with the lady or her testing you do not need to justify this. just saying you disagree is enough!<br><br>
the junk about no services in school breaks is only true for the parents who don't push for better. Legally, if your kid needs there services and the consistency of no breaks, they have to have no breaks.<br><br>
the part about having to enroll in preschool is junk too. you can sign agreement to IEPs point-by-point, getting her every service you want and refusing the ones you don't want. and if a service is inappropriate (like their classrooms) you go on the record as saying you believe their offer is inappropriate and then you go secure it privately and send them the bill.<br><br>
if you've got the energy to make this happen, you can do it! I sure did. but if you want to go with insurance, you could, you're just passing the chance to get that paid for and get a bunch of free top-notch evaluations... (we disputed FOUR as described above)<br><br>
PM if you want <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/smile.gif" style="border:0px solid;" title="smile"><br><br>
wrightslaw.org and aboutautismlaw.com are great <img alt="" class="inlineimg" src="http://www.mothering.com/discussions/images/smilies/smile.gif" style="border:0px solid;" title="smile">
 

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Big hugs mama! I found it pretty normal that if you get services through the school they don't get it during off days or vacations. We get ST through the school but fortunately my DS is verbal. OT, on the other hand, our school drags thier feet on. They told me almost a year ago that they were goign to consider OT for DS but they were too busy. Not to mention they don't recognize sensory issues as OT needs. (But his sensory perception directly relates to how he learns, so I don't get that). On that one I bypassed the school and he gets OT from the local rehab center through our insurance instead.<br><br>
We're also having issues with DD. She's 4 and talks alot but is REALLY hard to understand. She has the same speech patterns as DS has. The school evaled her and said she was perfectly fine. But they didn't even have a ST do the evaluation, it was a EI volunteer. We're getting her done through the medical model as well and by passing the school.<br><br>
What we foudn is that once we have soemthing from the medical side to prove what the kids' needs are THEN the school is more willing to pull thier weight. I always feel like they don't believe me otherwise.
 

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Discussion Starter · #9 ·
Wow! Thanks you so much for the great advice and help. I am up for the fight and do have the energy to fight it. It is very overwhelming but I am not going to let them get away with this B.S.<br><br>
Thank you!
 
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